Not sure if you ever got an answer.. I have somewhat similar symptoms and my doctor recently mentioned postural orthostatic tachycardia syndrome (POTS) as a possible diagnosis. It's a type of dysautonomia.. I don't know much besides that but felt like it was info I should pass along! I hope you have an answer already! And if you don't have one yet - I hope you find it soon!
Hi Alison,
I don't know if you have found any answers yet, but it sure sounds like to me that you have Ehler-Danlos Syndrome (EDS). Please research it. There are various types of this disorder with different manifestations, but in genera it is a genetic defect that causes collagen to be improperly formed, and since collagen is in all parts of your body, it affects everything!
Muscle, joint, back, and neck issues are common in EDS, as well as numbness to various body parts. Also, it can affect speech and balance. Many people with EDS also have POTS - Postural Orthostatic Tachycardia Syndrome - which can cause lightheadedness, dizziness, fainting, fast heart beat, etc., especially when changing positions or rising from a sitting or horizontal position. Heart palpitations possibly caused by defect in autonomic nervous system. The symptoms for EDS are numerous and people have varying degrees of severity.
And since it is a genetic disorder, it runs in families, which I noticed you have many relatives with various nerve issues. Please research this out to see if this is a possibility in your case. You can go to ednf.org (Ehlers-Danlos National Foundation) to learn more.
When I read your posts I thought, "This sounds like me, my daughter, and others in my family." So, I thought I would just drop you a line in case this would help you in your search for answers.
God bless!
Beth
Hi Alison,
I don't know if you have found any answers yet, but it sure sounds like to me that you have Ehler-Danlos Syndrome (EDS). Please research it. There are various types of this disorder with different manifestations, but in genera it is a genetic defect that causes collagen to be improperly formed, and since collagen is in all parts of your body, it affects everything!
Muscle, joint, back, and neck issues are common in EDS, as well as numbness to various body parts. Also, it can affect speech and balance. Many people with EDS also have POTS - Postural Orthostatic Tachycardia Syndrome - which can cause lightheadedness, dizziness, fainting, fast heart beat, etc., especially when changing positions or rising from a sitting or horizontal position. Heart palpitations possibly caused by defect in autonomic nervous system. The symptoms for EDS are numerous and people have varying degrees of severity.
And since it is a genetic disorder, it runs in families, which I noticed you have many relatives with various nerve issues. Please research this out to see if this is a possibility in your case. You can go to ednf.org (Ehlers-Danlos National Foundation) to learn more.
When I read your posts I thought, "This sounds like me, my daughter, and others in my family." So, I thought I would just drop you a line in case this would help you in your search for answers.
God bless!
Beth
Thanks !!
I have had palpitations while laying down or while sitting or standing, sometimes it feels like it is actually flipping around like a fish or something. It is odd and I do agree that stress can make things worse, I understand this kind of thing with stress. However, I don't believe it is the culprit for me either, just may worsen symptoms. I am actually thinking of counseling because I have a large plethora of other symptoms, mostly neurological and auto immune in nature and I have virtually no support from my family. They don't believe in going to drs much and think that I should just ignore everything and it will go away at some point. I was raised by parents that believe in just letting kids learn everything on their own and were somewhat negligent when I was growing up, they never took us to drs or even the dentist...I had whiplash three times growing up and not once did they take me to a dr..now I have had two spine surgeries as an adult and they couldn't understand or suppor those either..not an easy family to be surrounded by for sure..I can understand their limitations in thinking because some people are just limited...but it is tough to not have support when you know something is going on with your body and it is not normal and there is such a huge lack of understanding in those around me...makes it even tougher to experience all of this. Still odd because my mother's own father died from complications of rheumatoid arthritis at my age, 38, and she just lost her brother of complications two years ago and he was only 60... along with numerous cousins with all kinds of auto immune problems...she just can't be emotionally supportive and I struggle with accepting her lack of empathy or concern and her punishing verbal attacks towards me for seeking help with drs. So this may push me into counseling just because I need to get some of this off my chest sometimes, just need someone to listen and try to understand. I am also working on learning relaxation techniques, knew how to use these before but didn't utilize them much and now am making it a top priotiry to have silence and peace every day, even if for just five minutes, it helps a lot! Also important to try to surround self with positive minded individuals...Also exercise:) I have been walking on the treadmill a lot every day but my palpitations have actually increased as well as the near faints ...weird stuff!
Thanks again and I wish you luck:) I am here if you ever need an ear to listen:)
The vagus nerve can affect the heart rate, it may simply be stimulated by the movement in the rocking chair. Its all very vague what can cause problems like this.
I have palpitations occasionally, ventricular bigeminy quite often. Anything seems to set it off, perhaps more often alcohol, chocolate or tiredness.
I know one thing that certainly makes it worse for me, and i suspect this will apply to you even more than I. Stress and anxiety, worrying and trying to discover what the problem is seems to have the side effect of causing stress. Adrenaline is released and we are on a slippery slope. I'm not saying the cause of all your problems is anxiety, its not for me. But it makes it a lot worse.
Have you considered help with relaxation or counselling? I eventually did, my problems remain and its early days yet for me. But I think I cope better now.
When you have the palpitations whats your heart rate? Mr doc said palpitations are heart beats you can feel and it doesnt mean that they have to be super fast or slow - just noticeable.
Hope you find a solution soon.