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do you have any information about l_tgv / l_tga ??
i was wondering if any one have any info about levo transposition of the great vessels (the same as cctgv) ... And is it seruios ..... What maybe the future complications .... As an adult ... Any piece of advice would be great too .... Thank you in advance :)
i am sooo sorry for the extreamly late replay !! one year almost crazy huh , any way for the vsd it was small so i outgrew it , but i actually found out that the reason for my fatige is that i have regurgitation in my tricusped valve and i may require surgery in a few years .... how about you ?? are you doing well ?
Hey there! Sorry for just now getting back with you. Yes - to go 22 years without it ever being detected - how crazy is that!? It was discovered by accident. I had gone to have my wedding dress fiitted, became sick, and passed out. I went to the doctor and they ran an EKG -- and there it was! They don't think the passing out is related to the heart defect at all. I also had another defect, besides the l-trans, called Cor Triatriatum. It's another one that is really rare and I had surgery to repair it about 6 months ago - and am doing great! Did you have to have surgery for the hole in your heart?
thank you very much for you help and kind response ... I am 17 and i knew about my condition since i was a little girl .. We went to loads of doctor and i had a hole in my heart ,..and ltgv .... So its nothing new or anything .... I think every case is diff. U know ... how could somthing like that be unseen for 22 years ??? And if i may ask how did u find out and why ... Did u go to the cardiologest for some palps or chest pain .. Or by chance ... I am sorry for asking a lot but this is intresting to me .. Cause this is the first time ever i meet someone (kind off) who have ltgv :)
Hi Blackrose93!
I am 23 years old and was diagnosed with LTGA about a year ago. It was extremely scary at first and you can read lots of nasty things on the internet. However, I have great doctors who explained to me in easier to understand terms. LTGA does not require surgery, and typically their are not any complications. Sometimes, late in life a pacemaker may be required due to the hearts design, but that is about the worst case scenario. Medical technology is improving daily - and by the time i get to that point - if I ever do, who knows what medicine will be like then. Rely on your cardiologist - they are the experts - not the internet. If I relied soley on what I read, I would live everyday in fear. Hope this helps - I know what you're going thru!
I am 23 years old and was diagnosed with LTGA about a year ago. It was extremely scary at first and you can read lots of nasty things on the internet. However, I have great doctors who explained to me in easier to understand terms. LTGA does not require surgery, and typically their are not any complications. Sometimes, late in life a pacemaker may be required due to the hearts design, but that is about the worst case scenario. Medical technology is improving daily - and by the time i get to that point - if I ever do, who knows what medicine will be like then. Rely on your cardiologist - they are the experts - not the internet. If I relied soley on what I read, I would live everyday in fear. Hope this helps - I know what you're going thru!
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