I am an otherwise healthy and in shape 36 year old man. Over the last few months, I have been experiencing increasing fatigue (all the time), frequent shortness of breath (going up a flight of stairs, walking to the kitchen, laying down) and frequent palpatations. My mother had a heart attack and was diagnosed with "Hypertrophic obstructive cardiomyopathy" and heart failure.
That combination of my fatigue, breath, and my mothers heart attack led me to see my doctor about it. I know this was dumb, but my last visit was about three years prior with no issues found. My new GP (I moved across the country) said that I had a significant murmur and was surprised that no one had told me about it. He immediately referred me to a cardiologist.
My cardiologist ordered a 24hr holter monitor and an Echo. The echo results were: Severe mitral regurgitation, ASD, and VSD. I was then sent for a TEE and Right and Left Cath. These results were a bit different:
"1. Left ventricle was hyperdynamic with an EF of 70% with 3 to 4+
mitral regurgitation noted. LVEDP was elevated at 20 mmHg. There
was no gradient across aortic valve on pullback."
I'm assuming that between the TEE and the Caths, that is more detailed than the Echo, but in the more recent tests, they said there was no sign of ASD or VSD.
The Cath procedure was done last Friday, 2/23/18, and I was instructed to call the cardiologist office on Monday to set up an appointment. He told the person that was there with me (I was sleeping through the procedures) that it was severe and surgery would be needed to fix it. I have called the office daily and left multiple messages, but I am not getting any callbacks. The person with my said that the cardiologist made is sound like it was very important that I meet with him again soon, but it seems that they aren't as concerned about it now.
I think the EF of 70 is good, but the regurgitation is bad. I believe the elevated LVEDP is bad as well. I'm quite concerned and a bit afraid of the results, and I'm trying not to worry/stress over it as best I can. That is why I'm making this post. Should I be more aggressive in trying to reach the cardiologist office? Should I find another cardiologist and have records sent there? or should I just try to be patient, relax, and wait?