Tetrorogy of Fallot with absent Pulmonary valve Syndrome

[jak999]

My daughter is suffering from Tetrorogy of Fallot with absent Pulmonary valve Syndrome, her age is two and half years. I visited the Pediatric cardiologist and thoracic surgeons here in Pakistan. But they have no satisfactory solution regarding absent pulmonary valve syndrome, where as in tetrology of Fallot can be very well manage here.

Current status is that my daughter two times suffer from severe pneumonia, sometimes I observed sweating on her forehead, growth is not up to the mark. Her color is pink.

I will be thank full  to you If you guide me regarding the disease, its consequences if not timely treated, treatment options and risk factors and some institute for procedure etc?

[jak999]

Thank you......

[Paderla Anitha, DNB]

Sir, sorry I am not able to help you, as we do not maintain the contact details on this forum. You could try the insurance agencies or other health directories, where they store the contact details. Wish you Luck.

[jak999]

Thank you very much, for guidelines.............. My daughter's doctor suggests me to contact Dr Rajesh Sharma in India, can you give me his some e-mail address please?

I will be highly obliged.....

Regards,

[Paderla Anitha, DNB]

Hello and hope you are doing well.

Tetralogy of Fallot (TOF) with absent pulmonary valve is a rare congenital anomaly characterized by features of tetralogy of Fallot with either rudimentary ridges or the complete absence of pulmonic valve tissue. This leads to severe regurgitation and pulmonary artery dilatation. Hence, pulmonary complications are common. If conservative managements fail then surgical correction is planned. Surgical repair techniques vary in accordance with the particular anatomy in a given patient, especially the severity of pulmonary artery dilation.

For the surgery you can get a direct referral from your cardiologist. He will be able to guide you.

Hope this helped and do keep us posted.