ToF

[teschbaby2]

I'm currently pregnant, almost due. I was just curious what the life expectancy was for my baby. It's my second kid but only difference is this one has ToF with absent pulmonary valve. Also my doctors found out he had a backwards heart and its tilted. I've been told this is very rare, don't even know what causes it. I've also been told that they've never seen anything like this. It makes me more scared than anything. I just want some answers please.


This discussion is related to Life expectancy for TOF with absent pulmonary valve syndrome after repair.

[ed34]

I'm sorry but this is a subject I'm not very strong in. From what I can gather, it all depends on how well the heart functions. If your child is getting symptoms such as lack of oxygen, then complicated surgery will be required.

[teschbaby2]

Thank you. It's what I was expecting, but just hoping for the best outcome.

[mjhorn1971]

We have the same, and she is now almost 11, and is happy healthy. How are you now?