How old is your son? He would probably qualify for Social Security and disability. has he been evaluated by a transplant team? If not, you may want to consider that route.
Your son should visit a hospital on an emergency call. With congested heart failure, the lungs will cause respiratory issues and futher burdent the heart with the low EF. EF is the amount of blood pumped with each heartbeat and normal is 50 to 70%.
I had (EF 13% CHF 7 yearts ago) and I had shortness of breath, hypervented breathing, etc. The outcome if your son does not received medical attention, would be continued inability of the heart to adequately pump blood received from the lungs and additional fluids filling the lungs, and one would actually drown from the excessive fluids in the lungs. Also, when the EF is very low that condition can cause arrhythmia (irregular heartbeat) and cardiac arrest.
It seems the dx of chronic CHF would alert the doctor who made the diagnosis to treat or refer your son for proper care immediately. I don't believe that your son would be turned away due to lack of insurance...was you son treated with a diuretic and lungs oxygen level stablized at the time of last clinical visit? The underlying cause would provide more information regarding heart health going forward. If your son is having symptoms of congested heart failure, he should contact the medical community as soon as possible and not wait until the scheduled date for seeing a doctor.
Thanks you for sharing, and if you have any further questions or comments you are welcome to respond.