I am a 40 yr. old male diagnosed with some form of Porphyria according to my doctor based on my a skin biopsy. Further testing showed enlarged heart.
Echocardiogram confirmed cardiomyopathy. he characterized it as "global" whatever that means.
His best guess is it's caused by hemochromatosis
(to much iron in the blood)
I asked him to give me these results from the echo :
LVH
IVS - 1.20cm
Port wall - 1.15cm
EF - 35%
He says that I did not catch this "early" and it's pretty bad
Can someone tell me what this means and direct me to a web page that can tell me how far my disease has progressed based on these results ?