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Extreme Cardio phobia
Hi guys,
For a while now, I've been dealing with some heart issues. Irregular beats, bradycardia, tachycardia, dizziness, etc.. I've been to numerous cardio docs and had tons of testing, I'm actually going soon to a new doc for another opinion, I've also had a million er trips regarding my heart, My last being two nights ago. I can't stop thinking about my heart and heart issues. I fear them all day everyday. I'm constantly checking my spO2 and pulse. Constantly feeling my heartbeat. I wake up in the middle of the night panicking if it's beating too slow, fast, or irregular. I'm going to get this checked, but what can I do about this obssession. Its ruining my life. Its terrifying me. Anyone else with heart phobia?
For a while now, I've been dealing with some heart issues. Irregular beats, bradycardia, tachycardia, dizziness, etc.. I've been to numerous cardio docs and had tons of testing, I'm actually going soon to a new doc for another opinion, I've also had a million er trips regarding my heart, My last being two nights ago. I can't stop thinking about my heart and heart issues. I fear them all day everyday. I'm constantly checking my spO2 and pulse. Constantly feeling my heartbeat. I wake up in the middle of the night panicking if it's beating too slow, fast, or irregular. I'm going to get this checked, but what can I do about this obssession. Its ruining my life. Its terrifying me. Anyone else with heart phobia?
hi kellie, i am exactly the same, it rules and has ruined my life, i do nothing but think about it all day, ive seen 2 psychologists now for help and both said there is nothing wrong with me and i dont need to see them again
4 Comments
Hi Laser1. I can relate to you totally. I been going through this now for two years!!! I have a second opinion coming up soon. I have had so many tests done and seen some of the best cardio docs who cant figure anything out, and tells me things look ok. i do have mild hypertrophy, but not enough to cause my symptoms. and im told i dont have arrythmia, which i know is BS. i feel it all day long along with these symptoms. i also need labs done for, thyroid, electrolytes,etc.. but i never had these symptoms before two yrs ago except for the palpitations. i know for a fact my constant dizziness is not anxiety..
Sometimes I wish I could magically make things happen for some users on this board.
You really just need a longer monitoring option if they arent catching the symptoms on their equipment.
I often disagree with niko, not necessarily, because hes wrong, but because occams razor and simplest explanations and all. You feel palpitations and think,they are electrical. They probably are, so we need to maybe be a bit more aggresive in seeking it out before we order a few dozen obscure labs.
Even if anxiety is the cause, anxiety causes electrical changes and if thats what we find we need to probably be doing a better job at explaining how all that works to patients.
Ive seen folks keep patients out of the loop, and ive seen folks try to give a patient a lecture on cardiology (guilty as charged). What we need is a healthy middle that allows patients to understand what tests are being run, why they are being run, and a basic understanding of how to interpret the results. This creates a culture where folks are a bit better informed and as patients are empowered to speak with regards to the direction they want their care to go.
I dont think "not finding anything" is sufficient, particuarly if the patient is anxious about their health and lacks confidence in the provider. You need to like sit down, and show somebody the actual strip of paper and say "ok this is an atria this is a ventricle.. Heres a picture of normal.. Heres a picture of abnormal and this is WHY its abnormal.. Now this is your heart and when you experience symptoms it looks like this, because i dont see any xxx like in the abnormal picture i think this bit is caused by an anxiety episode and not a structural problem"
#2centsin
You really just need a longer monitoring option if they arent catching the symptoms on their equipment.
I often disagree with niko, not necessarily, because hes wrong, but because occams razor and simplest explanations and all. You feel palpitations and think,they are electrical. They probably are, so we need to maybe be a bit more aggresive in seeking it out before we order a few dozen obscure labs.
Even if anxiety is the cause, anxiety causes electrical changes and if thats what we find we need to probably be doing a better job at explaining how all that works to patients.
Ive seen folks keep patients out of the loop, and ive seen folks try to give a patient a lecture on cardiology (guilty as charged). What we need is a healthy middle that allows patients to understand what tests are being run, why they are being run, and a basic understanding of how to interpret the results. This creates a culture where folks are a bit better informed and as patients are empowered to speak with regards to the direction they want their care to go.
I dont think "not finding anything" is sufficient, particuarly if the patient is anxious about their health and lacks confidence in the provider. You need to like sit down, and show somebody the actual strip of paper and say "ok this is an atria this is a ventricle.. Heres a picture of normal.. Heres a picture of abnormal and this is WHY its abnormal.. Now this is your heart and when you experience symptoms it looks like this, because i dont see any xxx like in the abnormal picture i think this bit is caused by an anxiety episode and not a structural problem"
#2centsin
That doesn't work for me though 2210485. We speak quite abit through here aswell :-). I hope u are well. I've had multiple doctors go through the tracings with me and it still hasn't helped me a great deal. In fact it's made me more aware of certain disorders that can present and certain wave forms which can form from them, which then leads me to self diagnose.
Dangit cardio.. Just send me the scans of your ekgs if you think they're suspicious. I can't diagnose you but we can always talk about it anytime youd like.
Hi kelle, we have to stop meeting like this,lol!
Anyways as, I was reading your post , suddenly I had an ...epiphany.
Methylation Imbalance!
Some symptoms ( the presentation would vary greatly
among individuals who have methylation issues):
Arthritis, asthma, allergies,Bipolar disorder, behavior and learning disorders – ADHD/ADD, autism, schizophrenia, Alzheimer’s disease, Parkinson’s disease, autoimmune diseases, cancer, depression, high anxiety, obsessive compulsive disorder, perfectionism, panic disorder, addictions, PMS, chemical and food sensitivities, amenorrhea (absence of menstruation), infertility, hair loss, anemia, elevated blood sugar, high blood pressure, memory loss, violent behavior, hypothyroidism, skin rashes, headaches, insomnia, tinnitus (ringing in the ears), sensitive skin, spaciness, racing thoughts, weight gain, weight loss, and chronic infections.
In low methylation, a common sign is elevated homo-cysteine it does not convert to methionine
efficiently. High levels of homocysteine have been linked to increased risk for heart disease.
A genetic test, will indicate if you have a genetic mutation(most common is MTHFR gene mutation) related to methylation issues.
On their own, low magnesium, low thyroid function and high stress could be co-factors in your undetermined condition.
Best wishes,
Niko
Anyways as, I was reading your post , suddenly I had an ...epiphany.
Methylation Imbalance!
Some symptoms ( the presentation would vary greatly
among individuals who have methylation issues):
Arthritis, asthma, allergies,Bipolar disorder, behavior and learning disorders – ADHD/ADD, autism, schizophrenia, Alzheimer’s disease, Parkinson’s disease, autoimmune diseases, cancer, depression, high anxiety, obsessive compulsive disorder, perfectionism, panic disorder, addictions, PMS, chemical and food sensitivities, amenorrhea (absence of menstruation), infertility, hair loss, anemia, elevated blood sugar, high blood pressure, memory loss, violent behavior, hypothyroidism, skin rashes, headaches, insomnia, tinnitus (ringing in the ears), sensitive skin, spaciness, racing thoughts, weight gain, weight loss, and chronic infections.
In low methylation, a common sign is elevated homo-cysteine it does not convert to methionine
efficiently. High levels of homocysteine have been linked to increased risk for heart disease.
A genetic test, will indicate if you have a genetic mutation(most common is MTHFR gene mutation) related to methylation issues.
On their own, low magnesium, low thyroid function and high stress could be co-factors in your undetermined condition.
Best wishes,
Niko
2 Comments
Thank you Niko. So do I ask for that gene test? Are there any others.. That really covers alot of disorders. I never heard of it.
Hmm, unfortunately, most doctors don't get into this or don't know about this.
I'm doing a lot of research and studying genetics right now.
MTHFR mutations that have the greatest influence on health are:
Homozygous A1298C (C1298C) and homozygous C677T (T677T)
Compound heterozgous A1298C + C677T
It probably sounds gibberish to most people, but the above are mutations
at specific places on DNA sequencing, which may affect how certain genes get
activated or deactivated.
In an ideal world, we would all have genetic testing, so we could by-pass
genetic defects ( the ones which have been studied and we are able to fix by epigenetics- a newer medical field).
Most of the time, in the absence of a genetic profile and before any therapeutic approach is applied
for any suspected methylation issues, I suggest a simple MMA test, which would indicate the levels of
Methylocobalamin B12 and Methylfolate (which are both the bioavailable and methylated forms of
of B12 and folate).
The MMA test should be repeated within a few weeks for accuracy.
A deficiency in those is a strong indicator that the patient is a low methylator.
Also Spectracell Labs MTHFR Test
at a cost of about $150 USD
23andme, used to do genetic testing,however, things are changing fast.
I have dealt with 23andme, online and I can decipher most of their reports (they come w/o analysis and there also a few other websites where you can get your results analysed for very little.
But I think 23andme genetic testing is no longer available within the US.
( FDA,fearing some people might do their own diagnosis and treatments according to their genetic profile and eventually screwing up, or simply seeing these types of tests as a threat to the Establishments' big business?) Hmm, I often wonder.
I live in Canada, but my test was done in Holland and it cost 2 years ago about $150 USD
Low methylation affects detoxification, the bodies ability to convert and recycle vital neurotransmitters and other chemicals. Millions of daily biochemical reactions in the body
may be sluggish, resulting in poor health outcomes in the end.
On the other hand, if the medical system, would address this properly ,
invest in enough resources for efficient diagnosis and treatment, it would render Billions of dollars worth ofabovserescription drugs (many of them taken for the entire life of patients) totally unnecessary.
That is not going to happen any time soon.
After all, we are far from living in an ideal world, lol !
Best wishes,
Niko
I'm doing a lot of research and studying genetics right now.
MTHFR mutations that have the greatest influence on health are:
Homozygous A1298C (C1298C) and homozygous C677T (T677T)
Compound heterozgous A1298C + C677T
It probably sounds gibberish to most people, but the above are mutations
at specific places on DNA sequencing, which may affect how certain genes get
activated or deactivated.
In an ideal world, we would all have genetic testing, so we could by-pass
genetic defects ( the ones which have been studied and we are able to fix by epigenetics- a newer medical field).
Most of the time, in the absence of a genetic profile and before any therapeutic approach is applied
for any suspected methylation issues, I suggest a simple MMA test, which would indicate the levels of
Methylocobalamin B12 and Methylfolate (which are both the bioavailable and methylated forms of
of B12 and folate).
The MMA test should be repeated within a few weeks for accuracy.
A deficiency in those is a strong indicator that the patient is a low methylator.
Also Spectracell Labs MTHFR Test
at a cost of about $150 USD
23andme, used to do genetic testing,however, things are changing fast.
I have dealt with 23andme, online and I can decipher most of their reports (they come w/o analysis and there also a few other websites where you can get your results analysed for very little.
But I think 23andme genetic testing is no longer available within the US.
( FDA,fearing some people might do their own diagnosis and treatments according to their genetic profile and eventually screwing up, or simply seeing these types of tests as a threat to the Establishments' big business?) Hmm, I often wonder.
I live in Canada, but my test was done in Holland and it cost 2 years ago about $150 USD
Low methylation affects detoxification, the bodies ability to convert and recycle vital neurotransmitters and other chemicals. Millions of daily biochemical reactions in the body
may be sluggish, resulting in poor health outcomes in the end.
On the other hand, if the medical system, would address this properly ,
invest in enough resources for efficient diagnosis and treatment, it would render Billions of dollars worth ofabovserescription drugs (many of them taken for the entire life of patients) totally unnecessary.
That is not going to happen any time soon.
After all, we are far from living in an ideal world, lol !
Best wishes,
Niko
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