Cindy, Thanks for your kind words! After hanging around here reading and trying to help myself, I just felt like I had to give something back. I think all of us can better understand our unique situation by using this forum and at least for me, though I haven't posted very much,the forum has become a type of sanctuary. Its comforting to know there are others who can really relate to what we are going through. Tanns, hang in there ! Luke
When you said this:
"It is very hard to explain to someone who has never experienced this how it really makes you feel. Its not just the pacs but the unpleasant feelings that go along with it."
I was thinking YES, YES, YES!!!! That is EXACTLY it!! It isn't the actual PAC anymore, it is the absolutely awful feelings that come with it. It is those feelings that have always led me to believe I have something more sinister going on.
THANK YOU, THANK YOU! You have actually given me some peace tonight, friend.
What a great post you did...i just wanted to tell you that...that was exactly the way that i felt a couple of years ago when i first logged on too and then magically i found a group of people that were going thru exactly what i was and in honesty just needed someone to calm me down and a couple of people who are still on this forum were the ones responsible for me making the decisions that i did and got a new life out of it. Yep its great for all of us to know that we are all here for one another and i seem to post alot here but you would not believe how much i personally get out of it w. my own medical situation...so i agreee wholeheartedly......to me this is more than a forum and more like a heart family......anyway thank you from the bottom of my heart Luke........<3 Cindy
My journey started out with tachycardia attacks day and night which turned into a pretty good case of high anxiety probably from not knowing what was happening. Along with this I started feeling the pacs. Like I mentioned I made several ER trips, went through a battery of tests, biofeedback,and several brands beta blockers. The doctors finally put me on a combination of Corgard and Xanax and so far its been the best combination for me. I was really worried about the pacs but now I just try to tolerate them. I know they will always be with me so I just try to accept them. One doctor said I was going to die some day but it wouldnt be because of the pacs. That helped some. My minister said to just accept it like he does his diabetes. That helped some more. Reading the posts on Med Help helped even more. Especially since I found out I wasnt alone. It is very hard to explain to someone who has never experienced this how it really makes you feel. Its not just the pacs but the unpleasant feelings that go along with it. Earlier this week I was having pacs everyday just about all day long and tonight as Im typing this I cant remember having any all day long. I may go six months without even thinking about them then out of nowhere Ill have them all month long. When it gets really bad I try to think back when all this started and I say to myself "gee Ive had these stupid pacs for eighteen years and Im still here!" Staying busy also helps me to keep from dwelling on it and sometimes I get mad at them and say "bring it on Im not giving in to it!" Dont get me wrong I do have my days when its an uphill battle but when it gets that bad I try to think of someone who is going through something a lot worse and I think that person would probably trade places with me any day. Anyway I wish I had some "magic formula" to offer but all I have is what I have experienced and hopefully if that alone helps one person for one day it will all be worth it. Remember your not alone and I know exactly how you feel! luke
Good the "hear" from you. You must have ideas and experiences from time-to-time that we can all benefit from.
So, if you discover something that works, or doesn't work, please let us all know and benefit.
Keep up the good spirit and keep winning the battle.