Hi, we haven't communicated for a while. Nice to see you're still so active and function well.
Recently I received an email that stated, "I am facing a total AV node Ablation soon. Then I will be totally dependent on the pacemaker. I read somewhere that the survival rate after that is 22 years." Did your doctor warn you before your av node ablated? My cardio didn't tell me or warn me. They put a tattoo on my heart and designed the picture which they liked. Do you know, 22 years is because of the pacemaker pacing on the right ventricle or the absent of the AV node?
Lately, I cry a lot... very miserable.
I'd like to comment on the ablation and relapse issue. I have IST and had an ablation. I had an AV Nodal ablation so am now pacemaker dependent (this is not bother for me). My ablation was totally successful for seven years, and then the problem came back which was really hard for me to accept. But even so, I had seven brilliant years being nearly symptom free, for which I'll be eternally grateful.
During those wonderful years I met the man who stole my heart, and we have been married for 7 years now, I got pregnant, sure the pregnancy was difficult, but thats more because of being diabetic than having heart issues, I gave birth (admittedly by c-section) to a gorgeous and healthy son who has grown into themost wonderful, beautiful, intelligent and extremely compassionate six year old.
For those years I was "normal". It was so great, I was only 25 when I got my pace maker, but after the ablation I went from being almost an invalid to being a normal fun loving person, able to do my favourite sports, horse riding, swimming, and tennis. I could go out and have fun. I could play rough and tumble with my little guy. I'll never ever regret having those fabulous years.
Now my IST has reared its ugly head again. We are trying meds, but they are not helping and I intend to go back to the cardio soon to duscuss having another ablation. If I need to have one every few years to have a good quality fo life, then that's what I'll do. The procedure itself isn't that bad, and the recovery time is short.
Hope this helps you.
Hi there!
yes, i had an ablation 2 years ago, and i'm veryvery glad I did it. It's wonderful to NOT feel like your heart is going to jump out.
I also have an anxiety/panic disorder. I've been on Xanax for a whyle, veryvery helpful, BUT very addictive. I say go for it, it's a 2 hour outpatient surgery, and you'll feel much better. Just make sure you REST after the surg., because I didn't, went back to work, and ended up having mini seziures (sp?) so it's so important to LISTEN to your doctor after surg, and stay in bed. Good luck sweetie, let me know if you have any questions, i'd be happy to answer!
take care!!!!
No need to thank me, I understand. Sometimes I feel like I am coming out of skin, don't know which way is up or down. I hope you have a goods night rest, ou deserve it. I need to go to bed but can't right now, ugh. Sweet dreams!
Hi faithful...thank you so much for taking the time to talk to me about this it helps alot...i know i wish it had spell check...LOL....i just want this to go away it's hard for me and no one understands exept people who have this crapy beat.. i feel mine all the time my heart skips and skips i hate it....thanks again talk to you soon i have to try to go to sleep..
I can hear the desperation in your post and I feel AWFUL for you. Even though I don't have them quite as bad as you do I know how scary they are and how scared they make yhou feel. I have heard of flecacide (sp?) and yes, I understand that the side effects are enough to make your anxiety sky high. I can't really tell you much about them besides that as I have never been on an anti-arrythmic, but there are people on this forum who have taken darn near everything including the above.
I understand the feeling of thinking you are going to die all of the time; but please try your best to think as positive as you can, it helps. If you constantly think of dying it just exacerbates the problem, thus more PVC's.
You are on the right forum/website. You can also ask a doctor on this forum, you have to go to the main page for that.
If you have been dealing with this for 5 years just think of how you made it this far...and you are still here. So beta blockers make you pass out? It must get your blood pressure too low, is that it? They make me dizzy sometimes and that is why I want to get off of them. What does were you on, was it real high? My cardio started me on 25 then uped it to 50 and I was wiped out, always felt like I was swaying, so he took me back down to 25.
There are so many people experiencing this, just read the post and I am sure it will make you feel much less alone, and much less vunerable to these horrid little beast.
Be calm and try to get some rest tonight.
Wish we had spell check :-)
thank you so much for your comments yess to all of the above i don't have Caffeine or Alcohol but i do smoke..... i have them all day and everyday every min ..yes I have been to a cardio doctor and he is the one who told me about this...I have been on beta blockers they are not good for me they make me pass out and as for the other med you said I have not tried that one yet…. They gave me apo-flecaide to take do you know this med… witch I have not tried yet I’m to scared to take this one I read that the side effects are not good…so tell me do you have this problem to are you on anything….I can’t stand it anymore it’s so unbearable I get them all day every min…I hate this they say it’s normal how can this be normal for your heart to do this I think that’s why I have panic all the time I think that my heart can’t take it and it will just stop and die I don’t want to die please if you know anything about this let me know you said to go on a web site I will go and see what I can find….thank you so much please get back..
Sue
Hey there, I see you found the forum. You will receive a lot of help here. I have been having a few flutters today, but I don't know how anyone handles a thousand in a day. Anyway, I really hope you feel better and soon.
which came first, the chicken or the egg? It's a question worth asking since I've suffered with panic attacks ever since I can remember, but then, I've had pvcs ever since I can remember too! I'm one of the lucky ones to have both, and the frequency of the pvcs just keeps getting higher. Two years ago holter monitor recorded 24,000/day over 48 hours, and I'm up from there since.
I have to ask the same questions as Artuad, how many do you get if you feel them all day long, and have you given up all stimulants? Ablation does carry risk, and if you've read many of the posts in this forum, it isn't a perfect cure. However, if you are at your wits end, many people who've had ablation are very thankful for it.
Hi,
Panic Attacks, Adrenaline, and Palpitations seem to go hand in hand. The more you fear, the more adrenaline you get, the faster your heart beats, and the more likely you are to have palpitations. In addition, hyperventilation is a component to Panic Attacks and Palpitations.
In a case study of a patient with an arrhythmia that was difficult to control, the Doctors discovered that having the patient breathe slowly would actually stop the arrhythmia. Myself, I have suffered with Trigeminy (in my case, two normal beats and a PVC, repeated over and over again, for an hour or more). I discovered that inhaling moderately and holding my breath would temporarily break the cycle for the time I was holding my breath and a little more. Although it may not seem to be very practical, holding one's breath is not something that can be done all day long, it does serve to show, in my case at least, that breathing has an effect on the arrhythmia.
Also, Respiratory Sinus Arrhythmia is the natural speeding up of the heart when we breathe in and slowing down of the heart when we breathe out. If you are nervous, and your breathing is shallow and constantly reversing, your heart rate is constantly being adjusted up and down. Many people with anxiety and some people with arrhythmias benefit from learning to breathe properly.
Some people on the forum have more than 10,000 PVCs a day and still, after having their hearts carefully evaluated by a competent Doctor, may still not need to have any significant action taken to treat them. 10,000 PVCs a day averages to 6 per minute 24 hours a day. Also, my wife works for a Cardiologist, and they occasionally get patients with so many PVCs that my wife can’t take their pulse. Oddly enough some of these patients have no idea that they are getting so many PVCs. After the Cardiologist does an evaluation and feels that nothing significant is wrong with the heart, he may not even tell them of their arrhythmia for fear of them worrying about them. (These patients may have been referred by their Family Doctor due to the discovery of the arrhythmia during a physical)
Imagine patients with so many PVCs that you can’t consistently take their pulse, yet they, and I assume yourself if cleared by a Doctor, are in no danger. The only difference is that they can’t feel theirs and you can.
You say you have them “all the time”, how often and how many exactly are you speaking about? What have they determined the Palpitations to be caused by, PVCs, PACs, PSVT, etc.
Ablation Surgery carries with it risks, and the danger to the patient from the arrhythmia should be greater than the danger to the patient from the procedure. If you are terribly distraught by the Palpitations, but are only have a few hundred a day, it’s unlikely that they would do an ablation anyway. Some people that have had ablations relapse, and begin to experience the arrhythmia again, or another kind of arrhythmia, after the procedure. Some people have had two or even three ablations to fix the problems.
Also, do you totally avoid Caffeine, Alcohol, and Cigarettes? They are all known to contribute to arrhythmias. Also, diet pills, decongestants, Mega Vitamins, Supplements such as Saint John’s Wort, these also have been known to contribute to arrhythmias.
Wish you well.