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WELCOME
WELCOME TO THE HEART RHYTHM FORUM!
Were you recently diagnosed with a heart rhythm disorder? Would you like more information on the heart’s electrical system? Are you feeling overwhelmed, frightened and/or confused? Are you scheduled for EP tests, procedures, and or surgery? Is your arrhythmia medication giving you trouble? If you answered “yes” to any of these questions, you are in the right place!
The Heart Rhythm forum is comprised of a group of people who share an interest in learning more about arrhythmias. The forum covers an array of topics including: Afib, Aflutter, PVCs, PACs, SVT, WPW, palpitations, pacemakers, ICDs, procedures, tests, medications, post procedural/surgical expectations, and much more. If it is related to your heart’s rhythm, chances are we can help.
Some of us have been living with arrhythmias for years while others are new to the world of electrophysiology. Regardless of why YOU are here, welcome! Here are a few suggestions for making the most of the forum.
1) Check out the "Health Pages." The link can be found in the upper right hand corner of your screen. The “Health Pages” address topics relevant to cardiology. Among the pages is a great resource for common cardiology acronyms.
2) Please join the community. Once you have had a chance to look around, why not create a profile and tell us a little about yourself? Your profile can be as simple or as complex as you like. In any event, you will meet people from around the globe! You will have the opportunity to learn and share experiences with members who share your concerns.
3) Consider posting to a current discussion, or try staring one of your own. Don’t worry - you’ll get the hang of it very quickly. You’ll find that you will want to come back often to check up on your new friends. If you’ve got something on your mind, please don’t be shy. There are no dumb questions and we are all here to learn.**
4) Get acquainted with other members. There are several ways to “Add a friend” but one of the easiest is to scroll over the member’s name and click on “Add a friend”.
5) Consider keeping a journal. Your journal can be private, public, or available only to those people you have added as a friend. Journals are a great way to share your story, frustrations, experiences, history, etc. You will probably find there are others who can relate to your story.
6) Want to speak privately to another member? Send a private message (PM) by scrolling over the member’s name and clicking on “Send Message”.
7) Only have a minute and want to welcome a member, or send good luck wishes? Scroll over the member’s name and click on “send a note.” Unlike PMs, everyone can view “Notes”.
8) Once you’ve created a profile, click on “My MedHelp” (indicated by a little red heart at the top of your screen) and check out the many great features and setting options.
9) Lastly, we would like to point you to the TRACKERS!! There are a number of trackers available to our members, but we would especially like to point out the ‘Cholesterol, Blood Pressure and Heart Rhythm trackers. You can add them to your profile by clicking on "My MedHelp" (top) and then go to the Tracker Widget -- At the bottom of the Tracker Panel click on "Add Tracker" which will take you to the tracker page, where you can select the BP, Cholesterol and/or Heart Rhythm tracker. You can begin using your trackers today! Keeping track of your cholesterol and blood pressure are great ways to do your part to manage your heart health!! The rhythm tracker is an excellent tool for you to document symptoms, frequency, treatments and procedures relevant to your heart rhythm!
**Please read the Terms of Use at the bottom of your screen. There are a few general posting guidelines that are for the benefit of all community members.
Please do not hijack another member’s thread. If your comments are relevant with the current discussion, post away. If you have a new topic of interest, please begin a new post.
We are so glad you found us! Please don't forget to join our community! We would love to have you! Pull up a chair, get comfortable and get ready to meet a great bunch of people!
If you are already a member, won't you please take a minute to welcome our new members as well as those who are lurking. Would you mind sharing your story to let others know how the forums have helped you.
Your Community Leaders
Were you recently diagnosed with a heart rhythm disorder? Would you like more information on the heart’s electrical system? Are you feeling overwhelmed, frightened and/or confused? Are you scheduled for EP tests, procedures, and or surgery? Is your arrhythmia medication giving you trouble? If you answered “yes” to any of these questions, you are in the right place!
The Heart Rhythm forum is comprised of a group of people who share an interest in learning more about arrhythmias. The forum covers an array of topics including: Afib, Aflutter, PVCs, PACs, SVT, WPW, palpitations, pacemakers, ICDs, procedures, tests, medications, post procedural/surgical expectations, and much more. If it is related to your heart’s rhythm, chances are we can help.
Some of us have been living with arrhythmias for years while others are new to the world of electrophysiology. Regardless of why YOU are here, welcome! Here are a few suggestions for making the most of the forum.
1) Check out the "Health Pages." The link can be found in the upper right hand corner of your screen. The “Health Pages” address topics relevant to cardiology. Among the pages is a great resource for common cardiology acronyms.
2) Please join the community. Once you have had a chance to look around, why not create a profile and tell us a little about yourself? Your profile can be as simple or as complex as you like. In any event, you will meet people from around the globe! You will have the opportunity to learn and share experiences with members who share your concerns.
3) Consider posting to a current discussion, or try staring one of your own. Don’t worry - you’ll get the hang of it very quickly. You’ll find that you will want to come back often to check up on your new friends. If you’ve got something on your mind, please don’t be shy. There are no dumb questions and we are all here to learn.**
4) Get acquainted with other members. There are several ways to “Add a friend” but one of the easiest is to scroll over the member’s name and click on “Add a friend”.
5) Consider keeping a journal. Your journal can be private, public, or available only to those people you have added as a friend. Journals are a great way to share your story, frustrations, experiences, history, etc. You will probably find there are others who can relate to your story.
6) Want to speak privately to another member? Send a private message (PM) by scrolling over the member’s name and clicking on “Send Message”.
7) Only have a minute and want to welcome a member, or send good luck wishes? Scroll over the member’s name and click on “send a note.” Unlike PMs, everyone can view “Notes”.
8) Once you’ve created a profile, click on “My MedHelp” (indicated by a little red heart at the top of your screen) and check out the many great features and setting options.
9) Lastly, we would like to point you to the TRACKERS!! There are a number of trackers available to our members, but we would especially like to point out the ‘Cholesterol, Blood Pressure and Heart Rhythm trackers. You can add them to your profile by clicking on "My MedHelp" (top) and then go to the Tracker Widget -- At the bottom of the Tracker Panel click on "Add Tracker" which will take you to the tracker page, where you can select the BP, Cholesterol and/or Heart Rhythm tracker. You can begin using your trackers today! Keeping track of your cholesterol and blood pressure are great ways to do your part to manage your heart health!! The rhythm tracker is an excellent tool for you to document symptoms, frequency, treatments and procedures relevant to your heart rhythm!
**Please read the Terms of Use at the bottom of your screen. There are a few general posting guidelines that are for the benefit of all community members.
Please do not hijack another member’s thread. If your comments are relevant with the current discussion, post away. If you have a new topic of interest, please begin a new post.
We are so glad you found us! Please don't forget to join our community! We would love to have you! Pull up a chair, get comfortable and get ready to meet a great bunch of people!
If you are already a member, won't you please take a minute to welcome our new members as well as those who are lurking. Would you mind sharing your story to let others know how the forums have helped you.
Your Community Leaders
I am so sorry you are going through this, hopefully you will find some answers soon.
Do you have a mayo clinic near or another large research clinic that you can go to? I tried Mayo and it was out of network for my insurance, so I couldn't afford the $12,000 cost out of pocket.
Keep us posted and feel free to pm me if you just want to rant - goodness knows thats all Ive done the past week :)
Do you have a mayo clinic near or another large research clinic that you can go to? I tried Mayo and it was out of network for my insurance, so I couldn't afford the $12,000 cost out of pocket.
Keep us posted and feel free to pm me if you just want to rant - goodness knows thats all Ive done the past week :)
I sent you a private message.
Connie
Connie
I'm glad I have found this site. I've spent all day reading things that are helpful. I am completely lost and I don't know how to use the site. I do know I'm seeing doctor after doctor and they are completely baffled, and I am completey afraid. I figure when I die maybe they will figure out what "was" wrong with me during the autopsy. I'm just glad I have found a site that shows me I'm not the only one feeling this way.
Thanks.
Thanks.
Glad to have found this site. I thought I was the only one who was having some crazy numbers on my tests but glad to see others do too.
Short list info - I have over 54,000 extra beats on my holter and have runs of PVC's/VT's that are wrecking havoc with my life. It's been this way every single moment of every day since February 2009.
I pass out, passed out after 3 & 5 vt runs on my stress test, I black out, have such severe symptoms daily that I went from leading an active normal life to barely surviving.
Going to another specialist this Friday because I want a second opinion on why I need surgery with no reasoning.
Sorry for the long welcome post, just glad others know what I'm feeling.
Short list info - I have over 54,000 extra beats on my holter and have runs of PVC's/VT's that are wrecking havoc with my life. It's been this way every single moment of every day since February 2009.
I pass out, passed out after 3 & 5 vt runs on my stress test, I black out, have such severe symptoms daily that I went from leading an active normal life to barely surviving.
Going to another specialist this Friday because I want a second opinion on why I need surgery with no reasoning.
Sorry for the long welcome post, just glad others know what I'm feeling.
I am a 30 year old female who was diagnosed with AVNRT... NO medication was helping with this condition. I would experience "episodes" in which my heart rate would exceed 200 beats/minute. Sick of the ER, and adenosine... I had the heart ablation surgery just this past Monday at U of M hospital in Michigan. Dr. Morady performed the procedure, and I am cured! I felt NOTHING through the entire surgery... except for my heart rate going up... due to the fact that they needed to trace the path of electrical signals. I did not feel the needle "numbing" my upper thigh area, I did not feel them burning my heart tissue, and the procedure took 45 minutes... not 2-4 hours. If this is an option... get this procedure done! It is well worth it! I am a big baby with pain... again I felt NOTHING the entire time! I was not even that sore the day after, yesterday, or today. Best of luck to everyone with this condition. My heart rate has never felt more normal than it does now :)
Hi. I ended up in the hospital for 2 days after having a very fast heart beat where I almost passed out. The irregular rhythm lasted only a brief time, but I was almost out cold. I had an EP study where they found an irregularity in the ventricles but couldn't sustain it, so that's been about it. I've been terrified and overwhelmed. They think it was a fluke that may not happen again but I'm totally afraid. Thanks.
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