I have fibrosis

[aberdeen577]

Dear All,
I have just joined the forum today and I have read many threads already over the last few months. I want to now start taking more care AND control.
My history is that I have had hep b since 1991. I had biopsy then and my liver was fine. The consultant put me on alpha interferon for 6 months but it did no good or so I was told. Over the next few years I was put on lamivudine and then combo with adefovir. In 2007 I was taken off combo and my hbvdna fluctuated between und and 2000/3000. Recently I had a fibroscan which was inconclusive (But showed around 11.7 kpa). I then had a second biopsy whic showed that I have fibrosis between stage 3 and 4. I was immediately put on tdf and have been on it now for a year.Having said all that I feel great and do lots of exercise in the gym 3/ 4 times a week. I can run 10k on treadmill in 55 minutes.
I take a 1500mg krill oil tablet each day; 3x 60mg blueberry extract ;1000mg garlic and 1 selenium ACE.

I have seen what tests needs to be done in other threads here and I intend to get them done soon . I know that I am anti HBE positive but i do not know the (critically important) IU/ML for the surface antigen yet.

Thank you all for the support given to others here and I am now joining those ranks. I just hope my condition is not too bad??

[ono8ono]

since when you started taking krill oil, blueberry extract, garlic & selenium etc and also exercise?

[ono8ono]

do you have any explanation why aberdeen577 having fibrosis stage 3/4 even he was on antiviral medication? Thank you.

[aberdeen577]

I dont think so. Sometimes I do get tired in the afternoon but after eating a large lunch!! I am told this is normal but I am not quite sure. I just do not know is a VL of 500 to 2000 iu/ml can cause liver damage. My consultant told me one time that they were not overly worried if the reading was between 1 and 9999 (4 digits) but if went into 5 digits 10,000 upwards they would be concerned. That is one of my issues; is it normal to expect that my liver is on fibrosis stage 3/4 after this many years of having the active virus even with the various treatments that I have been on? Hope someone here can give me a help in understanding why this could have happened. When I had the fibroscan I fully expected my liver to still be f0. How wrong I was.

[ono8ono]

Thanks for sharing your experience.
I'm Asian age 55 and I got HBV in 1986 but I believe I caught the virus from reused needles from the hospital in the '70. Since then I've been a carrier: normal alt, HBV DNA around 500 to 2000 iu/ml all these years. I still have not had any liver biopsy and there is no fibroscan in the US. I have Genotype B and  lately I feel kind of tired after lunch. I wonder it has anything to do with the liver? Do you feel tired during the day?
My last ultrasound in 7/2012 was normal.

[aberdeen577]

yes, I did ask for a fibroscan after the first 6 months of tdf but they said it was too early. It is now a year; do you think I should ask again?? There was several readings coming from the machine. I know its the average of 5 sound waves (I think) but mine ranged from 6kpa to 15kpa so they thought the best thing was the biopsy. It is th esecond biopsy that I have had , the first being in 1991 where the reading was F0, now F3/4 :-(

[aberdeen577]

Thank you, I will ask next time at clinic about the possibility of having this done. I have also read that Stef2011 has recommended taking fish oil tablets along with blueberry and vitD supplement (melatonin) for fibrosis regression .As you see I am already taking the blueberry and the krill oil tablet; should I look at getting the melatonin or some other vitD to supplement this? Also I drink lost of white tea and green tea each day, maybe up to 5 mugs.