What do you think

[melcul]

I have a question about a friend of mine, she had some heart problems and after some surgery she had, doctors find out she was infected with Hep B, probably from blood transfusion,that was in 2009 !!. She rapidly developed tumors on her liver and 3 quarter of her liver was removed. now she found out she has all this problems with water on her lungs, kidney cysts, she was given lamivudine and they stopped it( she doesn't know any details as why ) since then she's taking only liver supplements, i don't know why doctors don\t gave her anything else. she is now waiting to see if the doctors will suggest a liver transplant. oh, and she is only 26 i belive. that;s how doctors treat in Romania ! so my question is this, All this complications are from Hepatitis B virus in just a few years, ? my belief is that tenofovir is not accepted for free in Romania , just entecavir, i don't know anyway why she wasnt given any meds since lamivudine .

[stef2011]

hbvdna must be und for liver transplant and hbsag possibly low

[stef2011]

rtv doesn t work after you have used lam and made resistance to it.more than 50% will add the 3 mutations for etv to lam and make possible non response to any drug

[melcul]

her doctor did not advice her to take any medication at the moment, since lamivudine, they give her liver supplements only like lagosa. They just do blood tests and wait, i dont know for what, she doesnt know either. from what i understand she has an appointment for january or the beginning of the year to see if they put her on the transplant list. i just wanted to know some things as i didnt understand how comes she got all this complication from hbv only ?! but she doesn't know either .yeah, nice thought with charity, but this is not something you can do that easy

[SafiSifa]

As you know Baraclude is a powerful option too.

If her doctor advise her to use Tenefovir, I think we as the Medhelp Hepatit B community may organize a charity campaign for her.

[melcul]

i said wrong, it is available, but not included in the free healthcare insurance, so you have to pay for it

[stef2011]

i know if you follow some stories over blogs you see fortunes spent on this biological treatments in germany and the disgusting thing is:
europe is there only to rip off money from single countries and not to share a thing among them

in any case tenofovir is needed anyway both to prevent hcc recurrence and hbv infection in the new liver.are you really sure it is not available in romania, it is such and old drug almost out of patent

also check out online pharmacies in europe with generic tenofovir, it is about 100€ per month

[melcul]

i was thinking, when you have a very serious problem and you need a heart surgery, and finally you make it but after that you find out that after those blood transfusions you had you got hepatitis, You can't be neither happy or angry ..it's just unspeakable that this is still happening ! and let's not say, steff that this is very expensive what you say, a normal job can't gave you that amount of money..you just have to stay and watch slowly die. this is the healthcare system for some country's in 21 century

[SafiSifa]

this made me very sad :((

Please ask her to use black seed cumin and curcumin. They are very cheap and effective.

[stef2011]

if she can afford she has to move to germany or switzerland and have gcmaf-goleic plus tenofovir
if she is lucky she might be a responder to gcmaf-goleic and get rid of the tumors but this must be done in the clinic because they inject it in the veins that feed the tumors

[melcul]

regress from what?you mean tumors are grown again or resected liver had no regrowth?

Liver regressed, not entirely and with tumors .

Unfortunatelly this is not possible in Romania

[stef2011]

cysts on kidneys

not relevant, cysts are benigne

water in her lungs

this might be ascites from the liver, unless she has problems in the lungs such tumors or other diseases in the lungs

gcmaf/goleic helps liver function (some studies found inverse correlation between some gcmaf precurors which are produced by the liver and death), so this might help a lot with liver function

that her liver did not regress successfully

regress from what?you mean tumors are grown again or resected liver had no regrowth?

anyway i think only tenofovir and gcmaf/goleic might help at this stage, but status is so advanced this must be manged by expert doctors and clinic

[melcul]

yeah, now she developed cysts on kidneys and water in her lungs, the doctors told her that its because of her liver. i don't know how can this be possible as i;ve never heard of such a  worsening of the situation in such a short period of time, and to develope in other organs to ? She is taking in by doctors in Romania and she's doing what she's been told, Just found out that her liver did not regress successfully.

[stef2011]

because lamivudine is not suitable to treat hbv anymore and after you use it you develop resistance to all antivirals except tenofovir.her vitd3 must be kept at highest level of normal with lowest intact parathormone

she can try to improve her situation by:
tenofovir immediately

if she has tumors treatment at gcmaf-goleic clinics in germany or switzerland

it is best to keep her on transplant list so if this fails she can have transplant

where are the tumors now?is the liver healthy or cirrhotic?

unfortunately gcmaf is expensive and so is tenofovir if not covered by public healthcare