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Avatar universal

physical appearance and HBV

This may sound like a stupid question, but I have to ask. Has anyone here experienced a gradual or rapid outward physical appearance. Hairloss, eye discoloration (not just the yellowish jaundice discoloration, increased brown pigments as well). I feel like I'm alone dealing with this. My doc doesn't seem to be able to give m direction as far as what to do. He just tells that its not HBV that is causing these symptoms. My PCP cant seem to tell me what it is either. I have taken STD tests again, and I have nothing besides the HBV. Dont know what else to think or do. I have been erupting with acne/ folliculitis/rashes and just cant seem to get rid of it....I'm just looking really sick. PLEASE HELP!!!
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Avatar universal
ever since i knew my state was, i believe im having trouble with hair loss, though i dont really know if its the main reason or not, i really dont have any idea...
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Avatar universal
I have not experienced any of those, in fact a lot of people are mistaken that Im younger than my age.

I seriously doubt that what you are experiencing is Hepa-related.
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nothing visible outside the body until death

as regards mind end stage cirrhosis can make brain fog and fatigue but as you know brain fog and fatigue are very common even after a long working day

the only sure answer is fibroscan and blood tests
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How can I attached photos here?
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unless you have end stage cirrhosis it doesn t have to do with hbv, it can be more correlted with a damaged immune system (what i had before starting gcmaf), did you have cd counts checked?

which drugs are you taking?might be an intollerance you have on a drug

do you have healthy diet/high quality fresh food?good nutriction is essential to health

did you have fibroscan or biopsy already to know liver damage?

a nagalase test might tell us about other pathogens on action if your liver is not severely damaged but this test is available only at this lab
europeanlaboratory.nl
(they have a US branch)

about all tests, do not check hiv, hiv tests are extremely poor sensibility and accuracy with a very high number of false positive, all of them.hivrna on hiv negative people gives numbers of who knows what.this is the only tests i suggest to avoid
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Avatar universal
This skin issue started right after my HBV diagnosis - at that I still drank socially as I was unaware of my problem. But I have stopped since. What is CD?

Yes, I eat a pretty healthy diet, lots of fruits, chicken, fish, nothing fried.  Yes I did have a fibroscan in the past prior to starting treatment with Viread. There was some damage, but not much. I'm going to get one this Thursday and other labs as well. I dont have HIV as I have been checked numerous times.

Everywhere I read about HBV online says that one of the symptom is rashes/acne. Prior to the HBV diagnosis I only remember having acne back in high school and that was quite some time ago. I didnt really get bumps when I shaved before, now I have to be extra careful and even so I still get bumps.

Are there any antioxidants that you would suggest taking? I already take Milk Thistle/ Selenium. I also started taking Vitamin D, C , A B12 etc. I need all the help I can get, going to work looking like this is very embarrassing, unfortunately there hasnt been much I could do thus far. PLEASE HELP!!
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Avatar universal

if you used to drink a lot of alcool everything is damaged liver and imune system for sure and once immune system is damaged any pathogen can get thourgh easily and make mess

cd counts are tests to see your immune system status, a low cd4 and a low cd4/cd8 ratio reflects a damaged immune system but you can have immune suppression also with perfectly normal cd counts, white blood cells etc if nagalase is elevated.have cd counts tests first so we have an idea of immune status

what you read only is 1 century old, rush and acne can be  symptom of liver failure not hbv, and extremely few people can have a little liver failure during acute hbv

i'd go with vitamin d3 making serum levels to 50-70ng/ml as soon as possible, but this is not a solution for sure this will help immune system work a little and also liposomal vitamin c from livon labs can help but first of all you need to check your liver by fibroscan and immune system status

if we find that you have cirrhosis heptech products are those who can help, if we find liver is ok but immune status abnormal a nagalase test may confrim immune suppression and gcmaf might be a cure for damaged immune system

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Avatar universal
Hi Stef

What kind of blood test you can check with your Immunity System?

By The way Stef, I have changed my vit d3 (1000 iu/ml which My doctor  prescribed )  I ordered from Detoxpeople

(5000IU) - Dr's Best - 360 softgel's (taken 10,000 iu/ml per day fro almost a week ----- No sleeping Problem

Liposomal Vitamin C - 16oz (96g vitamin C liquid) Taken 3 grams per day.

The Result of My Liver Function Test came back BACK  and is all normal

HBV DNA 56 IU/ML

Though I request HBSAG Quantity but it seems that they do not do here or even some doctors told me that it is not Important, Burt what I confirm from one of the best Private Hospital treated liver disease in here (Cromwell hospital) that  they not familiar with the test of HBSAG QUANTITY

Therefore if you can assist me to get an appointment to Pissa Hospital  I would like to come Pissa In order to have the following test:
HBSAG QUANTITY
HBVDAN QUANTITY
MUTUTATION TEST
GENO TYPE TEST  

Finally as I am taken vit d3 and Vit c as you advice is there something else which I can take.

As HBVDNA IS QUITE Low do you think hbsag will be low as well
My alt is 27 (August 28) and AST IS 23 (August 22
thanks stef
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Avatar universal
some doctors told me that it is not Important,

my god i really hate such ignorant doctors, that is the most important test ever on hbv, if our end point to get rid of hbv is hbsag negative i really dont see how one can say it is not important.......if i was to meet such a doctor i sure umiliate him....such doctors base therapy on pushing drug sales or fantasy i guess, hbvnda alone has been proven almost useless to define hbv status

you may try to add simvastatin and see if hbvdna goes down farthur.hbsag is usally low on such low hbvdna but it is not always the case, you can have hbvdna und and high hbsag too.
we have also noticed that nagalase is low on those with low hbvdna, unfortunately only 3 members did this test until now so this is just a guess for now

i will see doctors the 6th of dec so i will be able to tell you what is needed to get these tests in pisa or other hospitals in italy, please confirm  you are a uk citizen

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Avatar universal

did you notice any improvment since taking vit d and c?
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Avatar universal
please confirm  you are a uk citizen

Yes I am

did you notice any improvment since taking vit d and c?

I have been taken for almost one week Now, Though it is tyoo early but aleast I can get up morning without no problem,  No Knee Pain, pain of my back is there but i think its improved

add simvastatin and see if hbvdna goes down farthur

what about alinia? please let me know where i can buy both

I will also buy Urine Calcium Home Test Thanks for that I think it is quite Important any one who takes Vit D3
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Avatar universal

well definitely alinia looks more potent and we do know it does soemthing, although as mono it is very very weak

in europe we are extremely unlucky because nitazoxanide is not sold, there is no market, its main prescription diseases are extremely rare in europe.in italy hospitals have it but cant give it for hbv, at the moment they supply for diarrea due to Cryptosporidium and Giardia to babies and immune compromised patients.....
you may check in UK, maybe it is available, generic is called nizonide500 by lupin while brnad name alinia from romark

i found some swisse pharmacies that can order and some online euro pharmacies but price is high

progressiverx an online cancadian pharmacy has a good price, prescription is needed
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Avatar universal

romark just publshed the good results for alinia as a flu antiviral but i dont know if this will ever reach a market, the swine flu was just a fraud and flu doesnt need antiviral treatments.
people in europe is not so fool and will never buy antivirals for a flu....

please let us know if you find it cheap in europe or UK, i have my doctors prescription and if low/medium price it can be of interest

also remember that diarrea is treated with just 2 pills a day while for a good antiviral effect you need a minimum of 3 to 6 pills a day, that's what brings the price up
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Avatar universal
I will try and let you know it

From where  you use to buy it ? I understand you were using for a while

what about simvastatin?

although as mono it is very very weak

what you mean by this remember  stef i am qaite new here what do you mean mono
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Avatar universal
From where  you use to buy it ? I understand you were using for a while

progressiverx, we also checked purity of pills thanks to a member working for drug industry and it happened to have the highest purity on the market

what about simvastatin?
i stopped alinia and got hbvdna<20iu/ml detected, added tdf, so difficult to say antiviral effect, i am on too many combos

as to liver function great improvment especially on the 80mg dose but i had severe back pain after one week on this dose so cut back to 40mg dose
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Avatar universal

monotherapy

it is easy to see if there is any antiviral effect in vivo on one with medium/low hbvdna and no other drugs
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Avatar universal
So I went to my doc yesterday and got tests done. Also had a fibroscan which revealed a 7.9 score up .3 from the last Fibroscan done in June. Is 7.9 and F1 or F2. I'm really confused as to what is causing me to look this sick. Gotten tested for other STDs, Im clear for everything else with the exception of HBV. Any suggestions are helpful, just trying to get to the bottom of it. Doctor's are telling they dont know why I'm looking this way. HELP!!
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Avatar universal
Also had a fibroscan which revealed a 7.9kpa

you need to make this value less than 6kpa, antivirals only are very slow on this so diet, healthy life and vit d3 will fasten this.heptech are the best supplements if you can afford them

as to the rest you need to focus on immune system disfunction since we know now liver is not that damaged but only mild fibrosis

cd counts and nagalase is wht i'd check now
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Avatar universal
Thanks stef what are CDs? Nagalase?
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Avatar universal
nagalase

http://www.europeanlaboratory.nl/documents/Nagalase%20in%20blood%20eng.pdf

try to translate from italian with chrome, i am sorry in english i just found hiv bullshi*
which has little to nothing to do with cd counts

http://web.tiscalinet.it/ematologia/pub/immunitario.html

http://www.centrofrancescoredi.it/formazione/svolti/Corsi-aggiornamento-obbligatori/2008/2008-11-29-Immunodeficienze-primitive/Relazione%20Azzari.pdf
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