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Any Help for Post Treatment Syndrome
Hello,
Has anyone done anything that actually helps the post treatment symptoms, fatigue, lethargy, depression, etc? There are thousands of posts regarding this situation, but I haven't seen anyone talking about things that they have tried that worked.
I am also curious if there is any research out there about what actually happened to our bodies that caused these continuing conditions? Someone must have done some research, but I have never been able to find anything published. If nothing else, I'd just like to know what was damaged so I can understand the process.
My history: Treatment in 2001, 6 months, cleared the virus, been sick and disabled for the last 13 years. Sometimes better, sometimes worse. Stress wipes me out.
Has anyone done anything that actually helps the post treatment symptoms, fatigue, lethargy, depression, etc? There are thousands of posts regarding this situation, but I haven't seen anyone talking about things that they have tried that worked.
I am also curious if there is any research out there about what actually happened to our bodies that caused these continuing conditions? Someone must have done some research, but I have never been able to find anything published. If nothing else, I'd just like to know what was damaged so I can understand the process.
My history: Treatment in 2001, 6 months, cleared the virus, been sick and disabled for the last 13 years. Sometimes better, sometimes worse. Stress wipes me out.
Best Answer
it was my liver consultant that treated me who finally gave me the diagnosis after 5 years of back and forth.
Don't know if there has ever been anything definitive written on post-interferon syndrome, but this makes for some interesting reading:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152870/.
I would get testing done on anything relating to metabolic 'syndrome' (cholesterol, insulin resistance, hypertension, etc.) and don't take, "Well, you're borderline / high end of normal as a brush off.
Anecdotally, I would invest in some good quality CoQ10 (Ubiquinol) and talk to your doc about a fancy Rx supplement, CerefolinNAC (now comes as a generic).
Good luck
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152870/.
I would get testing done on anything relating to metabolic 'syndrome' (cholesterol, insulin resistance, hypertension, etc.) and don't take, "Well, you're borderline / high end of normal as a brush off.
Anecdotally, I would invest in some good quality CoQ10 (Ubiquinol) and talk to your doc about a fancy Rx supplement, CerefolinNAC (now comes as a generic).
Good luck
I have tried low dose LDN before I started tx (my purpose for taking it was to help with lymphoma) but I stopped after one week. I could not sleep almost at all and I was having weird dreams as well. So I just did not trust that it will work for me.
I am sorry to hear that you are still continuing to have sx. Have you done a cortisol test to check on the state of your adrenals and thyroid?
Mine was lowish so I will start to take some adrenal support ( Wilson adrenal support). I am looking to add Enzymatic Therapy, Metabolic Advantage, Thyroid Formula from iherb. Between other things it contains L-Tyrosine which is supposed to alleviate the effects of stress.
Mine was lowish so I will start to take some adrenal support ( Wilson adrenal support). I am looking to add Enzymatic Therapy, Metabolic Advantage, Thyroid Formula from iherb. Between other things it contains L-Tyrosine which is supposed to alleviate the effects of stress.
As with any "syndrome" one has to treat each individual issue. PIS is a very new "discovery" and just finding doctors to help one in trying get some relief can be difficult.
I have also been disabled from PIS for a great number of year but have found a group of docs that have helped me treat a number of my issues with meds to "cover" and have a better quality of life.
I don't believe there is a fix it all for the mess interferon has done to my system. I have accepted that. I won't accept that my quality of life has to be the worse and will fight the medical establishment especially since it was their poison and it should be their duty to help heal us!
btw,there is great interest in LDN (maybe you have read a few post about it here) which seems to reduce the inflammation interferon blasted away in our bodies! Unfortunately the regulations in obtaining LDN make it nearly impossible to experiment with...
I have also been disabled from PIS for a great number of year but have found a group of docs that have helped me treat a number of my issues with meds to "cover" and have a better quality of life.
I don't believe there is a fix it all for the mess interferon has done to my system. I have accepted that. I won't accept that my quality of life has to be the worse and will fight the medical establishment especially since it was their poison and it should be their duty to help heal us!
btw,there is great interest in LDN (maybe you have read a few post about it here) which seems to reduce the inflammation interferon blasted away in our bodies! Unfortunately the regulations in obtaining LDN make it nearly impossible to experiment with...
It does take a long time to start feeling better. The only thing that helped me was exercise. I really had to push myself to start jogging but I feel 100x better now.
Hi there.
I'm 2 months EOT so I can't really help you, as I'm just waiting for the poisons from TX to leave my system and I can then see what's left, if anything, in SX.
Suffice to say, have you gone to the Hepatitis C: Post Treatment Issues forum? That is much more specific to your inquiry.
Good luck.
I'm 2 months EOT so I can't really help you, as I'm just waiting for the poisons from TX to leave my system and I can then see what's left, if anything, in SX.
Suffice to say, have you gone to the Hepatitis C: Post Treatment Issues forum? That is much more specific to your inquiry.
Good luck.
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