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1b svr's??
It seems we have had some bad news on some latest posts, which is so regretful. Are there any 1b's willing to share there svr experience and stats? Need some encouragement here!
I am 1b, 2/3, vl 1million clear at 12 and 36 weeks. 7 more weeks to go. Having alot of anxiety this leg jaunt!
I am 1b, 2/3, vl 1million clear at 12 and 36 weeks. 7 more weeks to go. Having alot of anxiety this leg jaunt!
Hi, Galen! I'm glad to hear that you are doing well. It seems to be reunion week here.
Mike, someday we'll get together and have a beer or whatever strikes your fancy. I'm buying.
Mike, someday we'll get together and have a beer or whatever strikes your fancy. I'm buying.
Wow!! I don't come here too often any more. Once in a great while I check in when I hear about someone who has just been dx or starts tx.
Hello to chevygal55, MikeSimon, Pharoh, Cuteus, Susan400, Madbyron, and honey11. Long time, no see.
For those who don't know me, I'm now 52, a former 1B, had hep since 1972 (needle stick working at the hospital, got sick at the time but blood test said probable hep b??), dx in '94 finally. Started tx with Peg-Intron in 10/02, started neupogen and procrit at week 9 for the duration, added in lexapro, protonix, ultram, benadryl, ambien, imitrex, and lotsa vitamins along the way(seems llike there was other stuff, but I no longer remember what) Tested negative at 12 weeks and remain so today. I got my two year all-clear last September. Just found out last week that all the vomiting in early tx gave me a hiatal hernia, and I've cataracts from tx. Other than those minor pests, life is wonderful.
This coming weekend I will be inviting to my home, hopefully permanently, a 13 year old foster kid, a boy named Scott. Here we go into a new phase!!
I wish all of you the best! Kill the dragons!!!
Hello to chevygal55, MikeSimon, Pharoh, Cuteus, Susan400, Madbyron, and honey11. Long time, no see.
For those who don't know me, I'm now 52, a former 1B, had hep since 1972 (needle stick working at the hospital, got sick at the time but blood test said probable hep b??), dx in '94 finally. Started tx with Peg-Intron in 10/02, started neupogen and procrit at week 9 for the duration, added in lexapro, protonix, ultram, benadryl, ambien, imitrex, and lotsa vitamins along the way(seems llike there was other stuff, but I no longer remember what) Tested negative at 12 weeks and remain so today. I got my two year all-clear last September. Just found out last week that all the vomiting in early tx gave me a hiatal hernia, and I've cataracts from tx. Other than those minor pests, life is wonderful.
This coming weekend I will be inviting to my home, hopefully permanently, a 13 year old foster kid, a boy named Scott. Here we go into a new phase!!
I wish all of you the best! Kill the dragons!!!
No skydiving and I am seriously considering never riding my bikes again and even selling them both. I hate to give up motorcycles but it seems to me that the drivers out there are worse and worse every time I drive a car let alone a bike, so that might be it for Chopper Mike. I have to say that I haven't ever heard of anything like your story. I am thrilled that this incredible thing happened to you. It couldn't have happened to a nicer guy. And believe me, your research helped me immeasurably and it was you and a few others that are partly responsible for my determination and good outcome. So thanks again Pharaoh and stay well my old friend. Mike
Mike, I've got to keep checking in to make sure you are still in one piece! Have you taken up skydiving yet? :) I'm flattered that you found my information searches worthwhile, but knowing that you were on your third round PLUS a transplant was truly inspirational to me. I looked up the word "determination" in the dictionary and one of the definitions was "mikesimon".
Chevy/Cuteus - Yep. Go figure. Undetectable at week 2 and every check after that until after my last shot. I was crushed and my doctor was flabbergasted. It had to be a false positive, so we checked again just two weeks later. Not only was it positive again, but the increase was what you would expect in two weeks. I did not have a biopsy before I started tx, so I decided that since I had failed tx I would see exactly what the status of my liver was. I waited ten more weeks to do the biopsy because I was busy moving and I was so bummed out about failing tx I just didn't want to think about it anymore. When my doctor ordered the pre-biopsy bloodwork I asked him to order a PCR to see how high my VL had climbed and he thought that was a good idea. Can you imagine how I felt when that PCR came back undetectable? Well, I was happy and mad at the same time -- I was afraid to believe it. So was my doctor, so he ordered another PCR. It came back undetectable, too. My doctor had never seen anything like it, so we tested again in two months -- clear again. Then again at the one year mark -- clear -- and again at two years -- clear. Three years will be in June and I'll get tested again. I believe it now, but there is still a tiny little bit of doubt hanging on. If you could have been inside my head when I had two positives followed by two negatives in the three months AFTER my last shot, you'd understand the lingering doubt. Oh, I almost forgot, the biopsy came back Grade 1, Stage 0.
I suppose it's possible that I got two false positives back-to-back and that I was really clear all along. That would be the simplest explanation. The other explanation, which is just a theory, says that there is an optimum effecacy level for the drugs that was realized, in my case, as the drugs receded from my body, which in turn caused the desirable bio-chemical reaction that rids the body of the virus. That's an over-simplistic description of the theory, but I think you see the point. Whether I was the victim of sloppy lab work or unwittingly identified a subject for future research, I don't know. In either case I have five consecutive PCRs done over the last two and a half years that are undetectable and I like that.
GT
Chevy/Cuteus - Yep. Go figure. Undetectable at week 2 and every check after that until after my last shot. I was crushed and my doctor was flabbergasted. It had to be a false positive, so we checked again just two weeks later. Not only was it positive again, but the increase was what you would expect in two weeks. I did not have a biopsy before I started tx, so I decided that since I had failed tx I would see exactly what the status of my liver was. I waited ten more weeks to do the biopsy because I was busy moving and I was so bummed out about failing tx I just didn't want to think about it anymore. When my doctor ordered the pre-biopsy bloodwork I asked him to order a PCR to see how high my VL had climbed and he thought that was a good idea. Can you imagine how I felt when that PCR came back undetectable? Well, I was happy and mad at the same time -- I was afraid to believe it. So was my doctor, so he ordered another PCR. It came back undetectable, too. My doctor had never seen anything like it, so we tested again in two months -- clear again. Then again at the one year mark -- clear -- and again at two years -- clear. Three years will be in June and I'll get tested again. I believe it now, but there is still a tiny little bit of doubt hanging on. If you could have been inside my head when I had two positives followed by two negatives in the three months AFTER my last shot, you'd understand the lingering doubt. Oh, I almost forgot, the biopsy came back Grade 1, Stage 0.
I suppose it's possible that I got two false positives back-to-back and that I was really clear all along. That would be the simplest explanation. The other explanation, which is just a theory, says that there is an optimum effecacy level for the drugs that was realized, in my case, as the drugs receded from my body, which in turn caused the desirable bio-chemical reaction that rids the body of the virus. That's an over-simplistic description of the theory, but I think you see the point. Whether I was the victim of sloppy lab work or unwittingly identified a subject for future research, I don't know. In either case I have five consecutive PCRs done over the last two and a half years that are undetectable and I like that.
GT
I don't think its just 1Bs relapsing,,,,,There is and has been 1As relapsed. My dr told me at one time,,,,not much of a difference in A or B,,,,It was the big #1,,,We didn't want as geno lol
My hubby and I both former 1A's
Probably had from 70's,,,,,My viral load before starting tx was 8.5 Million
Mr. Honey was 630,000
his enzymes were high at time and mine have always been normal,,,,low normal.
No biopsies either one of us due to dumb dr we had in beginning!
Both cleared at 12 weeks,,,,continued on for 52 weeks! That was the normal weeks that our dr had geno 1's go,,,,Why? Not sure but we did that and probably missed our meds maybe once or twice during the whole year,,,,,Never once skipped a shot. I was put on procrit towards end of treatment for low hemo.
Robert said it well,,,,,Stay the course! Use your tx time to get well,,,follow the schedule,,,,tiresome,,,,but you will get there!
My hubby and I both former 1A's
Probably had from 70's,,,,,My viral load before starting tx was 8.5 Million
Mr. Honey was 630,000
his enzymes were high at time and mine have always been normal,,,,low normal.
No biopsies either one of us due to dumb dr we had in beginning!
Both cleared at 12 weeks,,,,continued on for 52 weeks! That was the normal weeks that our dr had geno 1's go,,,,Why? Not sure but we did that and probably missed our meds maybe once or twice during the whole year,,,,,Never once skipped a shot. I was put on procrit towards end of treatment for low hemo.
Robert said it well,,,,,Stay the course! Use your tx time to get well,,,follow the schedule,,,,tiresome,,,,but you will get there!
lots of veterans making a quick visit, nice feeling! madbyron, pharaoh( I always forget it was you with the positive VL who cleared on your own post tx, like Daryl). I will make a note this time! glad to see your body battled the last of the remaining stubborn bugs.
HCA: couldn't you extend past 48 wks since you were not clear at wk 12? One of the presentations of a recent AASLD conference was on the higher relapse rate on detectables at wk 12. Some of them did not even know they were still detectable. Blood samples were re tested, after they relapsed, with a more sensitive test. THese folks were not really negative at wk 12 into tx.
Is there a reason you can't go a tad longer since you have relapsed before?
HCA: couldn't you extend past 48 wks since you were not clear at wk 12? One of the presentations of a recent AASLD conference was on the higher relapse rate on detectables at wk 12. Some of them did not even know they were still detectable. Blood samples were re tested, after they relapsed, with a more sensitive test. THese folks were not really negative at wk 12 into tx.
Is there a reason you can't go a tad longer since you have relapsed before?
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