I'm like NYgirl. I'm a 1A/1B too. I haven't yet obtained a clearance. This is my 8th attempt at it.
Susan400
Wow! There's a name I haven't seen for a while. How are you, madbyron? I guess I'm not the only one who still lurks on the site.
Began tx in September 2002, 1b, VL 750,000. Peg-Intron and Ribaviron. Double dose of Peg for first eight weeks, then standard dose. 1000 mg Ribaviron throughout tx. Tested clear at weeks 2, 4, 12, 24. Stopped tx after 42 weeks (36 weeks after testing clear). Last week of tx, VL 750. Two weeks post tx, VL 7,500. Ten weeks post tx, clear. Twelve weeks post tx, clear. Six months post tx, clear. Eight months post tx, clear. One year post tx, clear. Two years post tx, clear.
Well, as a 1b, I certainly hope the problem isn't with 1b's, but to be honest it has crossed my mind.
I'm a 59 year old 1b, pre-tx 1.5 million, stage 3, clear at week 6.
Based on age and histology, decided to extend beyond 48 weeks and am now about to enter week 55. The doctors I've spoken to in this regard are somewhat divided with most recommending only 48-weeks based on my early viral response but others suggesting that my genotype, age and histology put me in a higher relapse group. Can't say I ain't sweating it out. LOL.
BTW, cgd, how old are you?
-- Jim
I know I posted my relapse a few treads ago but over the course of the last couple of weeks I thought a few good reports were coming in of people getting to svr. The good ones are the ones that keep me trying knowing that people do clear and I WILL BE THERE SOME DAY. Don't ever give up
I am 1a/1b,and take my last shot {48} on Monday.
I was 1.3m pre-tx
606 at 12 weeks
n/d at 24 and 36.
Don't ask why but I feel I shall relapse.
I'm not negative-I've treated four times since year 2000,and this is the first time I've tested undectable(<25).
I've studied the odds as much as anyone,and immersed myself in internet study.
I feel that all responders have a 50/50 chance of SVR-you either relapse or you don't-it's a lottery.
Yes ,we have had some relapse posts recently,but they are self selecting.
Most patients are not as well informed as the community contributing to this site.At my local support group I meet patients who don't know their geno-type from their personality type.
The point being that there are thousands of SVR's we never hear about and users of this forum do not represent patients as a whole-only patients who are not ignorant or in denial.
There are 1b's achieving SVR every day.
I hate to say it but I am about to waddle. A very slow and steady weight gain (22#) since tx stopped and still don't smoke, so I got a double whammy there with the metabolism being slow. I will see an endocrinologist in a couple of weeks in hopes he can get my thyroid straightened out. I feel pretty good since these days. Layla told me once she got her thyroid leveled out she dropped 6# without even thinking about it. Anyhoo, I can think straight and function without gasping for breath.
Once in awhile I stop by to see what is going on here, glad to 'see' ya and hear that life is treating you well. Take care Chev.
Tx is so difficult and no one really understands how difficult it is except those of us who have been there. Sometimes I look back and wonder how in the blue blazes I did it. I wish this tx cured everyone without the sides and worked the first time. Good luck to everyone.