Aa
4 weeks VL, NOT RVR
what a bummer..... my 4 week VL came back saying....
Hepatitis C (HCV) PCR: POSITIVE HCV PCR: detectable, less than 80 IU/ml, not quantifiable
My hepa was happy that it had gone down from 1.3 million to that... Needless to say, that I wasn't too thrilled, as I was going for UND.
They don't usually prolong tx, but my hepa is open to it, due to the fact that I am geno 3a and partially Black American and that I'm informed and pushing. We had a great discussion and she will do another PCR at 8 weeks. I have stressed that if UND at 8 weeks I would rather add 8 weeks to treatment, than to risk relapse and do this whole thing again.
(I was referring to Dr. D's advice to add 24 weeks of tx after EVR.)
Now she is going to try and find studies supporting the fact to extend, if not RVR and I will supply her with what I have.
So what I would suggest is to go for 32 weeks of tx, if I EVR at 8 weeks. ( 8 + 24)
If anyone has any studies supporting this, could you please let me know... as the more literature I have on this, the better I can argue my point.
Thanks,
Marcia
Hepatitis C (HCV) PCR: POSITIVE HCV PCR: detectable, less than 80 IU/ml, not quantifiable
My hepa was happy that it had gone down from 1.3 million to that... Needless to say, that I wasn't too thrilled, as I was going for UND.
They don't usually prolong tx, but my hepa is open to it, due to the fact that I am geno 3a and partially Black American and that I'm informed and pushing. We had a great discussion and she will do another PCR at 8 weeks. I have stressed that if UND at 8 weeks I would rather add 8 weeks to treatment, than to risk relapse and do this whole thing again.
(I was referring to Dr. D's advice to add 24 weeks of tx after EVR.)
Now she is going to try and find studies supporting the fact to extend, if not RVR and I will supply her with what I have.
So what I would suggest is to go for 32 weeks of tx, if I EVR at 8 weeks. ( 8 + 24)
If anyone has any studies supporting this, could you please let me know... as the more literature I have on this, the better I can argue my point.
Thanks,
Marcia
Meki: Again --- if I had had a walk in the park TX --- I could have done more... But for me --- the TX was the hardest thing I've ever done. Everything else --- surgery, broken bones --- everything else pales in comparison.
---------------------------------
The way you describe your treatment experience here is very similar to the way I would describe mine.
And please don't take this as a criticism, but why don't you talk more about your treatment experience in threads where people are asking if they should treat or not?
Many postulate that side effects are over-estimated here because only the "whiners" talk up, i.e. people don't talk about what an easy time they're having. My opinion is that many like you, who have had difficult tx experiences, don't talk up in certain threads because you don't want to discourage people from treatment.
My take is that people should get all the information we can give them. It's an important decision whether to treat or not, so there should be no sugar coating.
So speak up more girl, I know you're not the bashful type ;)
-- Jim
---------------------------------
The way you describe your treatment experience here is very similar to the way I would describe mine.
And please don't take this as a criticism, but why don't you talk more about your treatment experience in threads where people are asking if they should treat or not?
Many postulate that side effects are over-estimated here because only the "whiners" talk up, i.e. people don't talk about what an easy time they're having. My opinion is that many like you, who have had difficult tx experiences, don't talk up in certain threads because you don't want to discourage people from treatment.
My take is that people should get all the information we can give them. It's an important decision whether to treat or not, so there should be no sugar coating.
So speak up more girl, I know you're not the bashful type ;)
-- Jim
CONTINUED:
Again --- if I had had a walk in the park TX --- I could have done more... But for me --- the TX was the hardest thing I've ever done. Everything else --- surgery, broken bones --- everything else pales in comparison.
And to me ---- I could NOT have done more.
So it's hard to hear someone say "you should be thankful you don't have to do more"....
I don't know if 3a genotypes are more likely to have a "harder" TX --- or not... The discussion has been interesting about the IR and the Steatosis... So there is a possibility that those might be causing --- or may cause more issues (at least in my mind)
But --- I know if Marcia is having a hard go at it --- especially so early on --- it might be hard for her to hear ----- "you should be thankful"...
When in reality --- going through it at all ---- for ANY amount of time is awful. And no one should be thankful about it... LOL! At least ya ain't hearin' me thanking anything about having to take the TX... LOL! Glad I did it --- but wouldn't do it again --- and thank goodness I got lucky with SVR...
I dunno if she's having the same kind of reactions that I did --- but if she is --- it's hard to hear things like that...
And on this TX ---- as we all know --- it is SO VERY EASY to let our emotions get out of hand.
I don't know if that made ANY kind of sense... But my brain was trying to read the answers to everything here --- and trying to make peace.
No one should have to TX --- it's horrible.
Some folks can manage it well..
While others cannot.
NO ONE IS SO LUCKY TO BE DOING THIS TX --- not now - not ever.
BUT --- it is what it is...
And I do love each and every one of you. OK?
So no more harsh words...
Don't try to infer things from what others write --- and if someone gets upset about something ---- just take a step back and relax... EVERYTHING WILL BE OK...
ALRIGHT?
It will be ok - one way or another...
We are all a big family here.
Again --- if I had had a walk in the park TX --- I could have done more... But for me --- the TX was the hardest thing I've ever done. Everything else --- surgery, broken bones --- everything else pales in comparison.
And to me ---- I could NOT have done more.
So it's hard to hear someone say "you should be thankful you don't have to do more"....
I don't know if 3a genotypes are more likely to have a "harder" TX --- or not... The discussion has been interesting about the IR and the Steatosis... So there is a possibility that those might be causing --- or may cause more issues (at least in my mind)
But --- I know if Marcia is having a hard go at it --- especially so early on --- it might be hard for her to hear ----- "you should be thankful"...
When in reality --- going through it at all ---- for ANY amount of time is awful. And no one should be thankful about it... LOL! At least ya ain't hearin' me thanking anything about having to take the TX... LOL! Glad I did it --- but wouldn't do it again --- and thank goodness I got lucky with SVR...
I dunno if she's having the same kind of reactions that I did --- but if she is --- it's hard to hear things like that...
And on this TX ---- as we all know --- it is SO VERY EASY to let our emotions get out of hand.
I don't know if that made ANY kind of sense... But my brain was trying to read the answers to everything here --- and trying to make peace.
No one should have to TX --- it's horrible.
Some folks can manage it well..
While others cannot.
NO ONE IS SO LUCKY TO BE DOING THIS TX --- not now - not ever.
BUT --- it is what it is...
And I do love each and every one of you. OK?
So no more harsh words...
Don't try to infer things from what others write --- and if someone gets upset about something ---- just take a step back and relax... EVERYTHING WILL BE OK...
ALRIGHT?
It will be ok - one way or another...
We are all a big family here.
I gotta say something and it might clarify a bit...
Some folks can do this treatment for 72 weeks and live life comfortably --- or with the mild sides.
Some folks plummet at week 4 and can't get back up.
Some folks can do several rounds of treatment....
Some have to quit early --- or after week 2...
This treatment affects each person individually...
72 weeks of this treatment would have killed me... I would have been dead - gonzo -- couldn't have done it.
If someone told me I had to do it again --- I would find the nearest bridge --- say my grace - and be done with it. (figuratively speaking folks --- but you get the concept.... I couldn't have done it --- wouldn't have done it.)
So if someone who had nominal --- or mild --- or even harsh side effects --- and did 72 weeks... BUT SURVIVED... IT doesn't take away from them and their hard times on TX --- but it might make them feel like someone who only had to do 24 weeks were a bunch of pansies...
It might seem that someone who did 24 weeks --- were "lucky".
But I do not see it that way.
I did 24 weeks --- and was blessed with SVR --- and have since learned that is a very special and lucky blessing.
But the only way I made it through TX was one minute at a time...
I could NOT have done more time...
I came close to quitting - because I wasn't functioning... I wasn't capable of functioning 6 out of 7 days.
PAIN - Barfing - PAIN - Couldn't Think - Couldn't communicate - Could hardly move - could hardly breathe... Couldn't walk next door without Barfing or Crying or not breathing well.
And I thought those were normal reactions. Cause the doctors kept telling me nothing was wrong...
(LOL now.....)
Anyhow - sometimes it is hard to view that perspective --- yanno --- the one that belongs to someone else.
Someone who toughed out the 72 weeks --- they think --- "I WISH I COULD HAVE DONE ONLY 24 or 48 WEEKS" "Oh you're so very lucky to not have had to do so long..."
And someone who has had to quit due to complications --- or someone who has a TREMENDOUSLY hard time on TX --- They think --- "I WISH I COULD HAVE DONE MORE"
But in reality --- the length of time ---- truly ---- other than the ability to kill the virus --- is no different ---- it's how it is handled.
Each person reacts differently.
Some folks can do this treatment for 72 weeks and live life comfortably --- or with the mild sides.
Some folks plummet at week 4 and can't get back up.
Some folks can do several rounds of treatment....
Some have to quit early --- or after week 2...
This treatment affects each person individually...
72 weeks of this treatment would have killed me... I would have been dead - gonzo -- couldn't have done it.
If someone told me I had to do it again --- I would find the nearest bridge --- say my grace - and be done with it. (figuratively speaking folks --- but you get the concept.... I couldn't have done it --- wouldn't have done it.)
So if someone who had nominal --- or mild --- or even harsh side effects --- and did 72 weeks... BUT SURVIVED... IT doesn't take away from them and their hard times on TX --- but it might make them feel like someone who only had to do 24 weeks were a bunch of pansies...
It might seem that someone who did 24 weeks --- were "lucky".
But I do not see it that way.
I did 24 weeks --- and was blessed with SVR --- and have since learned that is a very special and lucky blessing.
But the only way I made it through TX was one minute at a time...
I could NOT have done more time...
I came close to quitting - because I wasn't functioning... I wasn't capable of functioning 6 out of 7 days.
PAIN - Barfing - PAIN - Couldn't Think - Couldn't communicate - Could hardly move - could hardly breathe... Couldn't walk next door without Barfing or Crying or not breathing well.
And I thought those were normal reactions. Cause the doctors kept telling me nothing was wrong...
(LOL now.....)
Anyhow - sometimes it is hard to view that perspective --- yanno --- the one that belongs to someone else.
Someone who toughed out the 72 weeks --- they think --- "I WISH I COULD HAVE DONE ONLY 24 or 48 WEEKS" "Oh you're so very lucky to not have had to do so long..."
And someone who has had to quit due to complications --- or someone who has a TREMENDOUSLY hard time on TX --- They think --- "I WISH I COULD HAVE DONE MORE"
But in reality --- the length of time ---- truly ---- other than the ability to kill the virus --- is no different ---- it's how it is handled.
Each person reacts differently.
Yeeeehaaaaw gotta love that ribavarin ****.LOL
Wish ya the best on week twelve, are ya a gamblin women?
Harry
Wish ya the best on week twelve, are ya a gamblin women?
Harry
So, what’s wrong with doing 16,24,36,48,52,56, or 72 weeks with these wonderful meds? either way its going to either cure you or leave you with its remnants. I just have a slight twitch in my neck but I’m curd, twitch, twitch. But if your thinking of going outside of the boxes I’ve got an extra 360 riba pills and 1 inf and 1 procrit shot left over for the possibility of predosing if needed.
Bottom line geterdone
Bottom line geterdone
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