A humble request of all the SVR's in the crowd

[want2live]

I am just about to start my tx, am am seeking info from the SVR's out there.
Did you fortunate souls follow any special diet? Exercise?
I do know that lots of water is important.
Thanks in advance, I appreciate you help.

[ringading]

CUTEUS...ABSOLUTELY!!!!...i hadn't even THOUGHT of that angle....SO RIGHT....no one needs that added anger and stress from their health care providers.....i did NOT have to sign anything either, and the office thingy was GREAT...just me and the nurse,(and a friend that came with me) we joked about it all and kept it very light...no biggie....the injection part and the demonstration, took a total of 1 minute.....boom! inject....DONE....also, her continued suport is WONDERFUL and she is a hoot...very funny and very informed and ALWAYS there to answer anything i need!!!sure does make ALL the difference in the world....AS WELL AS YOU GUYS HERE!!!

WANT2LIVE....you'll be fine honey, lots and lots of water...IF you remember...i rarely do!..opps....eat all the chocolate you CAN....drink copeus amounts of coffee....have as much sex as you can....stay up really really late....sleep in EVERY DAY..stay in the same P.J.s for days on end..shoot anything that moves beneath your feet...get as much exercise of the forearms from typing here, or changing channels as you can...the work out may be rather exhausting, but well worth it in the end as you will stay conditioned..oh yah...occassionally remember to eat the odd steak, fish, or other meat and potatoes kinda thingy.....and ALWAYS WASH YOUR FEET!!!!...

seriously, common sense and a healthy diet...whatever that is, is what we can aim for i think....and take meds on time same time every week...cheers
kimmy

[Dirac]

I am 12 week post treatment and the virus is undetectable.
I did something I wish that you can consider. You see, when you
have hepc you can infect other people if they use your tooth-brush or your razors. So while I was on treatment I was trying
not to re-infect myself. I did not use a razor more than once and also I changed my tooth-brush every week. I also changed my
hair brush every month. I might be crazy but it gave me a lot of peace of mind.
I also made sure to take my midicine on a regular time. So the ribavirine at 9:00 am and 9:00 pm every day. The peg-intron shot was taken at 10:00 pm every thursday. I tried my best to make these times sharp so the concentration of the drug in my body is uniform and homogeneuos.
Good luck

[ringading]

WHAT!!!!.......i have NEVER heard of re-infecting yourself...SERIOUSLY is that based on fact???....if so, i need a whack of toothbrushes i guess, cause the piddly little one i've been using is almost ready to "walk" away....i agree, never SHARE toothbrshes or razors, but i ALWAYS re-use my razors till they are brutally rusted....but whats up with the hairbrush thingy???...i usually wash mine out every week, but thats as far as i go with that....why new ones?...sorry if these sound like dumb questions, its just that i have never heard of this before so maybe i need to read some new info...
thanks!

[ringading]

opps...i should expand on that....i have NEVER heard of re-infecting oneself with your own toothbrush....or razor or hairbrush...please don't get mad at me or think me rude...i seriously am curious about this slant of yours and do others share this belief as well...????

[oldhippiechick67]

Sorry to hear you got the witchy kind of nurse, and yes she may be po'd cuz you dont have your pre tx labs done, but they can still tell if its too low or whatever, and because you took the shot already, the platelets, rbcs and wbcs can be very much changed.  Did they ever draw blood on you before this/recently?
if so they can refer to that.  Are you on a clinical study/trial?  Is it free, is that why you are worried about being withdrawn?  if so, I can understand your worry.  Yes they can pre-date the waiver, it isnt legal but who cares, lol, no one will know except you and her (and us! hahaha). I had no idea she would be so upset, did you tell her you watched the Pegasys video?  That should be enough as far as training you.!!
I wouldnt want to stop tx either!  I hope this all blows over for you and you can keep taking your meds.  Its a shame that she was TOO BUSY to call you back, but maybe they wont pay her overtime and she had to leave it go...who knows, but that still wasnt fair to you!  My neutrofils (absolute ANC 0.6 or 600)took a huge nosedive after my first shot, but he didnt order Neupogen, just watched um, and the next week they went up to 1.0 then 0.8 then 1.3...blah blah, up down etc) My rbc's werent below normal but my wbcs were a bit.  Well I dont know why I am telling you except you can maybe understand why she freaked as they maybe dont have a "baseline" to compare it with now...
Hope it all gets cleared up!  OHC

[hph5477]

Want2Live ...  I'm not yet SVR but hope to be one day (I'm 11/48 and a 1B).  However, I think drinking the water does help with the sx as well as help you to feel better.  If you let yourself get dehydrated (and often times you don't realize it), you will get tired even more easily and everything will be an even bigger effort to get done.  And I eat a pretty healthy diet which is good for me anyway.  My GI PA suggested I take a multivitamin along with 800 IU's of Vitamin E daily.

Ringading ... asked my GI PA about the toothbrush changing and she just said to change it every couple months like you would do normally.  As for the razor, I can't remember the last time I actually cut myself shaving but, if I did, I would probably just throw out the old and put a new razor in.  If you want to change your toothbrush, razors, brushes, etc weekly, do it.  The cost is minimal in comparison to the cost for this tx.