Aa
A presentation on managing triple therapy
http://www.clinicaloptions.com/Hepatitis/Treatment%20Updates/Battling%20HCV/Interactive%20Virtual%20Presentations/Adverse%20Events.aspx
I love you guys on here. You've been so helpful and informative. If we can only get Emily to listen now and bring back the old format.
Thanks willbb. Looks like I be reading quite a bit. So much interesting information.
Go to the other side and voice you feeling there Cin....there is a thread going ..that you hope they are listening to...before any more members leave..
Best
Will
Best
Will
;) to the Smarten up-This format is unreal!!Makes me not want to bother anymore!!! cindy
Joe doesn't start the lead in until next Thursday. I'm not used to differintiating lead-in vs. PI.
I asked them to pre-order the Procrit this time because they did get it approved last time because of Joe's history of anemia on TX. This time they said they couldn't preorder but would just have to wait and see how it goes. I said, "But you were able to last time." They shrugged and acted like they had no idea what I was talking about??? I don't always know :>) but I did this time. This is the same appt. when they said that there were studies showing that reductions are OK...that is when I started getting very nervous. Joe had a viral breakthrough on his 2nd TX with Infergen. They said it would be OK that time too, but it wasn't. It wasn't the same clinic and this clinic is much better. Hopefully they will make the best decisions but I can't help wanting to micro-manage with my internet MD degree. :>)
Joe takes care of other things and doesn't leave me with all the stress but he made the decision,early on, not to focus on HCV. I don't know why, but he just didn't want to. He was already quite unwell by the time we got him diagnosed. He had done a marvelous job of ignoring all symptoms until it was a crisis. I've been so obsessive about it that there was clearly no need for him to do anything but swallow what ever pills I put before him.
Ev
I asked them to pre-order the Procrit this time because they did get it approved last time because of Joe's history of anemia on TX. This time they said they couldn't preorder but would just have to wait and see how it goes. I said, "But you were able to last time." They shrugged and acted like they had no idea what I was talking about??? I don't always know :>) but I did this time. This is the same appt. when they said that there were studies showing that reductions are OK...that is when I started getting very nervous. Joe had a viral breakthrough on his 2nd TX with Infergen. They said it would be OK that time too, but it wasn't. It wasn't the same clinic and this clinic is much better. Hopefully they will make the best decisions but I can't help wanting to micro-manage with my internet MD degree. :>)
Joe takes care of other things and doesn't leave me with all the stress but he made the decision,early on, not to focus on HCV. I don't know why, but he just didn't want to. He was already quite unwell by the time we got him diagnosed. He had done a marvelous job of ignoring all symptoms until it was a crisis. I've been so obsessive about it that there was clearly no need for him to do anything but swallow what ever pills I put before him.
Ev
ev
Yes, that willing is quick on the draw - amazing for being on week 45 or so. i can see that you are the one who stresses in your marriage. Well, someone has to, right? Joe is a lucky guy.
It was interesting to note that they said IF the patient had severe anemia first time around to order the Procrit in advance. Yes, that is a good idea. Vic not for a week for me. Tonight is shot 4 and I start the vic next Friday.
will, thanks for the good luck -- I need it
frijole
Yes, that willing is quick on the draw - amazing for being on week 45 or so. i can see that you are the one who stresses in your marriage. Well, someone has to, right? Joe is a lucky guy.
It was interesting to note that they said IF the patient had severe anemia first time around to order the Procrit in advance. Yes, that is a good idea. Vic not for a week for me. Tonight is shot 4 and I start the vic next Friday.
will, thanks for the good luck -- I need it
frijole
and on Vic there is only 4 weeks left in that scenario(UND.week8)...so not sure who exactly they are talking about.
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should have added "another 12 weeks left for prior partials and relapsers on VIC"
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should have added "another 12 weeks left for prior partials and relapsers on VIC"
Frijole &Ev:
I also found that interesting their take on Procrit and reduction of Riba. They repeatedly said ONLY after UND and in the event of severe anemia .
It was also interesting that the example patient they used was a case of UND. at week 12 and now at week 24 they develop severe anemia...which seemed odd... if you are UND at week 4 and 12(with Inci) then at week 24 on Inci you are done anyway? and on Vic there is only 4 weeks left in that scenario(UND.week8)...so not sure who exactly they are talking about.
I know we are all a little nervous to reduce...however the stats did show that in the 2 studies(both Inci and Vic) there was no difference in use of Procrit vs. reduction...again tho the key would be1) to be UND. and 2) to be as late in the game as possible and 3) they say SEVERE anemia ..
Best to you folks...and fijole good luck with the vic this week....
Will
I also found that interesting their take on Procrit and reduction of Riba. They repeatedly said ONLY after UND and in the event of severe anemia .
It was also interesting that the example patient they used was a case of UND. at week 12 and now at week 24 they develop severe anemia...which seemed odd... if you are UND at week 4 and 12(with Inci) then at week 24 on Inci you are done anyway? and on Vic there is only 4 weeks left in that scenario(UND.week8)...so not sure who exactly they are talking about.
I know we are all a little nervous to reduce...however the stats did show that in the 2 studies(both Inci and Vic) there was no difference in use of Procrit vs. reduction...again tho the key would be1) to be UND. and 2) to be as late in the game as possible and 3) they say SEVERE anemia ..
Best to you folks...and fijole good luck with the vic this week....
Will
I feel very mistrustful of dose reductions also and have a feeling that we won't get a choice in the matter. Is it a money decision or is it in the best interest of the previous poor responders or relapsers? It is leaving me uneasy. With the Victrelis on board, I can see how those like yourself,being a relapser, could be successful despite reducing Riba, but I don't see it being a safe idea with someone like Joe that couldn't ever even get to nondetectable.
My pre-TX jitters are far worse than Joe's. He has chosen to remain blissfully ignorant, albeit compliant, for 7 years. I, on the otherhand, have frequently felt like the boy with his fingers in the dike. I'm getting awfully tired though and so need "VIC"-tory. :>) Willing is quite clever isn't he.
Best wishes for success,
Ev
My pre-TX jitters are far worse than Joe's. He has chosen to remain blissfully ignorant, albeit compliant, for 7 years. I, on the otherhand, have frequently felt like the boy with his fingers in the dike. I'm getting awfully tired though and so need "VIC"-tory. :>) Willing is quite clever isn't he.
Best wishes for success,
Ev
will
It is absurd to have to bump your threads so they will be seen but that is correct.
I didn't like the information presented which said there was no evidence that using epogen increased SVR. I really don't like the dose reductions. At least they did say that those dose reductions do not impact treatment ONCE YOU ARE UND. I would still rather stay on full doses throughout treatment. I think there is more to that issue than what was stated. For example, I relapsed even with full doses of ribavirin and interferon, using procrit. I believe my response would be lessened and the chance of achieving SVR with a PI will be reduced with dose reductions, despite what was said.
frijole
It is absurd to have to bump your threads so they will be seen but that is correct.
I didn't like the information presented which said there was no evidence that using epogen increased SVR. I really don't like the dose reductions. At least they did say that those dose reductions do not impact treatment ONCE YOU ARE UND. I would still rather stay on full doses throughout treatment. I think there is more to that issue than what was stated. For example, I relapsed even with full doses of ribavirin and interferon, using procrit. I believe my response would be lessened and the chance of achieving SVR with a PI will be reduced with dose reductions, despite what was said.
frijole
Just a bump on this thread....some folks were asking me what happened to it I See since I posted it just late yesterday it was already buried on the 4th page....what a joke...come on MH SMARTEN UP.... fix this ridiculous format...people need help here...
Will
http://www.medhelp.org/posts/Hepatitis-C/A-presentation-on-managing-triple-therapy/show/1594167
Will
http://www.medhelp.org/posts/Hepatitis-C/A-presentation-on-managing-triple-therapy/show/1594167
Thanks for posting that.That was pretty interesting about pegs and riba reduction after neg vl not having any consequence on svr.Also the difference on inciviek between 8 and 12 weeks tx only being a reduction of 6%.I mean nobody wants to be in that 6% but are anybody having reductions of any kind in any significant numbers.It should be something that should come up in a conversation with your doc.I say should because if there any more drs. like mine that's not happening. I've got silent bob for my dr.
I haven't listened to this one yet but all their presentations are top drawer. Thanks for the link
frijole
frijole
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