This is Kaiser. Talk loud and and then talk louder. Funny how that gets their attention and results in action. Kaiser is supermarket medicine. When you can't get what you need through customer service. Stand in the isle and yell. works every time.
Best to you and getting cured soon
Called the 800 # at Kaiser and, after voice mail hell for about 20 minutes, finally talked to a Real person who told me that Kaiser added Harvoni to their Formulary Today!
And then proceeded to read to me the standard Kaiser is committed to the quality of care, blah, blah and that a patient's individual doctor would evaluate appropriate treatment options, etc.
Short of sending (Again!) the results of all the Ion studies and the AALD guidelines, what should I be asking my doctor?
In addition to I Want To Begin Treatment with Harvoni Tomorrow!?
Kaiser lists its formulary in a PDF file on their website but, since it's a PDF, it's not likely to be updated every few days
I am going to phone their 800 number to see what I can find out
This is crap. It's off-label for tx- experienced cirrhotics. We require 24 weeks Harvoni.
BTW, I called Blue Shield CA last Friday (10/17/2014) and Harvoni was NOT in the formulary. I think I will speak to an attorney, just for posterity.
Or hang in there another few months for the Daklinza/Sovaldi combo, probably off label. or the new Merck combo pill, in final trials now?
Hi flyinlynn, you will most likely be given the 24 weeks harvoni. I completed the Sof/LDV & (GS9451 an NS3/4 PI) trial at NIH at the end of August, result was 6 weeks undetected. Have been following up since EOT every 2 to 3 weeks (still undetected last checked at 9 weeks eot). I will be going back this coming Thurs. for eot PCR at 13 weeks. The last time I asked the doctor what they would do with me if I should ever relapse. She said they would put me on 24 weeks harvoni if that were to occur. I have been feeling so much better since end of treatment and you will love that one fixed dose harvoni and suspect you will be feeling alot better once you get on it. Don't accept anything less than 24 weeks because that will be the only way they can treat you successfully. I'm guessing the only other option for cirrhotics would be adding another NS 3/4 PI - and they have not come up with one yet to shorten duration of tx, Take care and don't worry!