Just want to say i was one who posted a negative remark to your post about being happy you have this disease....i kind of did that because you were being cocky with me in one of my posts saying i was a nutcase in a circus...BUT now i look back at all this....i think what you really meant to say was this disease may have open your eyes spiritually in some strange way and made you appreciate life more now....
get well and keep fighting....my advice is to not even make one more comment on this topic and let it go...other wise you will be the nutcase in that circus tent
R.S
I'm truly surprised by the angry reactions, but then I remember how crazy my mind was on TX.
I'm really appalled by some of the harsh words, but then I remember when I could only speak with a nasty tongue on TX.
I was shocked at some opinions, but then I remember what it felt like to have NO opinion on TX.
I did my 48 weeks, in the midst of which my Mother died and I couldn't figure out how to pack a suitcase, let alone book a flight or even drive! Six months into TX, my blood counts were sooooo low I passed out cold at 2am, walking to the bathroom, and broke my hip and hurt my shoulder. I had to have transfusions and platlets for 48 hours before surgery, but most of that was a blur.
Today I am 5 months post-tx. I recognize the Riba Rage in all of you. It will get better.
Shannon
I've come to accept some of the reactions from people on this board without any negative emotion, especially when a comment is neutrally put, like yours. I appreciate that. It's when people start attacking you for making your viewpoint made, all the while explaining your true agenda and motivations for making such a point, that it gets offensive.
I'll never understand the worst experiences some of you have gone through. I have said before that my perspective in no way is meant to make less of anyone else's situation. PLEASE believe me. If anything this 'grateful' topic has helped me understand to some extent some of the duress some of you are going through. Passion is to be respected.
This disease has really screwed up my life for many years and the lives of those around me. I am grateful for the people I have met and the perspectives gained, but I will never be grateful for having HCV.
"SX in the head" - well, that is true. The TX drugs affect the mind as well as the body.
We all do what we need to psych ourselves up for the battle, but you should not be surprised that there is some umbrage at the notion of being grateful for this disease.
“Also, just to set the record straight I do feel that some sx are prevalent and really do bother people but I also feel like these boards are filled with hypochondriacs and that SOME of their sx is really just in their heads.” JTRiver
I didn't think this was appropriate. Even if it might be 1% true, I didn't think it was appropriate. JT usually has his head on straight though.
hey, it's a free country, and often that's just about what people's comments are worth.
“Also, just to set the record straight I do feel that some sx are prevalent and really do bother people but I also feel like these boards are filled with hypochondriacs and that SOME of their sx is really just in their heads.” JTRiver
Unbelievable
This is getting really ridiculous. Although, I am not grateful to have Hep C and do not understand GK way of thinking. If he's grateful to have this virus, so be it, that's his right to feel that way.
NEVER ONCE HAS HE STATED HE WAS GRATEFUL ANY OF YOU HAVE THE DISEASE. Had he of said that it would have been different. Nor, has he posted anything about being grateful seeing others suffering from treatment or dying.
Give the guy a break already and be done with it.
"bump" is just a filler word designed to move the thread up to the top. It means nothing.
two words:
-sleep
-tylenol
I respect what you said in your second post.
Couldn't have described it better! Flu LIKE! What is that? People will ask me! Do you feel like you have the flu? Well, not exactly, I'll say. I've just not been able to explain it to people. I should copy this stuff down and hand it out. And the weak arms comment. YEA!!!!
Sorry to hear its finally kicked in. But keep that mind of thankfulness! You do have a lot to be thankful for. One you do not have to do it 48 or 72 weeks. Stay close and hang in there.
Cindy
If I tout a perspective that is optimistic and headstrong (as JTRiver stated above) some of you (portann, trinity, and especially RGlass) feel the need to beat your chests with indignity and feel personally offended.
----------------------------------
No, your perspective is arrogant, insensitive and borders on the vulgar. You walk into a house were some people are literally on fire, and all you notice is that you're a little bit warm. Until you walk in portann's, trinity's, RGlass's (and many of the rest of ) our shoes, you'll never get it because your head is as thick as your name.
-- Jim
You are correct. I said some things that are out of character for me. I broke my Golden Rule of sending a post while I am p1ssed off and I apologize for it. However I do stand behind my second post that has no personal attacks. You yourself admitted “I did have an arrogant attitutde. That's because I am a cocky person by nature.”
Again, I apologize for my first post, R. Glass.
I didn't take offense; we all deal with this however we can and by our own nature.
I'll be grateful when this stupid, stupid, stupid discussion is over.
This is true. I'm G3 and I have much more reason to be upbeat about this than a G1. I'm glad the new drugs will be out soon and am glad the G1's are seeing such huge success.
Genotype 2s appear much more grateful than do 1s.
Mike
You said that people are here to get "rid" of the disease. I think we are ALL here to get rid of the disease. I know I am. Just because I said I was grateful or thankful to have it doesn't mean I want to KEEP it. I support everyone on here and hope everyone is successful in getting RID of the virus. My heart aches those with liver damage and who are suffering turmoil at home with their families because of it. I wish I could help. I am cheerleading for everybody on here and get a wild sense of exhileration when someone posts good news.
Isn't this all a matter of perspective? If I tout a perspective that is optimistic and headstrong (as JTRiver stated above) some of you (portann, trinity, and especially RGlass) feel the need to beat your chests with indignity and feel personally offended.
I don't even know how I want to respond to concept except to say that it's difficult for me to relate. Maybe I just haven't made many posts that came across as sympathetic towards others, so the impression I am leaving is that I am "boasting" about my own success.
If that's the impression I am leaving, then it's unintentional. I have several people that I know personally who have hep c and I'm constantly pushing them and joking with them when they complain about how difficult it can be. They know my intention is encouragement. My intention when posting the "grateful" thread was to express my own happiness and satisfaction with life DESPITE having to go through this. How each of us deals with adversity is going to be wide and varied. I only offer my own perspective (as narrow as that is, Trish) and can only hope that no one who is having a more difficult time will think I'm belittling them. There isn't anything wrong with enthusiasm and eager optimism. It's the way I deal with adversity.
To Portann: trish and trin are pretty similar names and the poster above me made the same mistake. Come off your high horse already.
To R Glass: I think I struck an emotional nerve with you as I think your comments were uncharacteristically immature. I obviously gave you the wrong impression of myself somewhere along the lines. I understand what anger does and what it can make people say. No hard feelings.
Sorry to hear you feel like poop. We all know what you feel like. Just be greatful you only have 24 weeks and not 48 or 72. Keep that in mind it willl help you get thru.
I didnt get hit with sx till a few weeks after first shot..I didnt have the worst time on tx but couldnt work for 52 weeks I tried and tried but my HGB was too low and I looked like and felt like @#%&!
Hang on DRINK lots of water and just grin and bear it. Nothing you can do but
know it will be over SOON!!
Feel better!
Charm