Dragons back, yup you read it right.

[Myown]

I knew that when I started getting hot flashes around 5 weeks post something was wrong and plus the numbness and other things. I now hope that my other self dx isn't right - Cryo.

Anyone who remembers or knows where I tx please refrain from bringing up the teams name. They will hear the things that I was not happy with when I see them in person. I don't want to attach a name of a team to my complaints on a public forum.

But anyhow I had prepared myself for this news from the time the hot flashes started along with the numbness. My NP never got back to me- even after 3 emails with me asking about these symptoms. I guess becasue geno 2 is supposed to be a 'shoe in' so I guess nothing could be wrong and it was probably just in my head. NOT

I am very fortunate that though tx failed me, I didn't have a hard time at all while tx and for that I am grateful. I know that Jesus will see me throught this all.

I thank you all for all the support you all have given me. We will all beat this disease one way or another. This failure that I am experiencing will only strengthen my faith as now I have to totally trust Him and I will. God is so good to give me peace and comfort me at this very moment. He loves us all so much.

I have to eat my dinner. Talk to you guys later or tomorrow. Please keep me in your prayers that I don't have cryo. Thanks guys.

[Myown]

This is just one of the many articles on cryo.

http://www.hepatitis-central.com/hcv/cryo/connection.html

"People with Hepatitis C who suffer numbness or tingling in their extremities know from experience there is an association between HCV and neuropathy. Increasingly, their claims are finding support: according to medical researchers and clinical physicians, there is a "very strong association" between hepatitis C virus and a blood condition called essential mixed cryoglobulinemia (EMC). Among other symptoms, EMC can cause nervous system abnormalities. Researchers have not yet explained the precise connection between HCV, EMC, and neuropathy, nor have they found significantly effective treatments, but knowledge is sure to increase as more people are diagnosed with HCV and its symptoms increasingly studied.

Neuropathy refers to any disease of the nervous system resulting from localized inflammation of the nerves. If symptoms appear in the body's extremities, the condition is called "peripheral neuropathy," and most HCV-related neuropathies are of this sort. Patients complain of numbness, tingling, and muscle weakness. A physical examination may also reveal decreased deep tendon reflexes. Occasionally, arm and back pain occurs. One patient has even blamed the nerve inflammation for lost teeth.

If symptoms derive from brain malfunction, the condition is an encephalopathy, or central nervous system disease, and the symptoms are more sinister than those of peripheral neuropathy. A team led by George W. Petty reported two cases of encephalopathy in HCV-infected patients in the July 1996 issue of the Mayo Clinic Proceedings. In both cases small vessels in the brain became inflamed, impairing blood flow. One patient had numbness in the right lip, hand, and leg, weakness in the right hand and arm, and word-finding difficulty. The other patient had headaches and seizures, although the latter may have come in part from medication for the headaches."

[Myown]

Thanks again everyone.
mkeela, I started in January and ended in June. Yeah I think we fought the war at the same time, you're right. I'm glad to see that things are going well for you. You had a rough battle. I probably would have thrown in the towel, but you hung in there and it paid off for you to do so.

I doubt I'll treat again. God is in control and He of course knows I have hep and can touch me at any time, in His timing not mine. So thats where I am at this point. Trusting God,,, its funny because when I was relying on the meds to cure me, I was so stressed, now I have perfect peace that only God can give. I do believe God can work thru doctors and medicine and I would never tell people not to go that route, I did it myself, but what I want everyone to know is that if tx fails, don't give up hope. Miracles happen everyday, ask any nurse or doctor in a delivery room.

[Penelope1911]

So sorry for my memory...it's still not as good as it was before tx, school has been very difficult for me because of this, anyway, I just wanted to appologize for not remembering when you treated. Now I remember you STARTED around the same time I finished up...I just remembered how much you were there for me as I DID treat and that caused me to think you were treating with me...in a way you were LOL.     Prayers and blessings to you,   -Mkeela

[Penelope1911]

Goodness. I have NO idea what to say. I'm so sad for you and really thought you had this beat. I don't come on the board much anymore since I am so busy lately with school and studies, but something told me to check on the place...and look at this. I am in utter disbelief. I will really pray hard for you sweety. BIG HUGS AND LOTS OF ANGELS YOUR WAY!!!!!!!!!!      -Mkeela

p.s. what were the beginning and ending dates of your tx?? I thought we treated almost side by side???

[GrandmaA]

So sorry to hear about your relapse. Your faith in the Lord will carry you through. The new meds will be out in 2009 (so says Dr. Gish). You are very strong. Take care and God bless you.

GrandmaA

[jmjm530]

LOL. Glad you've still got your sense of humor, but I will be watching for any "try colloidal silver?" threads to make sure your name is not attached. (Although those Russian ideas about recirculating blood through 'zapping' machines always caught my interest :) )As to the xtra shots, I'm sure your doc has some in his fridge if you're still talking to him on Tuesday.

Be well,

-- Jim