Aa
Dragons back, yup you read it right.
I knew that when I started getting hot flashes around 5 weeks post something was wrong and plus the numbness and other things. I now hope that my other self dx isn't right - Cryo.
Anyone who remembers or knows where I tx please refrain from bringing up the teams name. They will hear the things that I was not happy with when I see them in person. I don't want to attach a name of a team to my complaints on a public forum.
But anyhow I had prepared myself for this news from the time the hot flashes started along with the numbness. My NP never got back to me- even after 3 emails with me asking about these symptoms. I guess becasue geno 2 is supposed to be a 'shoe in' so I guess nothing could be wrong and it was probably just in my head. NOT
I am very fortunate that though tx failed me, I didn't have a hard time at all while tx and for that I am grateful. I know that Jesus will see me throught this all.
I thank you all for all the support you all have given me. We will all beat this disease one way or another. This failure that I am experiencing will only strengthen my faith as now I have to totally trust Him and I will. God is so good to give me peace and comfort me at this very moment. He loves us all so much.
I have to eat my dinner. Talk to you guys later or tomorrow. Please keep me in your prayers that I don't have cryo. Thanks guys.
Anyone who remembers or knows where I tx please refrain from bringing up the teams name. They will hear the things that I was not happy with when I see them in person. I don't want to attach a name of a team to my complaints on a public forum.
But anyhow I had prepared myself for this news from the time the hot flashes started along with the numbness. My NP never got back to me- even after 3 emails with me asking about these symptoms. I guess becasue geno 2 is supposed to be a 'shoe in' so I guess nothing could be wrong and it was probably just in my head. NOT
I am very fortunate that though tx failed me, I didn't have a hard time at all while tx and for that I am grateful. I know that Jesus will see me throught this all.
I thank you all for all the support you all have given me. We will all beat this disease one way or another. This failure that I am experiencing will only strengthen my faith as now I have to totally trust Him and I will. God is so good to give me peace and comfort me at this very moment. He loves us all so much.
I have to eat my dinner. Talk to you guys later or tomorrow. Please keep me in your prayers that I don't have cryo. Thanks guys.
I am so soo sorry to hear this, Both you and Rick in the same day.. I know your frustration at your doctors office, I experienced the same thing when first starting treatment. I was very vocal about their inability to do their jobs, or make notes in file, etc. He ended up replacing the entire front office staff. I too thought I am suffering from Cryo, My fingers are numb and cracked. This week I cut 2 of them on the edge of a carry out dish. But I can certainly feel those. its hard to type . But anyway, the PCP tested me for cryo, and a few other things, they said everything came back in normal ranges, except my lipids, tryglyceredes were 240, watch my sugar intake ? What my sugar was fine A1C at 4.2. I think she meant carbs, to watch out for.. Anyway I am so sorry to hear of your news, and Rick as well. Now you got me wanting them to do another PCR, but my GI says not till 6 mos post ? I am still treating.. So maybe will see if I can talk him into it when I go to my appointment next week. My prayers are with you and your family. God will get you thru this. There will be something better, and you have time.....
Myown - I'm sorry to hear this... But like I told Cirque - dangit --- BE STRONG!!!
I'm sending you super big hugs, warm thoughts and extra immunities!
Meki
I'm sending you super big hugs, warm thoughts and extra immunities!
Meki
My PCP called the hep office at 12:30 Pm. No one picked up the phone. He got voicemail and turned to me and said, "What are they kidding me, they don't answer?" I told him that that is very common with that office. He then pressed the doctors only extension and a girl picked up the phone and said she would transfer him to the doctors secretary. Well guess what nobody picked up and my pcp had to leave a voicemail.
I was home all afternoon. Someone could have called. That place is too busy. I doubt they left early. It is a holiday weekend, but still I would bet they were there all day. I wasn't faxed my labs after the first set when tx first started. My NP told me it's too stressful for the receptionist. I emailed my NP and told her to at least email me the most important numbers from my 4 week post because I had an appointment with my PCP and he will want to know the results AND SO WILL I want to know. She never emailed me back and I gave her several days notice. The day of my PCP appointment came, I get a call from my mother on my cell when I arrived at my PcP's office that the hep office wants to fax me my results at my house. Oh I left out a part. Because of not receivng an email with the results I left a message on their voicemail to please get the results to me. So anyhow getting back to me being at my pcp's office. I told the receptionsist to call the hep receptionist and have her fax them here to this office. Well she calls and gets voicemail. This is about 9:30 Am and I know she is there cause she just got off the phone with my mother. The receptionist called 3 more times still no one answers. I don't think I have to tell you the mood I was in. Thankfully my PCP knows me a while at this point and doesn't hold me down and inject me with a drug to knock me out. Well she finally gets a hold of her and it took about an HOUR for her to get the fax thru while I sat there and let others go ahead of me. My doc and I talked for a long time after that about health, nutrition and stuff so I was cooled off before I left his office. I was so ticked off and sitting there a talking to my doc helped calm me down. I think when the flames weren't coming out of my mouth and nose anymore is when the conversation ended and he felt okay to let me drive.
So anyhow getting back to this receptionist,she doesn't know how to fax, I'm supposed to trust my NP that if anything is wrong with my labs, she will get in touch with me and not to worry. And becasue this 'tolerance and don't judge people cr@p " that is shoved down our throat these days I have a complex that maybe I expect too much from people and I don't cut enough slack. Well no more. I'm going back to my old self. From now on when someone doesn't do their job and especially when it comes to my health, they will hear me loud and clear. Fire people that are stupid and don't know how to use a fax machine if that is their job. So anyhow doesn't matter how good a doc might be, if they have stupid desk people it can destroy the entire operation.
Its funny you said that about the interferon and giving myself a shot. I even said that to my husband. I said wouldn't it be hot stuff if the doctor would have told me that IF he would have contacted me and meantime he may not have even received the message about my lab. I did email him a little while ago.I don't have any interferon left though, so that plan is out the window.
My liver was 0 so not much to heal ya know Jim. I just wanted this virus out of me. Makes me itchy to think of it.
Well time to go to bed, I just heard my husband pull up and so I'll let him know all is well. I can't complain, things could always be alot worse. I was sitting next to a guy at my mothers Oncologists office. He was getting chemo. He said the cancer was all through his body in organs and you name it. Young, good looking and very sweet, sitting there with his sister. My problem is nothing when I look at someone in that position.
Take care Jim. Thanks so much for all of your advice, concern and friendship.
Take care Jimmmmmmmie.
I was home all afternoon. Someone could have called. That place is too busy. I doubt they left early. It is a holiday weekend, but still I would bet they were there all day. I wasn't faxed my labs after the first set when tx first started. My NP told me it's too stressful for the receptionist. I emailed my NP and told her to at least email me the most important numbers from my 4 week post because I had an appointment with my PCP and he will want to know the results AND SO WILL I want to know. She never emailed me back and I gave her several days notice. The day of my PCP appointment came, I get a call from my mother on my cell when I arrived at my PcP's office that the hep office wants to fax me my results at my house. Oh I left out a part. Because of not receivng an email with the results I left a message on their voicemail to please get the results to me. So anyhow getting back to me being at my pcp's office. I told the receptionsist to call the hep receptionist and have her fax them here to this office. Well she calls and gets voicemail. This is about 9:30 Am and I know she is there cause she just got off the phone with my mother. The receptionist called 3 more times still no one answers. I don't think I have to tell you the mood I was in. Thankfully my PCP knows me a while at this point and doesn't hold me down and inject me with a drug to knock me out. Well she finally gets a hold of her and it took about an HOUR for her to get the fax thru while I sat there and let others go ahead of me. My doc and I talked for a long time after that about health, nutrition and stuff so I was cooled off before I left his office. I was so ticked off and sitting there a talking to my doc helped calm me down. I think when the flames weren't coming out of my mouth and nose anymore is when the conversation ended and he felt okay to let me drive.
So anyhow getting back to this receptionist,she doesn't know how to fax, I'm supposed to trust my NP that if anything is wrong with my labs, she will get in touch with me and not to worry. And becasue this 'tolerance and don't judge people cr@p " that is shoved down our throat these days I have a complex that maybe I expect too much from people and I don't cut enough slack. Well no more. I'm going back to my old self. From now on when someone doesn't do their job and especially when it comes to my health, they will hear me loud and clear. Fire people that are stupid and don't know how to use a fax machine if that is their job. So anyhow doesn't matter how good a doc might be, if they have stupid desk people it can destroy the entire operation.
Its funny you said that about the interferon and giving myself a shot. I even said that to my husband. I said wouldn't it be hot stuff if the doctor would have told me that IF he would have contacted me and meantime he may not have even received the message about my lab. I did email him a little while ago.I don't have any interferon left though, so that plan is out the window.
My liver was 0 so not much to heal ya know Jim. I just wanted this virus out of me. Makes me itchy to think of it.
Well time to go to bed, I just heard my husband pull up and so I'll let him know all is well. I can't complain, things could always be alot worse. I was sitting next to a guy at my mothers Oncologists office. He was getting chemo. He said the cancer was all through his body in organs and you name it. Young, good looking and very sweet, sitting there with his sister. My problem is nothing when I look at someone in that position.
Take care Jim. Thanks so much for all of your advice, concern and friendship.
Take care Jimmmmmmmie.
I am SOOOO sorry to hear this. I think Jim has good advice. I would get another test, just to be sure. My best to you. OH
I am sorry to hear this news....you are in my prayers. Your faith and your hope is in the right place. In Him...we will prevail.
Yvonne
Yvonne
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