i did lash out the other day. i have done nothing but rack my brain and try to figure out what happened. i have felt alone for a few days now. i pop in and read the comments but have been nervous to post. i do appreciate you asking for me. i do have a few things to say.... i am truly regretful for what i said, especially about the comments on losing a pet. i should have known better...i lost a 9year old pit 2 years ago and it tramatized me. i am sorry for that comment. my mind was so brain fogged that i posted comments about what other people hadn't even said. it's all like a big blurr to me now. i even considered staying out and logging in under another name just so i could stay, annonymously, but decided against it. after everything had past i saw that the ones that had left were already back and here i was, still out with the door still stuck in my ***. as far as my hysterectomy recovery is concerened i am doing better now just not sleeping more than 4 hours a nite which is taking it's toll on me. i was taking seroquel to sleep but i read that it is filtered through the liver and that scared me to death so now i'm not taking anything to sleep and it has worn me down. i continue to loose weight and i look soo yellow. i'm just really depressed right now. doc prescribed anti-depressant for me but i'm scared to take it cause it is also filtered through the liver. i'm scr***ed either way. life is so unfair. anyway...thanks for asking for me. it's good to see everything is back to normal with everyone here. see ya
Procrit definetely is worth its sting! I don't think I would have lasted as long as I did without it. I still have 4 vials in the fridge that I was going to donate. I can not believe how low some members here have gotten in their hgb and still function.
hepc in LA;
careful when they tell you; "everything looks good", look at the blood work yourself. if the hgb is in the out of range column, you are anemic. I found that any drop in the hgb would give me shortness of breath. My PA kept saying all looks good until 3 months into tx, I started getting a chest pain and I then learned the hgb was at 10.2. No wonder. When were they going to tell me, beats me. I started collecting my copies of bloodwork after that. I can't believe they kept saying "everything looks good"! That's what I mentioned to NYgirl when I heard that said to her, but in her case, they forgot to do the hgb, so of course all looked ok in that area.
All these experts, need our help, I believe.
The pain you are feeling could also be your gall balder. It's nothing to mess with, call your doc ASAP.
I'm really glad you popped back in. Nothing more to be said.
I hope you'll work with your DRs to decide whether you can take the prescribed meds or something else. You shouldn't force yourself to go without. And you're right. Sometimes life isn't fair. Sad, but true. Our job is to get through those troughs. Hang in there.
PS Thanks for turning off the CAPS key -- it really does make it easier to read.
10-4 on your comments, i was down to 9.4 even after 2-3 wks of 40,000 IU epogen (same as procrit). got PO'd so i gathered copies of all my bloodwork from the PCP and hospital found some troubling oversights. nurse and Dr. had agreed to stop riba till hgb recovered...problem is they never informed ME of this decision so i kept pumping 1200 MG a day. fortunately after going up to 40,000 IU twice a week it sterted to recover. also found other issues that i intend to raise at my next appointment, don't want to alienate the Drs but your right about the "experts". from now on i'm learning as much as i can and keeping an eye on things.
Forget about anything I said to you too. I admire you for coming back here under your original name. I have been here for a long time and I've seen much much worse than the other day so don't give any of it another thought. The bottom line is that we're all in this crazy hepatitis thing together and we all know it's rough and cross words will get exchanged and we'll just agree to forget about it and let it all pass. Welcome back fresno. Mike