OMG! lol< they decide things and don't tell the patient? typical. that is what is so sad.
In my case they lowered it to 800 from 1000mg and forgot to tell me to increase it after hgb normalized. they told about 3 mo later. I used that one to insist on longer tx, though. Their mistake could have cost me a SVR.
we can fill volumes with GI bloopers, some quite scary.
ALL: stay on top and watch them like a HAWK!
Cuteus put it on the NOSE as always...WATCH THEM LIKE A HAWK!
THAT is the most valuable thing I learned here.
GI Bloopers...that is the most understated kind thing I've ever heard worded here. ;-)
If I didn't force them to do my CBC INSTEAD of just my hep panel and keep calling and calling and arguing they would never have even realized I went down to 9. He kept saying "oh you look great" like that was some big indicator.
From now on...no makeup, big baggy sweats and hair in a ponytail. Then I'll change for work.
What you LOOK like is NOT indicative of what is going on - but those GI Bloopers don't SEE that.
Thanks for the advice. I will try to wrestle my RBC # out of my doctor. I'm guessing that my RBC is in the 12 range (from a starting value of 15.3). If that's the case, I wonder how crappy you feel when your RBC goes to 10. I'm already out of breathe and winded. Any deep breathe or a gulp of air just leaves me coughing.
NYGirl.. I can't believe you went down to 9 so quickly. What was your starting RBC #?
Cuteus..I'm in a study and they follow strict protocol. No way I can get my hands on Procrit til I drop to 10. Til the, I'm just going to take it a bit eaiser.
cleard at week 12, bio was 2/2.....can I be Jaudiced on tx? doesn't that mean chirossis
I am sitting here at work in my turquoise fairy outfit wings n all! I have a special magic wand to whisk away all our problems too! (cat toy actually)hahahaha ! Happy Halloween!
Cin
sorry for my comment on the pain meds, it was out of line. I should have realized that something was going on with your emotions, I am glad Chev was more perceptive and addressed it.
Whatever was blurring your perception needs to be taken care of. PLEASE do not refrain from taking effective meds due to the liver filtering thing. The latter is an amazing organ, it can handle more than we give it credit. Heck, it handles hcv for decades without major damage. I took pain meds(I don't think it interfered with my perception of things or hope it didn't ;-}) and it did not interfere with the tx or svr. I had dental work with novacaine, antibiotics, etc. You have to take what is need it, or not doing it can jeopardize your finishing the tx. Whatever it takes, go for it.
welcome back