Experiences on Pegasys Medication

[ace364]

Ive been on pegasys meds since the start of the yr for hep c which includes a weekly shot and tablets everyday. I have only just started seeing a few side effects. None of them really bother me apart from my hair falling out. Has anyone else had this problem. Apart from that i feel fine and was told my hep c levels are now undetectable :)
I am looking to here from others that are on the same meds as me and what their experience has been like.
Thanks

[mk_]

Hi Marcia, May I ask how you ended up with 32 weeks treatment? Was it Pegasys? so far I have only  noticed that typically treatment durations are multiple of 24, like 24, 48 or 72 wks.. etc.  

or Doc can prescribe any number of weeks? I am just curious,..
Thanks. -mk

[mk_]

I have been on SOC only a few weeks started getting fevers. Aches and pains and some shortness of breath from the week one. Haven't experience the hair lost yet,.
The things that bother me now are that rashes and small blisters on my hand (most of them appear on or around finger joints and knuckles, they itch, burn and string.

But sounds like you are managing well with sides and UND already, Good on ya matey! :)

[Marcia2202]

I lost about 70 % of my hair and was bedridden through the whole 'ordeal'. Even though I had a pretty rough time during my 32 weeks of treatment, I am happy to say that I achieved SVR.

I'm feeling petty good now and all my hair has come back, nice and soft and healthy.

Hope you will get through the treatment with the little sides you have and that you will get your SVR!!!!

[nygirl7]

I lost about 75-80% of my hair on treatment (72 weeks) - fortunately it grew back better and faster than ever afterwards.  Hair grows normally about a half an inch a month but mine seemed to go faster than that.

It does sound like you are one of the very, very lucky folks on treatment. I hope that it keeps up for you and you achieve SVR.

[Diane12855]

The Standard of Care for hep C is interferon and Ribavirin, so almost everybody who is treating is on that in some form or the other. The shot is the interferon and the pills are the ribavirin.

You are very lucky to have so few side effects, even though hair loss is the pitts... at least it comes back afterwards, and you are about half way through treatment if your're doing 48 weeks.

Good Luck!

[ace364]

Cool thanks. Yeah ive read on here that some people feel depressed and sick. I guess im lucky that i dont feel depressed. My only real side effect has been hair loss and every now and then i might have a fever that makes me feel like **** for a few hours but thats about it. Nothing a pandol cant fix. I seem to get more fever on the week that i start a new box of the injections (so feel sick once a month), does that happen to anyone else? I just thought it was weird. Adamben101 are you on the same meds and do you have many side effects?
Sorry to ask but i dont really talk about this with anyone else.
Thanks

[adamben101]

Wow!  That's great.  Sounds like most people feel much worse than you do.  Don't fret.  You may be one of the lucky ones with few sides.  The fact that you're UND is great and very promising.  I've read that 10% of treaters have no sides, 10% have extremely difficult sides and possibly get off treatment, and the other 80% have manageable sidees.  Good luck!  Keep up the good results.