Aa
FEEL THE SAME
HI, HAS ANYONE OR KNOW ANYONE THAT WENT THUR 6 MONTH TREATMENT WITH THE 3 MEDS 20GRAMS OF FAT ONE FEEL NORMAL ONE DAY? I MEAN LIKE THEY USE TO FEEL? THE REASON I ASK IS I HAVE NEVER FELT THE SAME AFTER MY TREATMENT FOR LYMPHOMA. I KNOW I HAVENT BEEN ALL THE WAY WELL HEP-C I STILL HAVE. IM GOING TO START IN THE NEXT WEEK. THATS WHAT I NEED TO KNOW WILL I EVER FEEL WELL? I KNOW IM 54 SO BESIDES THE NORMAL STUFF FROM GETTING OLDER IS IT POSSIBLE? THANK YOU FOR READING THIS gb
Hi, geebee: I did the Triple Treatment, but with Victrelis, and I did it for 28 weeks.
I have been finished for 2 weeks now, and I feel much better, then before I treated, for sure!
Everyone reacts differently, but I just thought I'd let you know that not everybody gets bad side effects, or permanent ones.
Most of my side effects seemed to be within the first 20 weeks, and then it was almost like my body became used to the Interferon and the Victrelis.
I did get hemolytic anemia, so I had to take
it easy, and put many things on hold. Now that I am feeling better, I have a ton of house-work and yard-work to do~ Good luck, and I know you can do it
I have been finished for 2 weeks now, and I feel much better, then before I treated, for sure!
Everyone reacts differently, but I just thought I'd let you know that not everybody gets bad side effects, or permanent ones.
Most of my side effects seemed to be within the first 20 weeks, and then it was almost like my body became used to the Interferon and the Victrelis.
I did get hemolytic anemia, so I had to take
it easy, and put many things on hold. Now that I am feeling better, I have a ton of house-work and yard-work to do~ Good luck, and I know you can do it
You can do it gee bee. So many of us have. Of we can, you can. The good people here help each other through. It makes all the difference.
HI CORAGGIO, YEAH I WAS JUST HOPEING FOR A EASY WAY OUT.I HAVE HIGH HOPES OF NOT TO BAD OF SX. IM JUST SO WORRIED BECAUSE ITS ALL UP TO ME THE CHEMO THEY DID THE STEM CELL THEY DID I JUST LAYED DOWN. THEY WOULD HOOK ME UP FOR 4 HOURS AND I WENT HOME AND WAS SICK. NOW I HAVE TO DO IT FOR MYSELF AND WHAT I READ I BETTER DO IT RIGHT OR IM NOT GOING TO GET BETTER . I GOT ONE SHOT. THANKS FOR YOUR INFO IT HELPS. GB
HI JASMINE T, I HOPE I WILL GET BACK TO MY OLDSELF ONE DAY. I KNOW ALOT IS IN MY HEAD. OR I JUST FEEL BETTER WHEN I TAKE MY CLONAZEPAM. I THINK ALOT OF IT TO IS I CANT SEE PAST TODAY ITS NOT LIKE I HAVE PLANS NOW. ITS BEEN SO LONG OF SEEING THINGS LONG TERM. I DONT REALLY KNOW HOW TO PUT IT IN TO WORDS. I SHOULD BE HAPPY IM AS GOOD AS I AM I KNOW ALOT OF PEOPLE WOULD CHANGE PLACES WITH ME. I GET MY MEDS TUES AND EDUCATION ON THURS. AND WONT SLEEP GOOD TILL I SEE HOW IT MAKES ME FEEL. THANKS FOR YOUR HELP.GB
Unless your platelets, hemoglobin or white blood cell counts are low to begin with your medical team should not start you out on a lower dose of meds to treat the HCV. It is not advised to reduce the dosage of the protease inhibitor, that must be taken as prescribed according to the guidelines regarding protease inhibitors, whether it be Incivek or Victrelis.
It would be a good idea to have a hematologist and a hepatologist on board so they can work together to control your blood values because will drop during HCV treatment. Because you have been treated for Lymphoma, it may be necessary at some point to interven with helper drugs such as Procrit (Epogen) which raises the red blood cell count and Neupogen (Filgrastim) which raises the white blood cell count.
With triple therapy, dose reduction doesn't seem to have as negative an impact at achieving SVR as it did with when treating with interferon and ribavirin only but the best course of action when treating HCV is to try and avoid dose reduction if at all possible, especially during the first 12 weeks.
It would be a good idea to have a hematologist and a hepatologist on board so they can work together to control your blood values because will drop during HCV treatment. Because you have been treated for Lymphoma, it may be necessary at some point to interven with helper drugs such as Procrit (Epogen) which raises the red blood cell count and Neupogen (Filgrastim) which raises the white blood cell count.
With triple therapy, dose reduction doesn't seem to have as negative an impact at achieving SVR as it did with when treating with interferon and ribavirin only but the best course of action when treating HCV is to try and avoid dose reduction if at all possible, especially during the first 12 weeks.
Yes, feeling normal takes a few months but it happens. I am 7 months post and feeling great. Hep c should be easier x than lymphoma.
Carry some wipes, eat the fat, and drink water. You should be ok with the burn.
Get well, it's worth it.
Carry some wipes, eat the fat, and drink water. You should be ok with the burn.
Get well, it's worth it.
HI BOTH DOCTORS ARE AT AZ. HOSPITAL PEOPLE FROM ALL OVER THE WORLD GO THERE. ITS A TEACHING HOSPITAL AND THEY KNOW EACH OTHER. THE FAMOUS HEART (JARVIS) WAS MADE THERE. SO IM LUCKY THAT WAY.
Thanks.
The Incivek is the same dose regardless, but the Ribavirin and Interferon are weight based. I am not sure how or if your previous lymphoma and/or stem cell transplant will affect your treatment (in terms of dosages). Cheppie probably knows that information. You could send her a private message and ask her.
Here is a link to her profile page:
http://www.medhelp.org/personal_pages/user/2059648
One thing, with your history, it would be a good idea to have very knowledgeable doctors, both Hepatologist and Oncologist. They may need to do some conferring if you do develop any problems. You don't want docs who have no idea how to treat side effects or who are not willing to confer and collaborate in order to solve a problem.
The Incivek is the same dose regardless, but the Ribavirin and Interferon are weight based. I am not sure how or if your previous lymphoma and/or stem cell transplant will affect your treatment (in terms of dosages). Cheppie probably knows that information. You could send her a private message and ask her.
Here is a link to her profile page:
http://www.medhelp.org/personal_pages/user/2059648
One thing, with your history, it would be a good idea to have very knowledgeable doctors, both Hepatologist and Oncologist. They may need to do some conferring if you do develop any problems. You don't want docs who have no idea how to treat side effects or who are not willing to confer and collaborate in order to solve a problem.
HI I NOTICE I DID NOT SAY GOOD GOING FOR YOU. IM HAPPY YOU ARE FEELING GOOD IT MUST OF BEEN A HARD YEAR. I HOPE YOU STAY THAT WAY AND GET STRONGER EVERY DAY. THANKS FOR BEING HERE FOE ME. GB
HI, THAT IS WHAT I WANTED TO KNOW. MY ONLY THING I HAVE NOW IS IM ALWAYS TIRED. NOT ENOUGH TO SLEEP BUT I CAN ONLY DO SO MUCH HOUSE OR YARD WORK AND I FEEL LIKE I HAD A 8 HOUR HARD DAYS WORK. ITS MORE LIKE 1 HOUR. IF I HAVE TO SHOP GO TO A 4 YEARS OLD PARTY AT PETER PIPER LIKE I AM TOMORROW IT WILL TAKE ME A DAY TO RECOVER. ITS BEEN 9 MONTHS OUT FROM MY STEM CELL TRANSPLANT SO I AM HOPING AND THE DOCTOR SAID (CANCER) THAT MIGHT CHANGE AFTER THE HEP-C IS GONE. I DONT LIKE MY LIVER DOCTOR BUT IM MEETING THE NURSE ON THE 6TH OF SEPT FOR EDUCATION AND ALLISON1965 I THINK YOU TALK TO HER SAID SHE IS WONDERFUL. DO YOU KNOW IF THE AMOUNT OF MEDS DIFFER FROM PERSON TO PERSON. MY CANCER DR. SAID I WILL MORE THAN LIKELY HAVE LOW DOSE. THEY REALLY THOUGHT I WOULD HAVE TO FIGHT TO GET APPROVED BECAUSE MY LIVER WAS GOOD AND HAD A LOW V NUMBER. IT ALL CAME DOWN TO THE LYMPHOMA. THANKS POOH GB
There are no guarantees because everyone is different. However, I have just completed 48 weeks of treatment (Peg, Riba, Incivek) and I can tell you that in many ways I feel better than I did before I started treatment. I now have more energy and less fatigue. I have fewer aches and pains in muscles and joints and back. I am actually starting to feel more like I felt before I had systemic vasculitis in 1993. I still have some side effects (rash) (weaker thighs) but once I get stronger and no longer have the rash, I think I will feel the best that I have felt since 1993.
In addition, I have noticed that all of my labs are now normal. My blood sugar is now trending down instead of up. My cholesterol is normal. I feel good for the first time in a long time (and I have been off meds for only 6 days). I actually started feeling better over the past 3 months or so. I am optimistic.
In addition, I have noticed that all of my labs are now normal. My blood sugar is now trending down instead of up. My cholesterol is normal. I feel good for the first time in a long time (and I have been off meds for only 6 days). I actually started feeling better over the past 3 months or so. I am optimistic.
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