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29837 tn?1414534648

Feel free to use this thread for anything

I know how difficulot it is to get a thread going. So go ahead and use this one...

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Avatar universal
Good luck with the needles and please let us know how they work out. As Chev says, it could be thyroid which can go haywire on treatment. I'd ask your doctor for a thyroid panel -- it's a good idea to have one periodically regardless of symptons.

-- Jim
Helpful - 0
29837 tn?1414534648
Thanks for the heads up on the harpoon needles subject. Just got off the phone with the pharmacist and he will order the syringes and needles you recommended. One strange thing I'm noticing is that my eyes are bulging out. I have to wear sunglasses so I don't scare kids. I will bring this to my doctor's attention. Anyone else experienced this pop-eye effect?

Magnum
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Avatar universal
Berry interesting :) Curious if they shared the protocol with you if that's under wraps for now. Wonder if some are getting sugar pills for the first month while others are getting either riba or viramidine. Can I ask where the study is taking place? Please keep us informed as it sounds very interesting. All the best luck.

-- Jim

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Avatar universal
I am on a viramidine study. I dont know if its Riba, or Viramidine since its a blind study. I am geno 1, I am 185 lbs, and I believe the dose is 1200, 3 pills with the morning and evening meal of whatever it is they are giving me. I'll keep you all informed as I progress. Shots start 1/26/06. Since I am here, I have a whole slew of questions for my Dr. this Thurs when they take bloodwork.
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92903 tn?1309904711
Man, that blows. Really sorry - try not to 'dwell' on it 'till you get more info and a confirmation there is in fact a problem. Post soon to let us know what you learn.

Also, when were you tested? At the end of treatment? Then 6 mos out?

Best wishes my friend.
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Avatar universal
Hang in there buddy - we were all just as shocked in total disbelief as you at one time and we are all doing our best to make it through this rotten thing.

There are a lot of VERY knowledgable people in here who have saved my life.  Helped educate ME so that I could manage my own disease and not rely on blind doctoring.  Watching out for yourself is one of the best things you can do. NOBODY cares more about you than you!

Go to the GI or Hep Doctor, get a good biopsy and find out where you really stand.

Some people have hardly any damage at all - others more advanced.  The biopsy will help you decide to treat or not to treat.

And that IS the question.

Best of luck
Helpful - 0

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