HAVE HCV....can use all the advice i can get!

[trucker45882]

well its like this: i went to uams in little rock arkansas for help with the type 1 stage 4 hep c for a year and a half. after that time i asked the dr. why i haven't been put on pegasus and he said he was afraid it might kill me due to having an ammonia attack 8 months pryor. i stated the fact to him that i had been given 3 to 4 years to live and i would rather die from trying to put this disease "under arrest" than to die from. he was suppous to set it up for me to start the medication within the 2 weeks following that meeting with him.....he never did! so i quit attending uams. now i'm looking to try this again and hopefully get put on pegasus a.s.a.p. but life is getting harder for me now. i have to live in a 1974 20ft camper with no hot water with only 648.00 a month disability and 133.00 in food stamps. medicare doesnt kick in until dec 1st of this year so i've begun my own personal war against this disease by making the public aware of its existance and that it can and does kill. the local paper featured me and my guide dog "which is my picture here on this site". its my objective to make anyone and everyone aware of this disease and how its contracted. if i save just one person from aquiring this disease i've succeded  in my goal. i just simply refuse to loose my life to this disease without putting up a fight. i use to believe the surgeon general was there to make the public aware of disease's like this and other one's to. ive considered checking into a nursing home to finish living my life out but they will not allow me to have my guide dog and i will not and totally refuse to go without her. from what i can tell, no one in washington d.c. really cares at all about me or others who have hep c. i'm 48 and was diagnoised with it in 2003 in somewhat an early stage of hcv but by my mistake i just didn't take it serious then.....i really wish i would have. i can really use any advice anyone has about hcv including experimental meds and how to go about getting a liver transplant if i get to live long enough to get one.. thank you, stephen patterson ***@****

[trucker45882]

thank you can-do-man.
5 ex wives and 2 million miles of truckin can make anyone old. the worst part is hcv really, really takes my energy away and after 20 years of truckin i can't even ride a bicycle anymore do to possible ammonia attacks.

[can-do-man]

Sorry to hear that things has got to this point for you, besides clinical trials there is asst. programs for people to get drugs for free. also most hospitals have asst. programs for those that just can't afford it. Getting Medicare will be a plus in getting these places to cover what Medicare don't pay. Hell guy your way to young to give up or give in........ Hang in there, wishing you the best.