SVR When do we test again?

[FaithforHealing]

My 6 months EOT VL came back as <25. I was retested last week and thankfully it came back as "target not detected" and they are concluding that the first test was a false positive.

Now I am wondering how often I should be retested, and do we continue to hold our breath forever??  Will HCV always be lurking in the back of my mind?

[flcyclist]

Besides the 12 and 24 week pcr, my GI suggested to do one at 48 weeks just to give peace of mind.  I was ok with that.  It helps to remove any doubt.

[Idyllic]

Hey! I am so glad this worked out. I have been checking to see if you updated your other thread.  I did not know "Target Not Detected" means undetectable HCV RNA (well it does for Incivek and I guess the drugs you took!)

Congrats. If I attain SVR I cannot imagine not having a PCR once a year. It is still so hard for me to believe it might be possible.

[can-do-man]

"they do not do any more F/U testing after that 24 week"

While I agree with them, they could have been nicer on how they put it...:)

Way cool Faith

[pooh55811]

My Hepa said the 24 weeks post EOT showed that I was SVR/cured and they do not do any more F/U testing after that 24 week post EOT test because they do not feel it is necessary. They said I do not need further testing. I might do the same as Hrsepwrguy and get a 1 year VL test from my PCP.

[FaithforHealing]

My team didn't say anything about follow up testing either, but I'm wondering if I can get my primary physician to do a test in six months or so. I did not anticipate that after an SVR I would still be thinking about it, but I guess we always will.
I would think a routine CVC would show a spike in the liver enzymes if there was a relapse? But maybe not.  Oh well, if nothing else I am grateful to give my liver a rest and will watch it and just hope for the best. Not much else one can do. :)

[hrsepwrguy]

My trial team called me cured (their exact words) at 24 wks post tx and said I didn't need any more follow up testing, will I hold my breath forever, I sure hope not but I'm not quite there yet and the thought of relapse still lurks around in the back of my mind, I will probably get tested again at 1 yr post and see how it goes from there