Got myself set up with those list of supplements... a lot of $$. To bad it isn't covered by insurance! Thanks a lot though!
Another great thread! my alts/ast are just above norm and biopsy results not bad so prob going to start tx in a couple years so great to see the regime. i responded to another thread sort of like this past mon. this should be kept up at top for new peple
this is a good website for alternative tx of hep c--
http://www.hepatitis.va.gov/vahep?page=altmed-00-00
Hi Lady, I noticed in your profile (interests) you wrote HCV & menopause, I am also interested in Menopause HRT's (in conjunction with Txing for HCV.
I started closer to the bottom of this thread, than the top. I guess I like to confuse myself as often as possible so I can stay in a constant state of brain clog.
My point here is, I thought when you said HR supplements, you meant 'Hormone Replacement' Therapy. Then, I got the feeling the thread shifted over to 'Hepatitis Researcher', and his viewpoint re; supplements. Any how I plan to get one of those test kits to see about my estrogen levels, then talk to my GI/Hepatol. re; HRT's on Tx. I'll let ya know. There's my two cents worth. Hugs 4C, from Ant B
I sure wasn't talking about anybody in particular...and keeping grudges around here is ridiculous, how many times have I acted like an idiot? don't answer that!!!...lol....besides, when all is said and done, it's just words...not like anybody knocked me upside the head with a shovel, lol.....people are free to disagree, debate, whatever, etc....hope everyone has a great weekend!
I too am wary of supps, but these do have some studies behind them. PPC is definately worth taking on tox. HR is the only reason I put any faith in them.
"Anyway I am taking them because I think they will help with my next round."
I am so with you on this one. Do everything you can to start tx with the best readings possible, and then hit it fast and hard, before it knows what happened.
>It’s a hell of a lot of pills and some ain't easy to swallow.
hmm.. yes, and neither is eating crow. I'm another one that owes apologies in this regard, though I hope I didn't post anything hostile in the past. I have always been very suspicious of supplements, partly because of scant evidence on mechanism, partly because of doubts about dosage and purity, but am definitely coming around to a "born again" faith.
I don't have ast/alt data like cs's available but can report I feel a lot better since adding ppc,curcumin, silymarin about a month ago (resveratrol coming).
Caution is always wise, but undue confidence in prescription medicine as the only effective option is likely misplaced.
CS: "So I hope uIU/mL and mU/L is the same."
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It is the same!
Great, just perfect and fast results!!
All the best --- all way to SVR!!!!
tALA
4C - hey, not to blow my own horn or anything, lol...but if you knew (or maybe you do) the amount of grief I've taken on here, and other boards, for even mentioning supps...(though it's a lot better these days, I've been taking them for years and years)
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And not that long ago I could well have given you grief over supps.
Dont think I ever did though.
I’ve mellowed a lot since joining this board. Owe quite a few people on here.
Taking these supps wasn’t something that came easy for me.
I am someone that needs evidence. The evidence for supps is something I have never trusted or considered it pseudo evidence. Lloyd Wright has a lot to answer for.
Anyway I am taking them because I think they will help with my next round. Gunna try everything I can think of. Just gotta make sure I dont outsmart myself and over do it.
Must admit these supps have surprised me.
I agree with the titre up approach. I didn’t really but only took them once a day to begin with. Added SAMe later on. Titre that one up, you cant half tell you took it.
It’s a hell of a lot of pills and some aint easy to swallow.
Wish you Well with you Tx, hope it works 4 ya.
CS
Yeh know about the weight thing. Its why I want to get down to a more Asian weight.
There is more to it than just weight though. You should see the SVR rates they get in Taiwan. Not many G3s there though.
I wouldn't mind being borderline detectable at 4 weeks. Its a pretty good result really.
Didnt really get the joke so wasnt offended.
Figured it had somthin to do with the SouthPark joke I made in an earlier thread.
SeeYa
CS
Is that daily intake?
Hope u didn´t got ofended about my joke in an earlier thread.
Talked to my hepdoc today about my odds of reaching SVR and he confirmed the very positiv odds that you earlier had been given me verces zazza. He is btw in charged, together with another doc in a trial thats gonna be, concerning vaccin therapi in end of soc treatment, to strenghten immunal system for elder patient so that hopefully their relaps rate would bee lesser. He didn´t belive in any other benefits from that vaccin.
He also told me that the study that was earlier the guidline for dosing geno 3 was done in south or central eurorean country(ies) were the people are smaller and thinner then average and why the studies from USA shows poorer result then from other studys, is the opposit their 10kg heavier .
I´m so glad this supplement stuff seems to work for you. When first heard about you and your consern for me, and that you where a non responder. I had a serious talk with God Allmighty about you, and that I´m gonna bugg him until he makes you completely well. Take care you such an asset for many people
I'm actually chronic Hep B and just looking to add some things that might have protective value against fibrosis. I recently started taking milk thistle but at a lower dose than gauf or CS. I also take green tea extract and was considering adding curcumin and flax seed (in food form).
I think part of the problem here is that if someone *here* does talk about supps, some people here think that this will lead the person away from Standard of Care treatment, because of all the adverse talk about soc...which is a legitimate concern...Many people don't have time to play around with supps, they have to treat yesterday....
everyone is different in the way they present with this disease...and there are many in the camp that think everyone should just treat no matter what, and not play around with supps and waiting...and then there are those that think they have enough *wiggle room* time to wait for the example, PI drugs with much shorter treatment times and, it would seem, a higher percentage of SVRs....so there are a few camps of thought...just thought I'd preface that...do you know your present stats with this disease? haven't looked at your profile, sorry...I just did and I don't quite understand...anyway, I do think women should take less, but consult with an expert, and don't necessarily take everything, start one by one at the lowest dose and then test (but that's just me)
Are the dosage recommendations different for women or are they at all size dependent? Thanks for any guidance.
hey, not to blow my own horn or anything, lol...but if you knew (or maybe you do) the amount of grief I've taken on here, and other boards, for even mentioning supps...(though it's a lot better these days, I've been taking them for years and years)
even though I've always said that they prob just helped me keep my inflammation down, which could of related to the fact that I've always had good labs - though I've had this prob over 35 years and I'm 54...
I never told anyone that it would *rid* anyone of the virus, just perhaps make you feel better and help your labs...this varies of course, depends on what your taking (you gotta know what your doing and my advice is always titer up, and don't take everything you see that's supposed to be helpful, then it's overkill, in my view, and always consult experts...my take is that many people don't, and take too much of something, or the wrong thing for them, etc...) And maybe there are individuals who can't seem to take anything, to be sure...well, I'm bringing on the big guns anyway, but for people who can't treat for whatever reason, or have and it didn't work out, there are ways to help - I think...just my take....
Have a look in Gaufs Profile.
MerrBe has some links in the health Pages.
Supplements as @ 1/03/2008
Resveratrol....................................500mg x2
MilkThistle (Legalon)......................140mg x3
PPC PolyenylPhosphatidylCholine..900mg x2
SAMe...........................................200mg x2
TMG (Betaine)...............................1000mg x2
ALA..............................................200mg x2
NAC.............................................1000mg x2
CoQ10..........................................200mg
Taurine..........................................500 mg x2
GreenTea 5000..............................5g x2-3
Salmon Oil (Omega 3)...................1000mg x1-2
Vitamin C.....................................500mg
Vitamin E.....................................1000IU
Vitamin D3...................................1000IU
Multi Vitamin – no Iron)
Zinc.............................................400mg
Probiotic
Except for the Multi Vit I am not taking the Vitamins all the time, same with the Zinc. No idea what my levels are.
I stopped taking Resveratrol and MilkThistle as I became concerned that one of them may contain alcohol. Started them again though.
I managed to work All thru Tx, so dont dsmiss it. Its still the only thing that kills HCV.
I'll do Round 3 towards the end of the year, early next year at the latest.
Hopefully the Sups buy some time.
CS
http://www.pepperball.co.za/
http://www.pepperball.com/
Works on dogs --- haven't seen results on bears yet because we use "crackers" (loud booms) first... and those have ALWAYS worked, so far... LOL!
Steven "I move in shadows, ride in the wind"
What... you're passing gas and playing turtle? (*GRIN*)
Gauf -- we get them through Police Supply - but any major sports shop --- or even a police catalog would have them - I would think. If I get some time today between prisoner transports arrangements etc. I'll take a look.
Great news! I've started some of the supplements but I'm doing it slowly.
We need a moderator at the Hep B board because it gets raucous there. stevenNYer is like 90% of the problem, though, so having him as moderator isn't that helpful.
Dude! Great to hear you are responding so fast. I get another round of blood tests soon and am cautiously hopeful.
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Meki, Where can I get pepper balls? Seriously, I am going hiking in the PA wilds and it is black bear country.I have udap, but the paint ball gun sounds so cool.
I am new here. What HR supplements and are you taking TX? I would like to approach my doctor with other options other than chemo. Visiting this site chemo is really not an option. I have to work. I have already been and is so fr---kin tired all the time that I don't want to have to deal with being sick on top of that. I was referred to a hepatology because some of my level increased. So now I am waiting on results for the blood work and ultrasound. I have a biopsy scheduled 25 Apr. Enough with the babbling, I was curious if this was some Alternative medicine TX.
Thanks, DB
Such blasphemy...what you purpose cannot be done. Others have tried and they have failed.
I move in shadows, ride in the wind, distrubed only be the faint echos of my beating heart. I just walked pass in between your threads. Did you see me or sense my presense?...you did not.
So hands up, your zone awaits your arrival.
LOL.....man, I love you guys.
CS, I realized you received a letter and not a phone call...probably nothing. Keep us inform my friend.
Oh that would be fun, we could gang up on him.
Cover him in bruises -lol
CS