Infergen side effects

[hondapatches]

I take my medicine everyday my husband is so weird, He's mad at me cause in the morning I sound
normal, then he said in the afternoon I sounds  like i'm on drugs like luds or something. Well That doesnt
happen. I am so upset, I do have equalibrim problems sometimes and sometimes my fingers ball up
and hurt like hell. I don't know what to say to him any more. I did pretty good when I first started.
butt I began to grow weaker and weaker, they put me on a shot a week of procrit. It helped but I still had
and have no energy.I guess he wants me to go back to work so he doesn't have help with my bills.
dazed and amazed
Luv
patches aka Sablerae  

[willow45]

wow thats exactly why a don't want to start treatment.  Love my man and i know he would stand by me but hello, i can't imagine being in such a poor state, scares me enouph not to do the treatment yet i sure don't want to die from this damn disease!!  I hope you are feeling better soon and our successful with your treatment.  what is the dif between infergen and interfuron? God Bless You

[Deb_c430]

I would agree with some of this.

But I also think it is very hard to be a caretaker, to be tired and feel unappreciated.  

He is blessed for being healthy, and you are suffering.  I have taken care of people before and I can unsderstand the feeling that sometimes you feel unappreciated, tired and just as alone as the person who is sick.

I tell my husband thank you alot, it does not hurt me to make him feel appreciated.  He has had to pick up a lot of my stuff, handle my moods,  I and this just me,  always feel that costs me nothing and makes him feel better to be it also helps me to remember that others have struggle too. .  

Yhis disease is lonely, it can make you feel isolated, infergen  is hard, VERY HARD,  remembering the one person you do not have to cover up around helps me as much as him.

Just my opinion, and how I feel. my husband is the most wonderful part of my life.  

Deb

[Forseegood]

ask him what he would do if the shoe was on the other foot? And doesn't he know that you would do the same for him?, it's just that life dealt you a hand where youre the one who is sick and you now have to take care of yourself.

I honestly think this, I think there are 2 kinds of problems in life...one is life problems, the problems you have - mortgages, job loss, relationship trouble or break-up, children problems, what have you...but you have your health so you can always resolve these problems much more easily...

the second kind of problems are problems you have because you don't have your health... and all those other life problems become much more magnified...and it's not so easy to resolve them, because you just don't have your health to help things along...sounds to me like your hubby is in the A list here, so no matter what faces him  (and I'm not saying he has it easy, I sure wouldn't know) but he still has his health, and you can't buy luck like that from where I'm sitting...hopefully, he's just going through some frustration and will get over it soon...be well....

[merryBe]

sorry your hubby is a PITA..

the procrit takes times to help

a month or more.

is there numbness or tingling in hands...if so, get your blood sugars checked.

is there tenderness under the ear/jaw...you may have some lymph swelling or fluid in the ears as a result of that, and hence your balance would go off.
I would get seen right away if you have slurred speech.

[Deb_c430]

Anytime, not easy doing this alone,  

[hondapatches]

thankx for the post Deb; I really needed to hear that.

[Deb_c430]

Infergen is the worse, it goes beyond draining, I know I am there!  My enrgy level is almost zill.

I sometimes think my hubby feels the same,  I don't know what to say about him,   but it is a hard choice.  I try and do something for him everyday. a small thing it helps i thnk.

I also tell him frequently how much his standing by me through all this,  maybe he just needs his ego stroked a bit and feel appreciated for his efforts.

I can relate to equilbrim problems! I am also tripping, loosing my balance.

Tried to pull a weeds the other day and  oh geesh, I must have looked like I was drunk!


Anyway as a good friend who SVRed after doing 73 weeks of Infergen said to me recently, take each moment of time as it comes, find a quiet place and let it go.

Hugs ~~Deb