My husband

[novasboots]

Hi. My husband has been in liver failure for over a year. He is constantly going into the hospital. He gets severe hepatic encephapathy, paracentis every 2 weeks, throwing up a lot this week, labored breathing, blood transfusions 1x a week, jaundice, high creatinines and low hemoglobens.  His MELD score is about 32, but in NY it has to be 38 now. He also has O positive blood, so he can only get a liver from someone with that same type. The doctor says "I should be prepared".  Today he fell and hit his head. He is extremely confused - ammonia levels seem to be close to 200.  I have tried everything to help him. He's got Hep C from a blood transfusion in 1978.  The medicine did not work for him.  How much longer can he go on? .....dara

[orphanedhawk]

It sounds like your husband is on the waiting list for a transplant.
Is there any possibility of him getting a live liver transplant ?  He would need a suitable donor.
That's what I did. My daughter was my donor. One great thing about them is there is no waiting for a donor to become available.

I assume you know that your husband should not be eating any red meat, it causes more ammonia build up for people with HE.

Nobody has a crystal ball that can tell you how much longer he can go on this way. I'm truly sorry for both of you.

[can-do-man]

Nobody can say how long one would have.... Keep a watch out for Hector here, he knows quite well what your going through and can be of help.

Hang in there, wishing you both the best, and welcome to the forum

[can-do-man]

Or Orphanedhawk...........:)