Aa
I will appreciate any input or advice please
Hi, I'm new here and also to learning about my disease. I am type 2b .I start sovaldi and ribavirin for 16 wks, next wk. I don't no why 16, not 12 or 24. Anyway can anyone give me some realistic ideas about what the side affects will be and how bad I can expect to feel? Please. I really do need some info based on experience, rather than a pharmaceutical insert, ya know?
Thanx klonny really appreciated the info, I am in the beginning stage of cirrhosis, yes my 1st time treating, I've known for 20+yrs, but, stupidly had the mind set if it ain't bothering me, I ain't gonna bother it. Now cirrhosis. I have no idea I even have a viral load, and only learned about platelets because I need back surgery and he was talking platelet infusions (which I declined) and I'm fairly computer illiterate, so truly stumble around in dark, but I am finding my way. My dr acts like MY med info is a matter of national security. She often responds with " don't worry about that" when I ask questions. So I often read and learn what I can from here. So know you all are appreciated Thanx again
Hi Tammy,
I was also genotype 2b and finished 12 weeks of the same treatment in April of 2014. I did achieve SVR and am cured. I essentially had no side effects at all except for a little trouble getting to sleep. I adjusted the timing of evening ribavirin dose to not be too close to bed time and it stopped being a problem. Depending on your overall health and the health of your liver you may or may not experience some fatigue, nausea, headaches but from what I have seen posted by others on here the sides are mild compared to the older treatments that include interferon. The main issue with the ribavirin is a drop in hemoglobin (anemia) which is the cause of the fatigue. If your hemoglobin drops too much the ribavirin dosage may be reduced. This does not affect your prospects of achieving SVR. My hemoglobin dropped from 15.6 to 13.9 but this was not considered significant and my dosage was not reduced. I had no fatigue. As far as the 16 weeks vs 12, is this your first time treating? Do you have cirrhosis? I have read that 16 weeks is indicated for those who failed previous treatment and/or have cirrhosis.
Best of luck with your treatment!
I was also genotype 2b and finished 12 weeks of the same treatment in April of 2014. I did achieve SVR and am cured. I essentially had no side effects at all except for a little trouble getting to sleep. I adjusted the timing of evening ribavirin dose to not be too close to bed time and it stopped being a problem. Depending on your overall health and the health of your liver you may or may not experience some fatigue, nausea, headaches but from what I have seen posted by others on here the sides are mild compared to the older treatments that include interferon. The main issue with the ribavirin is a drop in hemoglobin (anemia) which is the cause of the fatigue. If your hemoglobin drops too much the ribavirin dosage may be reduced. This does not affect your prospects of achieving SVR. My hemoglobin dropped from 15.6 to 13.9 but this was not considered significant and my dosage was not reduced. I had no fatigue. As far as the 16 weeks vs 12, is this your first time treating? Do you have cirrhosis? I have read that 16 weeks is indicated for those who failed previous treatment and/or have cirrhosis.
Best of luck with your treatment!
Hi I just found a very dry study that said they found that 16 weeks was as good as 24 for geno type 2's but I don't know that that is the norm. While other more knowledgeable people will be along soon. Did you ask your doctor? Sorry, trying to help just not familiar with 16 weeks.
Hello there! Welcome to the forum.
I am sure others will be along very soon I just wanted to welcome you.
In my limited experience I would say it is because you are 2B have little to no damage and/or a low viral load. Saying that you are right I have not heard of 16 weeks but perhaps this is from a new trial. The treatments are changing quickly. I will try to find more information. Do you know what your viral load is?
Hang in there, Dee
I am sure others will be along very soon I just wanted to welcome you.
In my limited experience I would say it is because you are 2B have little to no damage and/or a low viral load. Saying that you are right I have not heard of 16 weeks but perhaps this is from a new trial. The treatments are changing quickly. I will try to find more information. Do you know what your viral load is?
Hang in there, Dee
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