Hi everyone!

[texasgal]

Hi everyone!  I hope everyone had a wonderful holiday. I may not post often, but read every day.  Truly, I have had no news to post.  But now, 3 months after taking myself off daily infergen and riba, I am still undetectable.  I went to see the doc on Dec. 19 and he gave me the news.  He tells me that this is wonderful, but to keep up with the bloodwork for the next six months just in case of relapse.  Anyway, since being off the meds, my hair has begun growing back.  Mind you, it looks like a newborn baby's hair with little fuzzies sticking up everywhere, my energy level is unbelievably high.  My headaches are gone.   I am starting to get my appetite back.  My mental state has improved.  My vision is still very impaired and doubt it will ever be back the way it was during treatment.  I do want to thank everyone for the support and valuable information you have provided throughout my ordeal.  I read your stuff every day and still take in every piece of information I can about this horrible disease.  I am not out of the woods yet, but perhaps in the near future, if I do have to go back on meds, maybe there will be something different and not so brutal.  Happy holidays everyone.

Linda

[Stephanie2002]

Good morning all.  All my other post treatment symptoms have pretty much cleared up---except the hair and asthma and itching and....ok so I still feel pretty crappy a lot of the time, but not nearly like on treatment so this is progress!!!

[cquest]

That's an odd question! Who gets a hair thinning? You should have said 'why yes, would you like the name of my hairdresser?'. Like people that ask women if they are pregnant and they aren't...bad question...the answer to that is 'no, I'm just fat'.

And welcome to the new lady, can't remember your name but welcome!

I just have to tell you all the more I hear 1a's clearing, it makes me ponder tx again...I feel pretty *****y already so how much worse could it be? My vl is so high though...has anybody cleared with a vl as high as mine I wonder (62.7 million)? I am back on the fence again...
Cin

[debdeb47]

I'm at 18/24 with very little hair breakage and loss.  I was told not to color it, so my 48 y/o patches of silver are peeking through.  I want to color, but then some days the hair is very brittle and mineral-like, so I'm afraid it will all shear off in one cascading catastrophe.  It's shoulder-length+.  

Sorry, no manners, deb

[Stephanie2002]

Unfortunately...I am already on two AD's--and yes they do help some but I'm sure y'all all know how hard this stuff is!  

And NYGirl, LOL they must be helping!!  

But ok, enough whining, thank you guys for welcoming me...this may be what I need is to talk to other people going thru the same things.  It has made me feel better to be able to laugh a little bit about the hair issue!

[NYgirl]

You know I didn't even THINK to say that and since I've been on tx I've been on Paxill.  Has it helped? I didn't chop off ALL of my hair in my scissor frenzy so I am assuming so!  ;-)

[Stephanie2002]

Yes, xanax is my new best friend.   I want to get back to walking but the treatment caused asthma issues that have not cleared up yet.  So exercise is out, alcohol is suppose to be out, so...XANAX WORKS!!!  I need a t-shirt or something that says that.

After my treatment I moved in with a friend who has a VERY large cat.  My hair did not start falling out until after treatment so the joke at our house now is who is shedding more--me or the cat?  There is blond hair everywhere....we found hair in the fudge that I made for Christmas...that was embarrassing!!!