Hi Cher,
I have not moved.. and my new life consists of doing whatever I can in my power to prolong a transplant for my daughter...synthetically her liver is doing fine, but she has a very elevated AFP..(tumor marker), thankfully her scans have been coming back clear..so while they want to "list her" and "wait" for a cancer to pop up...I prefer to do anything and everything to get some sort of approval for her to get into one of these new trials...preferably the vertex. I have petitioned the FDA and Vertex for approvals, so far with no success.. while I am fighting for her and going through a divorce, I have decided to treat as well..It is really bitter sweet, that I am able to treat with the Vertex, and she is not..I am stage 0/1 and she is 4..What I would do to change places with her. I do hope that I have cleared the virus, and if need be, can donate part of my liver to her.. but again, I am hoping she still may clear the virus (I do believe in miracles). She is a beautiful, healthy on outside, college student...loving life for the most part. I do the worrying for her.
As for "him". He does call the girls and believes he is "father of the year"..but we all know the deal. He does miss them and loves them, but his alcohol has become front seat to everything...very difficult. I stayed with him many many years and hoped things would change, but eventually you get to a point where you become numb..I guess you can say..and you just know it is over. So I am alone for the first time in my life...and really happy to not have "that" stress right now.
I wish you lots of luck in your decision making, and please don't think I am talking you into divorce...that is such a personal decision...just something I never thought I would have the courage to do.. but glad I did..
Good Luck to you...
Jodi
MO: If he doesn't change, ship him home to his mothers until you are finished with tx, so you don't have to upset yourself.
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LOL. But right on the money!
Hi Jim,
This is something I have been wondering about. I do know that some docs believe in no drinking ever again and I'm not actually referring to that school of thought in my question here. I did tell my husband that typically most people and doctors suggest no drinking if and until you've achieved a 6 month pcr and of course, if the condition of your liver warrants it and if you can do it in moderaton and all those good things.
What I told my husband about the no drinking until 6 months, I don't really know to be true...it's just my own made up theory. If there are any stray, left over viruses floating around after last shot, my concern is that taking a few drinks early on might possibly cause them to replicate? Do you happen to know if this theory makes any sense or if there is a consensus out there about this? Keeping in mind all of the factors that I mentioned above, 6 mos. pcr, minimal liver damage, non alcholic drinker, etc.
Thanks, Char
In my earlier question I keep saying 6 month pcr. What I mean to say is 6 month svr.
Thanks, Char
lol yeah. I believe part of the tough love program is the threat of,,,"if your makin' me feel sick, your moma's gonna suffer too." lol Most men love their momma more than their wife, so it usually works. lol
thank God I have a great husband,,but "MY POPPA WAS A ROLLIN' STONE,,,WHERE EVER HE LAID HIS HATE WAS HIS HOME," AND WHEN HE DIED....so I know how guys like to hide things from their mothers.
Put a stamp on him, stick him in the mail and send him home,,,let momma see her baby ain't so cute.
see ya later on. tons of things to do and here I sit.
Hi Jodi. It's nice to see your name here. As always, Good Luck. Mike