I think that I should take a break from the boards...

[susan400]

I think that I need to leave the boards for awhile.  I apologize to everyone who I've been negative to lately.  I am not as selfish of a person as I may seem on here.  I do help others. My son, who is unable to reciprocate my love, who is seriously mentally ill, a friend with lung cancer, my cousin who has AML Leukemia, etc., etc.  I'm not all about me.  But, I feel that I am having trouble with being supportive with reguards to treatment and that makes it unfair to newbies.  I want to be supportive and everything that I say, if I'm truthful about it, does not seem supportive.  I'm having a hard time with it and need to quit coming on here for awhile.  I don't blame anyone for MY decision for treating all those times. I take full responsibility for my decisions and knowing the risks, I took them.  But, I can't stay on here and be honest about my experiences with lack of response to treatment and still sound encouraging.  When I can come back on here and be supportive without sounding so negative, I may be back.  But, I won't lie or sugar coat what happened to me.  That's not who I am.  I say the truth.  Finally, I think that treatment helps a lot of people and gives them SVR and protects their liver.  I still believe that. But, I do not think that it is best for everyone. I do not think that I made the right decision in doing the multiple treatments that I did.  In hindsight, I wish I had stopped at around the 3rd round.  Take care everyone.  I'll be thinking of you.

Susan

[PasoPerson]

NOOoooooo, please don't go!  Please reconsider leaving this board for awhile.  Between you and Friole ... I have valued your input, your friendship, your wisdom.  AND who said you have to be cheery all the time?  RIBA RAGE is rampant (say that 3 times fast) among most of us, being happy all day is NOT among most of us.

You have a lot to offer, and I for one am a person who's been helped by your input.

Just food for thought.

PS everyone - I'm in Florida too ... a Florida cracker if you will, born and raised in south Florida, now in Ocala.  Maybe we should have a Florida Hepper Convention ... at DougV's digs!

Carolyn

[DougV]

Carolyn,

Ocala must be a popular hepper place too, already met one couple from there.  They come down to eat down the road with family so I actually got to SEE someone for a change.

Several of us did talk about getting together just never pulled it off.  Sometimes it's nice to put a face to a name.  Plus, come on as a group we gotta be pretty mild mannered, don't drink and most of us ain't exactly spring chickens.  Worst problem would be someone having RIBA rage and heck I'm sure between us we have plenty of drugs to sedate them.

Doug

[Snookmiester]

I'm not sure if you have ever been over to "out of bounds", but I'm sure that one particular lady there can relate to what your going through.. Her name is Kathi...She has done tx 5 times, I believe this is her 6th, and is currently undergoing daily infergen for two years.. During her first 5 tx's, she never went undectable, if I remember correctly, and now with infergen she has been undetectable for like 12 or 13 months.. Kathi is one of the strongest, most inspirational people I have ever met.
the link, is www.hepcoutofbounds.org
Kathi is the co host, and you can usually find her in chat. Tell her Snook sent ya...

[DragonSlayer45]

I agree with a lot of the comments here. #1 I never sensed that you were negative at all. #2 I am not interested in sugar coated information, I appreciate it when people are honest. if you had a rough time on treatment, tell people, if you had no sides at all tell people. I really feel bad for you because you have treated so many times and for all that you have going on in your personal life, you definitely have a full plate girlfriend. I hope you stay and continue to share your experiences with all of us.

[cuteus]

it is so much easier to give than to receive sometimes, but you have to let others give to you, for their own good.  
Yours is a special case, given the many times you have endured tx.  If you were looking for SVR, I think you are right that 3 tries would have been enough to realize it will not work on your strain. But if you were looking for histological improvement, that is another story, and since it did not happen in your case, tx might have been the worse thing for you, given the post tx issues you are facing, but that is hindsight and you tried.  take a break, but not for long.  Your experiences are not matched by anyone else here and can not be related by anyone but you.
take care

[merlino]

Hi, the Dr.'s office didn't tell me anything except get blood work prior to 10/3 appt. and they will order meds same day as my visit. Have everything pretty much in order. Unless things change during my appt. 10/6 is the DAY. I am starting to panic a little!! Been eating everything in site trying to put on a few last lbs.