I think that I should take a break from the boards...

[susan400]

I think that I need to leave the boards for awhile.  I apologize to everyone who I've been negative to lately.  I am not as selfish of a person as I may seem on here.  I do help others. My son, who is unable to reciprocate my love, who is seriously mentally ill, a friend with lung cancer, my cousin who has AML Leukemia, etc., etc.  I'm not all about me.  But, I feel that I am having trouble with being supportive with reguards to treatment and that makes it unfair to newbies.  I want to be supportive and everything that I say, if I'm truthful about it, does not seem supportive.  I'm having a hard time with it and need to quit coming on here for awhile.  I don't blame anyone for MY decision for treating all those times. I take full responsibility for my decisions and knowing the risks, I took them.  But, I can't stay on here and be honest about my experiences with lack of response to treatment and still sound encouraging.  When I can come back on here and be supportive without sounding so negative, I may be back.  But, I won't lie or sugar coat what happened to me.  That's not who I am.  I say the truth.  Finally, I think that treatment helps a lot of people and gives them SVR and protects their liver.  I still believe that. But, I do not think that it is best for everyone. I do not think that I made the right decision in doing the multiple treatments that I did.  In hindsight, I wish I had stopped at around the 3rd round.  Take care everyone.  I'll be thinking of you.

Susan

[sfbaygirl]

We could just fill some bowls up with tranq's, AD's and sleeping pills, sort like a Pharm parties I have heard about. If someone gets Riba Rage and outta control, we just pour some of those pills down um'.

[FlGuy]

How's it going, getting all those ducks in a row?  All the rx's in some stage of progress? Any insurance speed bumps?
Have appt with tx doc and endocrine doc early next, will get baseline blood work and the rx's for the IFN and Riba.  Meet with the hemotogogist about 10 days before tx begins.  Calm before the storm kind of stuff.  If you still plan to start 10/6 will be 1 week behind you.

[NYgirl]

First off ----- we ALL go through moods and you'Ve seen me act like a complete AZZ at a whole bunch of times...this disease is **** and we go through.

Take a day or two off and regroup but don't disappear altogether. I had to do it too. Otherwise you might start to isolate or something and you know what that will do.  We have the tendancy to take EVERYTHING straight to heart and magnify it big time.

You've been through too much.  You just have.

I have the feeling (and no I'm not being negative) that I might be hanging around here for a long time to come and I would HATE it if it's just me .... so please just take a little break and then post again becauseI would miss you.

We've been through too much together, unfortunately, but it's been good to have someone so wonderful to go through it with.

Debby

[friole]

susan -- golly girl, I would miss you.  Don't believe in sugar coating myself -- If I did, I would have said -- Susan - go on, take a 10th treatment of the same stuff -- or continue with the same treatment - do 40 more.  Instead my take has been stop, wait for new meds or new studies.  Let your body heal.  Susan, people need to know there are highly resisitant strains of Hep C. They do need to hear your story.

But furthermore, you can't leave us hanging in the soap opera I call MedHelp.  We need to know your post tx symptoms.  We need to know how you heal and what happens.  Whatever you do, keep in touch.
kathy

doug -- you're my kind of guy.  You can do all the cooking.  Wish I lived in Florida

[merlino]

I wish you the very best Susan. I think you have tremendous courage for all you have been through and  all you are still  dealing with.

[mikesimon]

I want to wish you good luck Susan. I've admired you for quite a long time but I'm sure you know about that. If you feel like stopping by this place will be here for you and you'll always be welcome. Mike