Incivek and Anal Dragon Fire

[catmagic0406]

I spent too much time yesterday (considering I am six weeks out from treatment) reading here about the horrors of the anal dragon fire and the internal pain.  That is gonna make things really rough, isn't it?  I read a lot of suggestions, and of course I know everyone is different.  Could some of you write out with numbers (1,2,3 etc  - I need structure - lol) what you would recommend to ease this?  I know about the Huggies baby wipes (I use them already - would never be without them - they are so useful for so many things).  When I read about the "shards of glass" stuff I couldn't imagine how I could deal with that kind of pain.  WHY do we have to get SO sick in order to maybe get well?  COULD tx make you worse in other ways?  (I'm adding questions to the original one so I'll stop)  

So it would be like:

1.  Get Huggies Baby Wipes with Aloe
2.  Clean completely after each BM (get in shower, stiz bath whatever) asap
3.  Dry completely - TOTALLY with ????????
4.  Eat ............... to firm up stools
5.  Take............... to firm up stools
6.  etc etc etc

I read that fat AND oil can be helpful.  Seems to me though that oil would make things slippery - and meaning less firm, more diarrhea.  ????  I have to choke down that 20g of fat 3 times a day anyway.  The oil - not so sure that would be beneficial???
Thanks.  I know I'm ahead of the game here, and I guess I will have a nurse who will assist me with all this, but I trust all of you more.

[hrsepwrguy]

This is a post from about a week ago, might be worth looking in to

tiredofhepc  
May 08, 2012 .To: Violetblonde.I am on the Hep-C treatment. I too have had my battle with extreme Anal probems. Early on, my Doctor's PA, who is unbelievable, prescribed to me Rectal Rockets! They are an *** saver. They are made by a compound pharmacy, (regular pharmacy's can not fill this Rx) and they work incredibly! I am in St Pete FL, and you can contact the the Compound Shop at 727.381.9799 ask for Mike the Head Pharmacist. I am sure he will share the recipe with your local Compund Pharmacy and your doctor. These along with Prep-H with Cortizone, along with Lidocaine, (which is prescribed by your doctor), work great. I went from level 10 pain to level 1-2. The rectal rockets are used at bedtime and are easy to use. Just remember to get the instructions. .

[pooh55811]

"I guess I will have a nurse who will assist me with all this"
------------------------------------------------------

Don't count on the nurse or the doctor having a clue about anal issues. At first, I counted on treating team but they knew nothing about the anal issues. I think they thought I was fabricating the internal shards of glass pain. You may be lucky in getting a doc or a nurse who does know something, but if they don't respond and prescribe meds to give you relief, then get assertive and ask for what you need.

Thanks, Keith. I was trying to find that post on Rectal Rockets except I could not remember what they were called. I wish I had known about them when I needed them.

[catmagic0406]

pooh (lol)

WOW!!!!!!!!!!

Now THAT is a complete response.  THANK YOU!

[catmagic0406]

COOL!  Rectal Rockets!  FOR SURE I will contact your St. Pete folks ~ and go from there.  Of course, I will see if it happens to me, but... I just have this feeling that it will.

HUGE thank you for this one!

[catmagic0406]

Yeah, I'm thinkin' my doc and nurse aren't going to be of much help IF this stuff happens to me.  I mean, how can anyone who's not experiencing it understand "internal shards of glass pain" - lol.  That is SERIOUS pain, and for sure I will get those Rectal Rockets if I have to have my sister in Clearwater help me out (near St. Pete).

[catmagic0406]

Gee, duh, I wrote "Invicek" up there instead of "Incivek" - I'm sure I won't be messing that up once it starts.

And I have to laugh about the title I used for this thread.  "Anal Dragon Fire" no less.  Anyone who is not going through this (and I haven't yet and hope not to) would freak out - think it was an x-rated tattoo or something.  ha.