Job lost, am forced to cut treatment short

[slideman]

The company I worked for  has had to downsize, at least this is what they are telling me. I worked construction since 84, and finally got a desk job. Tx made it impossible for me to be 100%. So now I will  have to put  my tools back in my truck and go back to work. I can make it to the middle of December to make my 24 wks, but no way can I make it to June or July to achieve 48wks as recommended
. I did have eRVR to inc and my biopsy was 1.5 and 2. It is my second round of tx the first being 10 yrs ago with mixed results. I was und at one time, but the whole thing was a big mess of incomplete records ect..... Any body have any data for second timers at 24wks? I hate to quit early but there is really no choice.

[working dog]

this is a drag now but in the long run could work out great for you if you svr...i know about the work thing/constuction...i too don't know if i'll be able to stay on tx because of the need to work....i know i'm gonna owe out money no matter what... work...i can't seem to get out of the 8s...not good...but i look at it this way..if i have to stop it may be a good thing...i most likely will svr at 24 weeks as you will too...the new drugs sound great to me...maybe only a few years away...now i have an eye issue to deal with..hopefully it won't be any big deal...good luck and hang in there....billy

[slideman]

I did have the riba the first time, but lots of info was left out of that too. I never heard to take it with meals then. The peg int back then was rough too. You had to mix it yourself...LOL I felt like Dr Frankenstein. The sides this time are way better than before. My brain fog has improved and the only real bad days I have are Sat and Sun. I inject on Fridays after I got home from work. I WILL make 24 wks, which is what it was going to be at first, but then the Dr began to worry about old results, so to be safe.....48wks. I could have done it had I been able to keep my desk job, but no way to do physical work on tx. I dont feel all that bad, just so  short on breath when I exert.

[EyesofBlue55]

My brother is on triple  tx with incivik.He treated previously and relapsed.His tx was 12 weeks of incivik and 12 weeks of peg and Interferon.He was und at weeks 4 and 12 therefore 12 more weeks of tx.He doesnt have chirossis.Why is you dr wanting you to do the 48???
  Like I agree with everyone here-dont stop.Call the drug companies and explain what has happened.Someone will help you to finish....cindy

[frijole]

I see, slideman.  I just sure hate you you to have gotten this far so successfully.  Perhaps the 24 weeks will be adequate.  We just don't know what will happen down the road, do we.  I could not make it without working for 6 months either.  I wish there were some alternative here.

Since your first treatment was so botched and they didn't test much maybe this one will have done the job.  Were you using ribavirin at that time or just the unpegylated interferon

[slideman]

I  will be able to go the 4 more wks to wk 24. My Dr wants me to go 48, due to the records from tx before which are a mess as the protocol back then was not the same, so they are struggling with how to classify me. I was und at 7 months, but only after they had me go to 2 shots at a time for 3 months. Its a mess, first I was on the old interferon that only lasted a couple days, so I had to inject 3 times a week. Then they didnt test vl until 5 months. They found virus then so I went to 2 shots at a time........a big mess, anyway based on that stuff they want me to go 48 wks even though I was und at 1 point.

[blondie717]

drug manufacturers often sponsor patient assistance programs for those that are uninsured or underinsured. A good website to investigate these resources is needymeds.com. Here is their home page; click on either ‘brand name drugs’ or ‘generic name drugs’ in the left hand column to see if the mfgr sponsors a PAP (patient assistance program). Here’s the webpage for tenofovir:

http://www.needymeds.org/generic_list.taf?_function=name&name=tenofovir

Their PAP phone number is [phone]; these programs are generally income based rather than asset based, so Joe will probably be allowed to own a home and car etc and still qualify assuming he fits the income parameters.
     I stole this from another post.  I understand the high costs of insurance. off.  I had good insurance myself. but I knew it would be dropped by a divorce or a lawsuit settlement on my husbands agenda or that he could simply drop me off with one phone call :-0 and one of the above is just what happened.  I went into a clinical trial for that reason and others. My insurance was dropped @ aprox 12 weeks into tx.  Whew. I was so afraid that I would begin tx and wind up with my rear hanging in the rear.  That was probably one of my best moves in life and in war.
     Now for you, You can make this!  Do you have the ability (cause you are on tx) to go thru all the steps and keep fighting to resolve this before you get your rear in the air?  Do you have someone to assist you?  You will probably have to contact many manufacturers? and patient assistant places and I have seen one person have to have his doctor resubmit the paperwork.  You must remember Doc's make mistakes with paperwork and it can be  crossing all the T's and dotting the I's. Wishing you luck ;-)