Hi, here is a comprehensive overview of anemia, heart/lung/kidney effects.
it should be read by every patient so they will know what to look out for.
http://www.rxlist.com/cgi/generic/rebetol_wcp.htm#W
MerryBe, hang on to that day job :o).
Bill
could you elaborate on what they think caused your encephalitis? thanks
did you read her symptoms??
I've seen too many women in here tank.
A high dose is not possible for everyone and particular attention to CBCs and kidney function is critial.
2 out of 10 people in the Lindahl study suffered kidney shutdowns at the higher doses.
Mind you almost all of them also needed Procrit... It has to do with clearance, and she is at greater risk being African American as the kidneys and blood pressures seem more effected and apt to suffer damage within that community. No one knows why they are more susceptible to this, or sickle cell, but they are, just as other groups have other genetic anomalies.
My opinion is just that, my opinion. Yours is yours.
Kimmy is the one who just spent several DAYS in hospital with heart issues etc.
It's up to her and her doctor to consider what dose is best for her.
Kimmy neither anyone in here, nor your doctor is God.
If I were you I would talk the issue over with him, and get a second opinion also.
At least if you were kept on weight based therapy until your blood normalizes and your symptoms become non-life threatening it would be wisdom.
BTW, I weighed what you did at start of tx and was given 1200 not 1400. 180 INF here.
So obviously different docs use different scales to figure out dosages.
It doesn't mean there should be no room for adjustment....and obviously a prolonged hospital stay means you had severe complications, and this should be looked at.
just my opinon.
mb
THANK YOU...AND YES YOUR CORRECT MY RACE AND WEGHT WAS A BIG FACTOR IN MY HEP DOC DECISION AND YOUR CORRECT AFRICANAMER ARE ARE HARDER TO TREAT USAUALLY AND IM BLESSED TO BE GENO2 BECAUSE MUSTAFRICAN AMERICANS ARE GENO 1 AND THANKS MERRYBE SO MUCH FOR YOUR ADVICE AND YOUR ALSO CORECT THIS ARE BIG DOSES FOR A FEMALE BUT MY RACE AND WEIGHT BEFORE TX WAS THE REASON FOR THE RIBA BEING SOO HIGH AND IM SO THANKFUL FOR HAVING FRIENDS ON THIS WEB SITE THAT CARE ABOUT THANKS TO ALL
Upon reflection, I think it would be more accurate to replace the word "Common" with "Newer" in the following sentence:
Common thinking these days is to go with higher dosages of ribavirin as long as the person can safely tolerate it and dose reduce if necessary and only when necessary, based on response to treatment.
(sorry for multiple addendums....the perils of going back to check your posts AFTER you've posted them)