My SOVALDI/OLYSIO Treatment Experience!

[Rikeer]

Hi!  I began my treatment with Sovaldi and Olysio 21 days ago, and I'm doing great.  I have not had ANY side effects, and simply feel normal, or perhaps a bit more clear-headed and energetic.  I had my two week labs done, and the results have absolutely amazed me -- all results (ALT, AST, etc) are within the normal range, and my viral load (formerly 789000) is undetectable!
I so hope that you all can get this or one of the newer treatments coming out this summer.  I was treatment naive, having learned in 2006 that I was hep-c positive, from a blood transfusion I'd received 25 years earlier.  Everyone, please remember, if you had a blood transfusion before 1992, you should be tested for Hepatitis!  I'm very lucky to have a top doc and great insurance.

[FRED220]

Hello, like to know how you are doing with treatment.

[debfrognut69]

   Hi my  name is Debbie G.
I am new to the Hep C forum.  I have had Hep C for aprox 30 years.But did not know it until Oct 2013 when I got very sick with sepsis and was in hosp for 5 days. It was there I was told I had hep C with sever liver fibrosis that has now gone to cirrhosis. I have Chronic Hep C Genotype 1A I have been to USF in Tampa, FL, where I was told that the new""miracle drug, which the doctor I went to would not give me the name, will be used with either Sofosbuvir or Simeprevir combp
and the treatment cost is $45,000 and will be out in about 2-3 months. I looked up both those names and they are the same as Sovaldi and Olysio.
Not sure if same dose or which one they will use. Its like a big secret. I have been to 2 gastroenterologists and the one in Tampa at USF Carol & Frank Morsini Health Center said that the S & O are obsolete now and no one will give it to me and for me to wait for the Miracle drug for $45,000. I don't know who he thought would pay for it. I am not a candidate for Interferon and so I am wondering what the cost and the results at the end of treatment. S & O is 12 weeks my Doc told me. I appreciate any input.

[ChrisDDD]

Now, why didn't I think of that?  Thank you, Kim.  :)

[ChrisDDD]

Many side effects?  Did you have the issue with the photosensitivity?

[Livelife777]

You've already answered your own question without having to lie.   Just say what you've already said in the above quote "I'm concerned that my precancerous lesions will become cancerous".   There you go Chris, and Good Luck with treatment.           ...Kim

[ChrisDDD]

I even heard your skin could burn without sun exposure.  You can't even use tanning creme!  That's got me worried.  The Olysio can cause oral and nasal lesions.  I'm concerned my pre-cancerous spots could become cancerous.  So I bought a couple of lightweight long-sleeved cotton shirts and a hat.  I never wear hats, nor long sleeves in the middle of summer.  I live in a small community and my guess is people will think I have cancer.  There's several women here battling breast cancer.  Of all things, I can't figure out what to say if anyone asks me about it, and they will!  And I'm such a bad liar!

Any suggestions on what to say would be greatly appreciated!