Aa
Not a good day........ relaped
Hi guys, Just got the news and it wasn't good. Before tx --
VL 318,000
geno 2B
stage 0
grade1
UND 12weeks AST 24 ALT 13
Now, relaped VL - 4 million HGB 10.8 AST and ALT still low. Doesn't make sense to me and Doc said can't go to 48 weeks because my HGB couldn't handle it. He said there is a new drug due out in 2 years or less, that doesn't bring down the HGB and it has been used on HIV. I was so up set, I didn't ask the name of the new drug or anything else about it. I guess it wasn't in the cards for me.
Beagle
VL 318,000
geno 2B
stage 0
grade1
UND 12weeks AST 24 ALT 13
Now, relaped VL - 4 million HGB 10.8 AST and ALT still low. Doesn't make sense to me and Doc said can't go to 48 weeks because my HGB couldn't handle it. He said there is a new drug due out in 2 years or less, that doesn't bring down the HGB and it has been used on HIV. I was so up set, I didn't ask the name of the new drug or anything else about it. I guess it wasn't in the cards for me.
Beagle
NO NO NO!!!!! This can't be. I'm so sorry Beagle. I don't even know what to say to you. You know that we are all here for you through this. I have been sticking around this week, looking for your post, and boy did it just knock the wind out of me. I'm so upset for you. But, one thing I do know is that you are an amazingly positive strong person beagle, and you WILL beat this. Your turn is coming.
Beagle, did you have a 4 week post tx pcr? I can't remember.
Anyway, I sure hope you are going to stick around here. You are so grounded and level headed and such a major, positive contributor to this board.
Beagle, did you have a 4 week post tx pcr? I can't remember.
Anyway, I sure hope you are going to stick around here. You are so grounded and level headed and such a major, positive contributor to this board.
I know there is nothing I can say to help but I am so sorry and I do know the feeling. DO NOT DESPAIR. You can find another doctor who will work with you if that is what you want or you can wait on the PI's. I am sure the treatment did your liver some good so it wasn't a waste. Hang in there, you are such a sweet, supportive man and I just hated hearing this news. Please stay positive! You will find a way to do what is right for you.
Sooooo sorry to hear about your relapse.
Personally I kinda know how you must be feeling right about now. I'm guessing it's much the same as I felt a little over a month ago when I heard that my VL went from 1.8 mil at wk 12 to 2.9 mil at wk 24. The difference for me is that because of the muck up on my riba reduction by my first doc, my current doc still provided a carrot of hope that we (sh-t what we, I since I'm the one dealing with tx and sx's) would go another 12 wks after regaining the full riba dosage and take it from there. Especially since I seem to be weathering the usual sx's of the tx.
I realize that words probably aren't enough to comfort you at this point, but take heart in knowing that we are here for you, and some of us may very well also be here with you trying to take heart and hope that help may be forthcoming.
I fully agree with nygirl that the generalizations and catagorizing that is placed upon the Geno and stage aspects of this insidious disease is a load of B as in B, S as in S.
If you happen to find the name of the drug in the pipeline to which you refered, please pass it along as there are others for who it may also hold a ray of hope as well.
Take care and stay connected, if nothing else at least with us here who know and share in your disappointment.
Personally I kinda know how you must be feeling right about now. I'm guessing it's much the same as I felt a little over a month ago when I heard that my VL went from 1.8 mil at wk 12 to 2.9 mil at wk 24. The difference for me is that because of the muck up on my riba reduction by my first doc, my current doc still provided a carrot of hope that we (sh-t what we, I since I'm the one dealing with tx and sx's) would go another 12 wks after regaining the full riba dosage and take it from there. Especially since I seem to be weathering the usual sx's of the tx.
I realize that words probably aren't enough to comfort you at this point, but take heart in knowing that we are here for you, and some of us may very well also be here with you trying to take heart and hope that help may be forthcoming.
I fully agree with nygirl that the generalizations and catagorizing that is placed upon the Geno and stage aspects of this insidious disease is a load of B as in B, S as in S.
If you happen to find the name of the drug in the pipeline to which you refered, please pass it along as there are others for who it may also hold a ray of hope as well.
Take care and stay connected, if nothing else at least with us here who know and share in your disappointment.
Bad bad bad news-sh!t i am speechless,except for expletives.....Flguy said it best,my v humble sympathy alround...
Beagle,
Sorry about your news. Hey, you've got plenty of company. I'll wait with you for the next wave of tx. Keep your head up and don't worry.
Sorry about your news. Hey, you've got plenty of company. I'll wait with you for the next wave of tx. Keep your head up and don't worry.
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