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Avatar universal

Not a good day........ relaped

Hi guys,  Just got the news and it wasn't good.  Before tx --
VL  318,000
geno 2B
stage 0
grade1
UND  12weeks  AST 24  ALT 13
Now, relaped VL - 4 million  HGB 10.8  AST and ALT still low.  Doesn't make sense to me and Doc said can't go to 48 weeks because my HGB couldn't handle it.  He said there is a new drug due out in 2 years or less, that doesn't bring down the HGB and it has been used on HIV.  I was so up set, I didn't ask the name of the new drug or anything else about it.  I guess it wasn't in the cards for me.

Beagle
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Avatar universal
I am shocked at your news.  You fought this fight so hard, it just makes no sense.  I am so very sorry for you and agree with Algernon.  It just should have worked for you.  Period.  

miss
Helpful - 0
108191 tn?1199599905
OH NO!!!  I am fighting back tears.....  This is absolutely awful.  I'm incredulous, I can't believe it.  Like Jim said get another pcr done!  This makes no sense.  I am so shaken.

Like nygirl said, she thought you were SVR and so did I.  I am not looking forward to my 3 month post PCR.  At least you have time to wait as you are a 0/1.  Gads, I am a 2/2 :(
Helpful - 0
Avatar universal
Sad to here the news. I can't say much from experience of relapes but I feel there is some emotions that you are feeling that are uncomfortable and they must be felt and shared with others, before you begin planning your next journey to success. All my best to you and thankyou for your support.
Helpful - 0
Avatar universal
Thank you all so much, I don't really feel like doing much of anything at the moment and I'm sure others in my shoes will contest.

However, what I don't understand is how did I go from a VL of 318,00 to UND to a 4 million VL and 4 weeks ago my ALT was 13 and my AST 24.  I had a PCR done the day before my 23 shot to make sure I was still UND and I was, if I would have been detectable they would have continued treatment.

The treatment my DR talked about this morning was not the Vertex-950 treatment.  It's something else in the pike and some how connected to HIV treatment.  He said it will be out in 2 years or less.  I just can't believe I didn't ask the name, guess I was in shock over the news.

Has anyone else heard of this type of treatment, having to do with HIV patients?

Beagle
Helpful - 0
Avatar universal
Beagle buddy , the dyce's heart is broken. Your the 1st person on the forum I talked too. There are way too many 2's and 3's relapsing.  Your a long way from any liver damage ,so  you have time too recover and hit it again. Your a heck of a guy bb, hang in there!! Get the ford out and pull some holeshots!!
Helpful - 0
Avatar universal
I read this in shock beagle.

Good news is little or no damage. Bad news is, well we all know what that is...... Hang tough, i'm sorry for you buddy.
Helpful - 0

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