Olysio & Sovaldi

[jen322]

Hello all, I am starting the Olysio and Sovaldi treatment tomorrow for my Hep C. Anyone have any info on it what to expect as I hear there are few sides. What are you eating when you take Olysio as it needs to taken with food.'I am so stoked about the treatment and can't wait until my box gets here tomorrow. I will start as soon as I rip it open!! 40 years and ready to move on.
Look forward to getting to know everyone and learning from you all

thanks
jenne

[Topogigio1]

Hello all,
I started sovaldi/olysio therapy in may, achieved svr by week 4 (great news), have had minor side effects in first 6 weeks, headaches, a bit of fatigue, no photosensitivity at all though.
However in week 6 i began to experience chest pain, shortness of breath, palpitations, and went into clinic for testing and found out I have an irregular heartbeat which i did not have prior to treatment. I was told by my hep c Dr. to go to ER and sent to cardiologist. I stayed on meds for another 3 weeks and continued weekly tests, and my irregular heartbeat persisted, and then my hep c Dr. recommended I stop the meds altogether.

Has anyone had a side effect related to irregular heartbeat or change in heart rate?

Also, hoping i don't relapse due to cutting treatment 3 weeks short.

[Topogigio1]

Hello all,
I started sovaldi/olysio therapy in may, achieved svr by week 4 (great news), have had minor side effects in first 6 weeks, headaches, a bit of fatigue, no photosensitivity at all though.
However in week 6 i began to experience chest pain, shortness of breath, palpitations, and went into clinic for testing and found out I have an irregular heartbeat which i did not have prior to treatment. I was told by my hep c Dr. to go to ER and sent to cardiologist. I stayed on meds for another 3 weeks and continued weekly tests, and my irregular heartbeat persisted, and then my hep c Dr. recommended I stop the meds altogether.

Has anyone had a side effect related to irregular heartbeat or change in heart rate?

Also, hoping i don't relapse due to cutting treatment 3 weeks short.

[nan535]

Just want to say everyone is different and no one (especially doctors) should generalize and think that everyone will experience treatment the same way.

My husband just completed week 18 of 24 (S & R). It has been very tough for the both of us.  I had to figure out what was happening to him when he kept getting these ongoing bouts of HE.  There just isn't enough experience with these new drugs yet.

The real "trials" start when thousands of patients start treatment after they get FDA approval. A couple of years ago the answer was telaprevir and boceprevir (sp?), until lots of patients starting decompensating. Now no one uses those drugs.

But we will keep on trying, because what is the alternative? Hopefully, the day is coming soon when HCV will be a thing of the past.

Keep up the good fight in the meantime.

Nan

[lanajb]

Thanks, Mike.  This was the first time I've posted on this site.  Wish I'd known it was here before this.  I live in a small town with pretty much no support.  I have to drive 2 hrs. to my liver specialist (nearest big city). Just heard my digestive specialist has begun treating with the Sovaldi & Olysio meds.  I offered to talk to patients with his Nurse Practitioner who will be doing the training and patient follow-up.  They might want to know what some of the side effects are.  Another thing that is really needed are nutritionists that specialize in diets for HepC patients who have cirrhosis .  Guess we'll catch up in our lil' Podunk town at some point.

[mike716]

Good luck with SVR at EOT.

[lanajb]

My Sovaldi/Oysio tx meds were paid for by Medicare Part D, and I think some help from the pharmaceutical companies.  I'm older, have had the virus for 46 years, doc thinks I have 4th stage liver disease, due to the thrombocytopenia, edema, and fluid build up in one of my lungs.  All side effects of the liver disease.  He thinks my liver still might be able to repair itself.  Hope the info on how I got coverage helps.  Your liver specialist might have some ideas on how to get.  It's possible that as I was so sick, they covered me.  Who knows......  I have 2 1/2 wks. left of drug tx.  The virus was cleared at 4-5 wks. of tx.