Olysio & Sovaldi

[jen322]

Hello all, I am starting the Olysio and Sovaldi treatment tomorrow for my Hep C. Anyone have any info on it what to expect as I hear there are few sides. What are you eating when you take Olysio as it needs to taken with food.'I am so stoked about the treatment and can't wait until my box gets here tomorrow. I will start as soon as I rip it open!! 40 years and ready to move on.
Look forward to getting to know everyone and learning from you all

thanks
jenne

[Sovaldi13Newbie]

Hi, am on my 8th week of S&O so only 4 more weeks to go. Just wanted to reassure you, while many, or perhaps most people on this treatment do not experience many sides to speak of, there are some of us that do. My hepatologist thinks that perhaps a woman's hormonal complex of issues has something to do with it. Particularly if you had immune problems, but you don't have to have immune problems. I don't want to scare anybody off this, because like I said, particularly on *this* board, many report having hardly any sides at all, but masses of people haven't taken this for a much more comprehensive report to come in, than  just the finite amount of people in study samples. Also, docs don't always report  in patients complaining about side effects for a number of reasons. They want to think that they are finally offering their patients an almost side free treatment which makes them feel better about prescribing it. They must have felt awful having only the old SOC to offer their patients. So when a patient does complain of sides it must be somewhat disappointing to them.  It was to mine. She said I was only one in about 10 people complaining of sides with this, out of all her patient list. But the pharmacist at the pharmacy dealing with this tx told me they have had complaints. And docs don't always report in their patients complaints of sides, because to them it's patient hearsay, and not easy to calibrate like blood markers, etc...It's more nebulous. But yes, there are some of us out here having sides, I've seen more people talking about them on a few other boards. I think it's great that most don't have any to speak of though, and I hope most everyone is in that group, and that we are ALL headed to SVR!

Anyway, headaches and fatigue are the most consistent. I take a half of tylenol when I get them bad, my doc says only a half is okay (for me.) Also it has done something to my stamina. Sleeplessness and anxiety. Personally, I'm glad I work very part time because in my case? I couldn't work full time on this. I know there are plenty who can though. I'm very glad to be taking it though, as I realize it's a walk in the park compared to the old soc, like I said. And only 3 months! I am treatment naive, started off with 3 million viral load, now undetected, am going to get another viral load today in fact. My liver function tests used to hover around 40, 50, 60 now they are both in the teens. Completely normal. This is a great treatment, and there are even better to come!

[jackinthebox3]

I have a question about the thrombosis- I have been off treatment for about 4 weeks now... I was on Pegasys, Ribavirin & Sovaldi for 12 weeks and am undetectable. But for a week now I have been having severe burning down my veins and just recently it has traveled to my upper body, arms and legs. My veins are all very pronounced almost vericose like and they are burning. I am only 25 years old and when I asked my doctor she said to just keep an eye on it. There is not too much information when I research the symptons.

[Hurlco]

Thanks for the link

[Hurlco]

Thanks

[hrsepwrguy]

"I wouldn't know an SVR from a Stevie Ray Vaughn jam, so I'd best study up on this shizz. If anyone out there can break things down a little more lay-manese for an old Irish Rocker, I'd be in your gratitude."

Follow the link

http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64

Have a great day

[Megan5515]

Thanks for the input, still feel like sh*t.  So far 13 days in, ~4 decent days... Rhuematology won't touch it unless I'm sure it's not the meds, which I'm not.  Treating with Percocet which works but can't take at work so looks like yet another medical leave for me...  This really *****, praying treatment works this time... 5 the times a charm?