Olysio & Sovaldi

[jen322]

Hello all, I am starting the Olysio and Sovaldi treatment tomorrow for my Hep C. Anyone have any info on it what to expect as I hear there are few sides. What are you eating when you take Olysio as it needs to taken with food.'I am so stoked about the treatment and can't wait until my box gets here tomorrow. I will start as soon as I rip it open!! 40 years and ready to move on.
Look forward to getting to know everyone and learning from you all

thanks
jenne

[mike716]

I can't understand why they would okay it for two months instead of three. What excuse did they give?

[Hurlco]

I just picked up both meds today with a 30$ copay. There are coupons and assistance avaiable. Keep the faith.

[Megan5515]

Just started olysio sovaldi combo 9 days ago. Wondering if anyone is experiencing severe joint pain/body aches? I have lupus but started having pain with meds and have never had a lupus flare this bad... Only had 3 good days of 9 so far...

[corkyg]

My husband is taking both, his doctor had to do a prior authorization to the insurance company, a letter to tell them why he was prescribing both. It was approved for 2 months and now they are appealing it again for the full 3 months.

[mike716]

This is just an update on my situation, for those who have been following my seven years of tribulations with hepC and my current plight in New York.

I finally found a hep MD in NY who was willing to prescribe Sovaldi + Olysio for me. I had already spoken to the Gilead and Janssen patient assistance programs, both of whom told me I should be eligible (no insurance, advanced fibrosis, etc.) and sent me applications. However, the MD has a specialty pharmacy he works with and is letting them handle the contacts with the assistance programs. I don't know if this is the best way to handle it, but it's what I've got.

So, I'm waiting to hear from them about whether I am approved for asistance. If I'm not, I don't think I will get any more help from either the MD or his specialty pharmacy as they don't seem very interested in spending time with this.

Aside from that, none of the five trial study sites I contacted in February has yet come through with a trial for me. The two who said they would have trials in June have backed off, saying the trials aren't for me. I still have some hopes, though, as they all say there will be new trials starting up soon. Also, tomorrow I have an interview with a hep MD at a big hospital on Long Island that does trials but which requires you to become a patient there first.

So, all things considered, I'm making some kind of progress. I don't have the meds yet, but I feel I know more about how the system works back here in the U.S.

If anyone reads this who got Sovaldi + Olysio through the patient assistance programs, it would be a big help to me if you could tell me how things went for you, especially whether you had to write letters and fight for the meds after the original submissions.

Also, does anyone know if you can re-submit an application for patient assistance once it has been turned down? I'm thinking I might try another MD if things don't work out with the present one and his specialty pharmacy.

Good luck to everyone who's in therapy, and congrats to all who have been through it and cleared the virus.

Cheers!

Mike

[Yogijefferson]

Hey guys
I wanted to see how you are feeling, how is the treatment I actually was on 29 people who did 24 weeks of the combo therapy with Ribavirin. It has now been ten months and actually I felt best the first 8 weeks of treatment, sovaldi has a withdrawal feeling coming off of of it that was the hardest part. They told us we had to eat with the dose in the morning, I did develope myalgia on the 13th week. But I am clear and  done but I lost all my energy to my liver healing, I had hep c 42 years I know of. I was only a stage one but had been treated before with interferon and the virus returned, but I could feel it the virus was gone but the drugs left me very depressed.
I am just now feeling  better but I have had 2 superficial vein thrombosis from the treatment too and one DVT.
I am just letting you all know do not be to disappointed if your tired at the end your body needs to heal, I think with that expectation you will not be disappointed at all.
I was most surprised at how much hep c effected my thinking, i unable to read and now I can strange as hell.
I keep trying to shake the depression but I do yoga, swim, ride a bike, and hardly ever need to take a nap anymore. Oh and for a 50 year old guy I had zero sex drive abs was 80 pounds overweight. Now I have lost 60 pounds and have the sex drive of.18 year old they tested my free testosterone and it went from  150 to over 900 from not having hep c just to give you an idea of the way things change.  So all you. Guys have that going for you,
I wish I had not been the 24 week group but then again my entire group cleared . I am really feel bad I told so many people and gave so much hope just to have it crushed. So far the drugs are rated as you have to be really proactive or have stage 4 or greater..
Peace and I hope you all get the wonder drug!
Gilead is just morally ******, all about cash not helpings the world I think it is evil they knew sofasbuvir was the cure when they acquired it. But the suffering mentally not knowing what nornal feels like is the hard part.