On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[1msmagnolia9270]

think I posted question to wrong person--my question regarding cost--13,000 fwith madicare part d??  I have medicare part d --aarp medicare rx preferred (PDP)  is that what you have?? thanks for any info   Sharon

[skewedToTheLeft]

Man, it appears that I have struck gold with this site. I have an appointment on May 29 to see Dr. Martin at the University of Miami's department of Hepatology and I can't wait. I have never been treated with pharmaceuticals but I've tried many so-called natural cures and all have failed. I even tried blood irradiation therapy 12 times! My only worry is that I have BCBS insurance some of the stories I've heard are not encouraging. I've had 2 biopsies in the past 11 years -- one in 2003 and one in Feb. of this year and my results were the same stage 1 with no cirrhosis or fibrosis, so I guess that herbal and other natural treatments can retard the progression of the disease but definitely not cure it. I feel terrible most of the time. The virus seems to have cyclic patterns that nearly debilitate me when they come on. I usually have 1 or 2 days a month where the virus lets up a little and I feel okay. I hoping and praying that if I can get this new drug combo that it will slay the dragon so that I can feel good nearly everyday like most people that I know.

[ChrisDDD]

Drano.  That's a perfect description of interferon and Ribavirin.  Besides those two, the only other thing I ever tried was the Infergen and Ribavirin, and promptly developed retinal hemorrhaging by week 9, had to be taken off of it.

[GP7852]

Thank you all for your advice.My cough is not cold related.I have no cold symptoms.I did have a cough on my previous treatments with the riba and peg and again with the incivek,riba and peg.I thought this might be a commom side effect that I might not have with the sovaldi-olysio but apparently I don't see other people having this problem.Its probably what I feared it was,38 years of breathing in 2nd hand casino smoke.

[candyce1953]

Misspelled beginning of tx, in previous post

Also retread and it said RIBA caused  " nasopharyngitis"
But
I am not taking RIBA
And another friend also taking S+ O no RIBA has theses side effects too

ONLY they are for me and her so minor I have never mentioned till now
Cause I do not care if I have a runny nose if I clear this disease

All my sides are live able (in order of intensity: Fatigue/ mild insomnia /  - and in 8 weeks only 3 or 4 headaches and same for nausea ) these are wonder drugs with minimal sides, and feel blessed to be on them
Not discouraging anyone , just explaining a possible reason for his cough
Post nasal drip too, but obviously an md should check it out

[candyce1953]

In Study GS-US-334-0118, 153 patients (100 per cent) became HCV undetectable by treatment Week 4 and remained undetectable through the remainder of the 12-week treatment period. Post-treatment relapse accounted for five virologic failures. There were no treatment discontinuations due to adverse events and all patients completed the 12 week post-treatment follow-up visit. The most common side effects observed in the study, consistent with the population and safety profile of RBV, included nasopharyngitis, anaemia, headache, malaise and pruritis. Full study results will be presented at a future scientific meeting.

Please note the side effect "NASOPHARYNGITIS"

That's what I meant by rino confusing it with like pregnancy rhinosinusitis

But I was too lazy to the time to paste the article, but here is the link
http://www.pharmabiz.com/NewsDetails.aspx?aid=81213&sid=2

It was the first time  I saw basically the runny nose as a side effect  of Sovaldi , and was comforted to know it as it had plagued me from the Bennington of tx with olysio and Sovaldi

A small price to pay to be UND in 4 weeks, after 43 years of the disease

Oh and by the way I am a  Democrat!!!