On OFF LABEL Sovaldi and Olysio!

[GrammyA]

In my 3rd week now and feeling really strong.  Without the nasty Interferon and Ribavarin this time - I have had minimal side effects and I am so very grateful!  My 2 week labs came in today and ALL of them are in normal range... including AST and ALT.  Second month of the meds have been ordered and are now on their way so stay tuned for more updates as we knock out these 12 weeks of treatment.  I truly believe this 3rd attempt to SVR will be the final one as it will be the cure I have needed using these 2 drugs!
I will keep you all posted.
Hugs and God Bless!

[ZapFan]

My only bood work abnormalities on the solvaldi/ olysio, ribavirin treatment is low hematocrit and low hemoglobin...(anemia), which can be helped a bit by lowering the dose of ribavirin.
otherwist just had a headache, and hyper photo sensitivity from the olysio.
I finish the 12 week tx in 2 more days.

[Waitinforhelp]

Thanks for all of the post on here, it has been very helpful. My Doc. has prescribed both sovaldi and olysio. But of course it keeps getting denied by insurance. They have appealed this since Feb of 2014. But it's so nice to hear of all of the success stories for everyone on here.
I am wondering if most of you have difficulty with high ammonia levels and low platelets along with your ast and alt ?
All of my rbc's seem to be a mess, hemoglobin, hematocrit ect.
I would appreciate it if anyone could let me know if they have these problems with their hcv.

Thank you and God bless all of you for your speedy recovery!

Lisa

[Optimist3]

Eventuall the prices for the meds will go down! Once there is a competitor on the market! keep fighting and you will win

[mike716]

It's a jigsaw puzzle. Sounds like you handled it the right way.

I am waiting to hear from the specialty pharmaceuticals company whether I am approved for patient assistance by janssen and Gilead. If either or both turn me down, I'll go from there.

BTW, not all states are letting Medicaid pay for the HCV DAA's. There's a bog fracas about it. Could bankrupt state treasuries.

Cheers.

Mike

[ZapFan]

Yeah, I made sure I got that last bottle of Olysio before I gave them the denial Letter...They give you 3 mo. to get it, so, by then you already have the meds, I was worried about possibly getting cut off, but once they commit to give you the meds, I don't think they will cut you off...see this link explaining the low income subsidy... You may be eligible for Medicaid.. which pays for drugs and all doctor and hospital costs..if you have a low income you may get it ...The Olysio people..Johnson and Johnson asked me If I applied for Medicaid, I said yes, but I was denied...so then they asked for me to apply for the low income subsidy....but, if you are not eligible for medicare...this does not apply to you

http://www.ssa.gov/medicare/prescriptionhelp/materials/pdfs/StateManual.pdf

[Optimist3]

I am in week 3 and my 2 week blood test is very good the liver enzymes from 400 to normal....platelets going up, HEPC  RNA quant 40....
hoping it is working!!!
Good luck to everyone!